humira causing ms

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IRISH EOIN
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/27/2010 12:34 PM (GMT -7)   
Hello everyone, Irish Eoin here. I am 43 yrs old and this is my first visit to any forum of any sort. Please forgive my ignorance in advance.
My wife was diagnosed with Crohn's about 22 yrs ago,since then she has been on Pentasa, Infliximab and for the last 3 yrs she was on Humira.
Since August 2009 she has presented with numbness in her legs,fingers and double vision in her left eye.
In feburary 2010 an MRI was taken, the results we only got 2 days ago confirm she now has MS. Does anyone have similar problems with Humira?

Post Edited (IRISH EOIN) : 4/27/2010 1:37:33 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/27/2010 1:50 PM (GMT -7)   
Hi Irish Eoin and welcome to Healingwell. Unfortunately, I do not have any experience with Humira, but I thought I would bump your post back up so more can see it. Hopefully someone will be along soon with an answer for you. On a side note, I have heard of others who have developed Lupus from Remicade, maybe something similar is happening to your wife with the Humira.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Not2Spunky
Regular Member


Date Joined Feb 2008
Total Posts : 165
   Posted 4/27/2010 4:05 PM (GMT -7)   
I have been reading about this on the net, pretty scary. That is the reason I am putting off going on the Humaria or the Remicade...I don't know anything about it but there is alot of info on the net.

 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/28/2010 8:37 AM (GMT -7)   
Hi Irish,
I'm trying to get some info for you. Will reply again when I gather it.

Hang in there, and hug you lovely wife for us.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


IRISH EOIN
New Member


Date Joined Apr 2010
Total Posts : 2
   Posted 4/28/2010 3:43 PM (GMT -7)   
Thanks for the replies. Any info would be appreciated , hope to hear from you again. 

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/28/2010 4:19 PM (GMT -7)   
Dang! All that typing and then I lost me page.. ok, here we go again...

I was hoping to give you more specific info, a doctor's name in Ireland, but no luck finding it. Not to be disheartened, I've got enough to get you well on your way.

Info about what, you wonder? Low Dose Naltrexone. I'm assuming Humira is out for you wife, which is good cuz LDN cannot be taken with immune suppressants.

LDN has been used for about a decade at least as an adjunct treatment for MS. It might not give back what your wife has lost, in terms of function, but has shown to halt the disease for a large percentage of those with MS.

What is more is that it's now being studied for use in treating Crohn's. I have just started taking it, 1 month in, as I cannot tolerate immune suppressants well, and I'm flaring again. I am also using it to treat Crohn's related tendinitis (a two-fer) in my shoulder. One month in and while I'm not even half way there in terms of using my shoulder or gut, I am seeing improvements.

Here are a couple of webistes for you to check out. Feel free to contact them to find a doctor near you, I think they can help with that.

1. http://www.lowdosenaltrexone.org/

2. http://www.ldnresearchtrust.org/ * this one has informative pod casts, a forum and a facebook group, there's also a facebook group called LDN and Ireland.

Please give our best to your wife, tell her our thoughts are with you all, and if you feel so inclined let us know how things are going.

Best, so
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/29/2010 8:01 AM (GMT -7)   
Righty-O-SO!

I found a doctor for you in Dublin, from this data base:
http://www.ldndatabase.com/index.html

The LDN Doc in Ireland is,

Dr. Emond O'Flaherty Ireland Dublin Stillorgan +353 (0) 1 2881425 edmondf@indigo.ie

Please let us know how you and your wife are doing :)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

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