HPV and Crohn's

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Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 4/27/2010 4:21 PM (GMT -7)   
So, I just got the phone call that my pap smear had abnormal cells and I am HPV positive. I have to go in for further testing next week. Does anyone else have this? I'm really scared. Any advice or knowledge?
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently moving onto the "big doctors". AKA: Transferring out of Children's Hospital of Wisconsin.
Doing lots of testing now that I have a new doctor:
Just started B-12 injections ( monthly)
Currently on: Purienithol (6MP), Calcium, and Multi-Vitamin
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


randynoguts
Veteran Member


Date Joined Jan 2003
Total Posts : 6049
   Posted 4/27/2010 7:07 PM (GMT -7)   
from what i have read it means you had unprotected sex with someone that was also positve. it also is quite normal in the younger population say under 40. it wont kill you but you may have to be more carefull with check ups from now on etc.. to watch for cancer. it raises the risk . shouldnt impact your crohns though. lets just wish it was a false positive test!!
randynoguts 



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lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 4/28/2010 3:04 AM (GMT -7)   
I've heard before that apparently many people are carriers but never actually have flares of it. So a positive test result may not mean you will actually have outbreaks, its only the outbreaks that are contagious and can cause problems. Still, try not to stress too much and wait and see what the next lot of results are, from what I understand its quite common so hopefully that means there'll be a lot of information and treatment (if needed) for you.
 
 


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/28/2010 4:13 AM (GMT -7)   
Mine was just as randy n lilcronieUK said false positive...try not to stress too much you will have to do other testing so keep us posted...all the best vibes coming your way
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

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Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 4/28/2010 7:27 PM (GMT -7)   
Thank you everyone for comments. I've also read on-line that almost everyone has HPV is just doesn't become active. I'm just worried because it's a virus and that our immune systems are crap.
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently moving onto the "big doctors". AKA: Transferring out of Children's Hospital of Wisconsin.
Doing lots of testing now that I have a new doctor:
Just started B-12 injections ( monthly)
Currently on: Purienithol (6MP), Calcium, and Multi-Vitamin
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 4/28/2010 7:38 PM (GMT -7)   
I had it quite some time ago. Usually you get retested and a lot of times it goes away on it's own. It's not anything to freak out about though, cuz like someone already said, it doesn't cause problems unless it's active. It can be in your system for years and never cause any problems. The thing you have to be careful about is that you have to use condoms if you do have sex so you don't pass it on. I was concerned about passing it on to my BF and the OBGYN said just to use condoms, and that in most cases men pass it to women, and not the other way around.

In my case I also had precancerous cells and had to have them removed, but since then I've been fine and had normal pap smears. Compared to other tests and things I've had done, it wasn't a big deal.

I'll cross my fingers that it's a false positive!!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 4/28/2010 7:41 PM (GMT -7)   
HPV can be transmitted even with protection. 1 out of 3 sexually active people have a form of HPV.

I had abnormal cells (form of HPV) after a pap and my doctor said that it may take longer for me to fight it off because of a weakened immune system. Go for colposcopy to have the abnormal cells tested and just make sure you follow up with paps every 6 months until things go back to normal. Just be prepared to have it take a little longer.
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


engineer555.9
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 4/28/2010 9:00 PM (GMT -7)   
When the internet says "most people have hpv" I think its typically referring to plantar warts and such, which are of a different strain than genital. They're treated all the same though. I had warts on my fingers (finger tips around nails) and O.M.G. it hurt so bad. I went weekly for years getting the things zapped with a laser, frozen, acid, aldara cream etc. Finally went away when I got off of imuran. If you do have a some places come up, they're pretty good about treating them now, and with proper rest and diet you should be able to fight it off fine.
Age: 23
Gender: Male
Diagnosed: March 2 2005
Weight before diagnosis: 174lbs
Weight at sickest: 135lbs
Current weight: 192lbs 10% body fat
Current medication: Remicade 5mg/kg e. 7wks; Veramyst 27.5 mcg, Singulair 10mg

I joined this forum in hopes that my success story will inspire others to be proactive about their condition and to never lose hope.


Pmkrier
Regular Member


Date Joined Apr 2010
Total Posts : 69
   Posted 4/29/2010 10:59 AM (GMT -7)   
It's strange because I've only been with one person and still am with him for the past 5 years. Must have been dormant for awhile because I've had a pap smear for the past 5 years as well and always turned out normal. :-/ I go for my colposcopy next week. Wish me luck! Thanks for all your comments. I really appreciate it! I'm still a little nervous :-/
Crohn's Disease. Diagnosed in 1997 at the age of 10.
Currently moving onto the "big doctors". AKA: Transferring out of Children's Hospital of Wisconsin.
Doing lots of testing now that I have a new doctor:
Just started B-12 injections ( monthly)
Currently on: Purienithol (6MP), Calcium, and Multi-Vitamin
Was on: Prednisone, Remicade ( Allergic Reaction 2nd time around)


mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 4/29/2010 9:14 PM (GMT -7)   
I have it too -- HPV doesn't seem to be affected by crohn's itself, but some medications can make you more prone to an HPV outbreak.  Mine was in remission from the time i was diagnosed with crohn's (2005) until some point in the last year.  Nothing had changed sexually, but I had been steadily increasing my dose of methotrexate over the last 2 years (the time from my last "normal" pap smear to the one showing abnormalities).  My obgyn thought the methotrexate was what caused the HPV to come out of remission.  I see that you're on 6mp, which is also an immunosuppressant and could be contributing.  In my case (and I'm guessing yours also), my doctor felt that the immunosuppressant is helping the crohn's more than the HPV is hurting anything.  Just keep getting monitored by your obgyn to make sure s/he can remove anything that looks suspicious before it becomes a problem.
 
Melissa
34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Plaquenil,  Xyzal, Zyrtec, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14165
   Posted 4/29/2010 10:01 PM (GMT -7)   
I heard that abnormal paps are usually caused by HPV and often times it is something that clears on its own. I recently had an abnormal pap and a negative for HPV exposure. My doctor didn't seem too worried. She gave me metrogel. I had another pap the other day and this one came back with no abnormal cells. Guess it was some kind of irritation.
 
I don't think that it's a big deal. Of course, when I heard my pap was abnormal I was worried and thinking the worst. Try not to stress, it's so common. I think it does increase your chances of cervical issues but if you're checked often, it shouldn't be an issue.
 
Can it really be dormant and not show up on a DNA probe? How old are you? I heard they don't do the DNA probe until you're 30.
March 2007: Diagnosed with mild proctitis - Treated with Canasa (as needed)
August 08 - December 08: Relapse & Anemic - Treated with Asacol (9/day) + Canasa 2x/day
January 09 - December 09: Remission!! Canasa nightly + Asacol (9/day) + Probiotics + Iron
December 09 - January 10: Flare :( - 40mg prednisone + Canasa - Relapse @ 2.5mg - Began Slower Taper
Current: prednisone, Colazal, Canasa


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 4/30/2010 5:21 PM (GMT -7)   
Don't be scared they say that about 80% of sexually active people have HPV and some have no signs or symptoms.

I have HPV and got abnormal test once had to have a minor surgery and since then I have been fine.
It freaked me out a lot but I did not have anyone I could talk to and tell me everything would be ok.

This surgery was so minor that it was just like a walk in the park, nothing compared to having CD.

After the surgery they check up with you regularly. But your results do not even mean that you have to have surgery.
Just wait and see.
Not to scare you but the test they do next it a little painful so be prepared nothing totally bad but I would ask someone to come with you to drive. And take something for cramps like Ibufen before the appointment with your doc.
I have done it twice and the first time was hell and I could not drive home because of bad cramps and pain. But the next time I went I took Ibufen and had my hubby with me to hold my hand, and I was prepared.

Good luck and relax ;)
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 5/1/2010 1:13 AM (GMT -7)   
I always have abnormal paps and have had to get biopsies 3 times-Not Fun!!! perhaps it is HPv afterall. I don't get my period ever and have been given progesterone therapy which made my Crohn's flare up and made me want to punch everything and everybody. thanks for the tip, perhaps this will solve my menstual problems-HPV I will be tested now.
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