I went to the Mayo Clinic in Rochester, MN for a week back in 2006 before I was diagnosed with Crohn's. I saw Dr. William Faubion and I thought he was good. I was really impressed with the way they handle things there - there are so many people in the waiting rooms at one time that you think you will wait forever but you don't, they get you in and out. It is like a very well oiled machine that just keeps going - the staff were fantastic and everything was handled professionally.
They did miss my diagnosis which I was a little surprised about - that said, the only way they were finally able to diagnose me back in Atlanta was through an exploratory surgery and that was even a bit questionable. My diagnosis was finally made based on symptoms, response to meds, family history, multiple serologies and multiple abnormal CT scans, etc........I have never had abnormal or positive biopsy results and the Mayo (along with many other Docs) were reluctant to diagnose without the biopsies. So, a lot of people questioned Mayo for not making the diagnosis - I would tell you that I still think they did a great job and I would recommend them.
I would give you a few tips if you are planning on going there though:
1. There is a nice and reasonably priced hotel - The Grand Kahler Hotel / Grand Kahler Inn and Suites - they are attached to the actual Mayo via underground tunnels and it is very very convenient. I don't recall them being any more expensive than any other local hotels - you might want to check them out.
2. There are a lot of shops and restaurants in the underground tunnels as well - if your Crohn's is very active, there is a Robeks smoothie place which is fantastic (I had one during my pre-colonoscopy liquid diet). I would also highly recommend the spa down in the tunnels for massage - they were FANTASTIC.
3. IF THEY SCHEDULE YOU FOR A COLONOSCOPY/ENDOSCOPY - make sure you address anesthesia ahead of time if you want it. Their typical process is only to do it under twilight and they do not knock you out. I am a person who has had many of these tests and I will not do them without being completely out. They will arrange anesthesia but ONLY IF YOU REQUEST IT. I found out the hard way and it was a big issue to have to reschedule and try to get anesthesia to work me in - just an FYI up front.
4. I would buy the trip insurance through your airline or travel site - I did and it was a lifesaver. I think the travel insurance was like $12 or something like that and it allowed me to change flights / days, etc........without any real penalty or forfeiting my ticket. Depending on how your tests go, they may keep you longer or shorter than originally planned - this makes sure you don't have a big travel headache.
5. Make sure you have copies of all of your medical records, the actual films from your scans....not the reports but the physical films......they will want to read them there. The more you take with you, the better. They will return everything to you when you leave but you will need to turn your records in when you get there for your initial consultation. You will see the Doctor on day one and have a consult - they will then order all the tests they want performed and you will work with a scheduler to get them set up. You will run through the tests over the course of however many days you are there and then you will come back and meet with the Doctor again at the end of it where he will go over all the results, the diagnosis and the treatment plans.
I know this is a lot of info but hopefully it might be helpful for you. Please let me know if you have any other questions or if I can provide you with anything else -
Good luck in your decision!
Crohn's DX in 2006 but sick for well over a year before that. Currently just started on Humira, Pred - 40mg (hoping to taper off of this soon), Phenergan 25gm prn, Percocet, Pentasa 500mg, Protonix 40mg and Lomotil, prn.
I live my life to the fullest, enjoy every day and am excited for the day when we will be able to say good-bye to CD and UC. I am becoming active in my local CCFA chapter and have found them to be a wonderful resource!