Imodium for urgency issues

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aronk
Regular Member


Date Joined Jun 2006
Total Posts : 229
   Posted 4/28/2010 11:59 AM (GMT -7)   
Does anyone take imodium for urgency issues? If so, how much do you take?  I've had two resections in the past year and feel pretty good now except the urgency issues.  I've had accidents twice in the last week--once at work and once in my car trying to get to the bathroom. UGH.  Anyway, I don't want to take so much that I can't go at all.
 
Any advice?
Angela 
Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort.  Will have a "redo" resection on April 6.


meshice
Veteran Member


Date Joined Jan 2003
Total Posts : 734
   Posted 4/28/2010 12:35 PM (GMT -7)   
I take it for days I know I am not going to be around a bathroom - like a fieldtrip with my kid or while on vacation.  I can take one pill a day for two or three days and be OK (depending on what I eat I might take two pills a day) - I won't go during that time, but when it wears off, it wears off and I have to get to a bathroom.  So,  I have to plan to be around a bathroom after not taking it.  Sometimes when I take it after it wears off I feel like crap (no pun intended) for a couple days.  I think it messes with me or something.
"We can't beat this disease, YET, but we can't let it beat us!"
Mandy

"Do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own." Matthew 6:34


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 4/28/2010 12:55 PM (GMT -7)   
Every day normal stuff, I usually take one. My symptoms are worse in the evening and overnight, so I take one around 6 pm and this reduces my BM to around 6-10. If I have been having a really bad day like I ate something that is making the symptoms worse, I will take 2. When I first started taking it, I would feel really gassy and bloated, but since my resection I don't seem to have that problem. If that happens, you can try taking a GasX with it.

I have never had it stop me up so I couldn't go.
Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 4/28/2010 1:01 PM (GMT -7)   
I used to live on loperamides (immodium), taking between 10-20 a day and that jst used to make things bearable, sometimes I would still have days that I would have a lot of urgency even with taking large amounts. As on previous posts, my GI told me I could take up to 32 a day bit not all doctors agree to that amount. Have you tried questran at all, as I am on that as well as B12 injections which is also supposed to stop you running so much as well,especially with having resections. I have only had one resection so far, touch wood! Hope you can come to a solution, it isn't pleasant, I know from experience when you have accidents at work.I always keep a spare set of clothes with me, where ever I go!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 4/28/2010 2:07 PM (GMT -7)   
I have a problem with immodium plugging me up causing problems that way.Through careful experimentation I've found 1/3 of a pill is usually safe for me, 1/2 is too much. Suggest you go slow and see how it works for you.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


29Lancelot
Regular Member


Date Joined Aug 2008
Total Posts : 37
   Posted 4/28/2010 5:47 PM (GMT -7)   
I have urgency issues do to damaged muscularity in the bottom end. I take liquid Immodium daily - one spoonful and it slows things down enough that I get enough of a warning to avoid accidents. I found the pills caused me to bind too much and cause potential fissures. The liquid seems to work best for me.
  • Dx of CD in '86. Re-section '93. 
  • Remicade trials late 90's. 2nd attempt - after 10 yrs - failed  
  • Hx of fissures, fistula, scleritis and erythema nodosum.
  • Presently on Imuran, Humira (March 2010)
  • Fistulotomy Oct '09 failed - healing resistant perianal wound tract



  • MAG102886
    Veteran Member


    Date Joined Jul 2008
    Total Posts : 674
       Posted 4/28/2010 5:49 PM (GMT -7)   
    I take up to 16 a day, my doctor wrote me a prescription for it.
    Dianogsed with Crohns: At 16 years old. 23 years old now.
    Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
    Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
    Next Surgery: None.
     

    Grandpato2
    Veteran Member


    Date Joined Dec 2009
    Total Posts : 681
       Posted 4/28/2010 11:12 PM (GMT -7)   
    Lancelot I'll go and buy some liquid, perhaps thats the way for me too! ty
    Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14995
       Posted 4/29/2010 8:16 AM (GMT -7)   
    I usually tend more towards constipation vs diarrhea. But if I eat the wrong thing or have TOO much stress I will immediately get diarrhea. If I use Immodium I only use 1/2 tab otherwise its stops me up too much. But what I have found that works good for the diarrhea and cramps is Librax. I take one and it helps to stop the d and the cramping at the same time. Good luck!
    Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    aronk
    Regular Member


    Date Joined Jun 2006
    Total Posts : 229
       Posted 4/29/2010 8:59 AM (GMT -7)   
    Thanks everyone... I think I will try a 1/2 pill for starters. I don't have a problem with cramping--just the urgency and D, although I'm only 1 month post-op. Just can't handle the accidents. UGH.
    Angela 
    Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort.  Will have a "redo" resection on April 6.


    ReactiveConstellationNE
    Regular Member


    Date Joined Dec 2005
    Total Posts : 256
       Posted 4/29/2010 2:01 PM (GMT -7)   
    Loperamide is an opiate, and "causes constipation" (or pushes on in that direction, anyway) for that same reason. It works by the same mechanism.

    The only reason that Loperamide (a relative of Fentanyl) is OTC, is that it does not cross the blood-brain barrier. So it has none of the pain relieving, mood-altering or sedative effects of other opiates that do cross the BBB.

    Loperamide is often recommended as a means of managing opiate tapering/withdrawal, and not just for the anti-diarrheal effects. It mimics a few other "peripheral" effects of opiates, relieving some w/d symptoms.

    Because most opiate tolerance/dependency happens in the nervous system, these are less of an issue with loperamide than with BBB-crossing opiates....however, they are still present to some degree and you should expect rebound symptoms as well as possible minor opiate-withdrawal-like symptoms if you have been using it heavily for long periods and then stop suddenly.

    I strongly suggest a gradual taper when using it for long periods, and that if possible, you keep your use to a level where dependency or major rebound symptoms shouldn't be an issue.
    Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.

    Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.

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