Careful picking friends on forums....

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snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/29/2010 7:15 AM (GMT -7)   
The spam email thread reminded me that twice I have been the "victim" of  people who befriend me on forums and claim to have all my same problems and want my email address so they can talk confidentially. The as soon as we start chatting they direct me towards their website and try to sell me something. One guy was QUITE persistant! Maybe their intentions were good, but the sales act was overbearing.
Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/29/2010 7:24 AM (GMT -7)   
Really? Wow, some people....
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/29/2010 7:28 AM (GMT -7)   
I haven't had that happen to me, thank goodness.
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/29/2010 7:30 AM (GMT -7)   
some guy was pushing his probiotics that were "far superior to that junk you buy and the drugstore". HA!

Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/29/2010 10:38 AM (GMT -7)   
That is why you should be very careful about ever disclosing any personal info on this very public site such as your email (especially when it identifies you by your real name or is associated with your work), facebook, real name, and any other personal info.    

We have also had problems with people "faking" stuff on here, especially in chat, and we do our best to protect you all.  But please meet us half way and do not give your personal info out.  Such as facebook, real names, email, myspace, etc.  People really can emotionally invested and get hurt.
http://www.healingwell.com/community/default.aspx?f=49&m=461190
  


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


snappy
Veteran Member


Date Joined Sep 2005
Total Posts : 675
   Posted 4/29/2010 11:00 AM (GMT -7)   

Makes me think of that Henry Rollins song "Liar"

And now you're desperate
And in need of human contact
And then
You meet me
And you whole world changes
Because everything I say is everything you've ever wanted to hear
So you drop all your defenses and you drop all your fears
And you trust me completely
I'm perfect
In every way
Cause I make you feel so strong and so powerful inside
You feel so lucky
But your ego obscures reality
And you never bother to wonder why
Things are going so well
You wanna know why?
Cause I'm a liar

 


Bad fissure Feb 2005. Started Remicade 2006. Fissure #1 healed, now deal with smaller fissure that comes and goes. Clean scope 2009 except for fissure. Also on Pentasa.


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 4/29/2010 11:03 AM (GMT -7)   
I am not even sure that matters. Someone is harvesting email addresses and spamming. I never had this many disease related spams ever lol.
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/29/2010 11:06 AM (GMT -7)   
aoccc, make sure you report them to admin{at}healingwell.com so he can ban them.   Make sure replace {at} with @. In the mean time I would recommend removing your email and yahoo info from your profile at least for while.   
 
Snappy it really is quite sad, because it is an illness, really needs professional care, and certainly like most mental health issues is a chronic illness.  But it is an illness that can hurt others.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 4/29/2010 3:18:24 PM (GMT-6)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/29/2010 12:22 PM (GMT -7)   
Sorry, I never open e mail from anyone I dont know. As for real people doing that to me, All I can say is they better be ready for my wrath .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 4/29/2010 12:25 PM (GMT -7)   
Just an idea for you all. The email I have listed is my bucket email. It is the one I give out for all things unimportant. Like when stores need an email or when you need to register at a website, wink wink. I have a separate email that I use for work and personal correspondence. I would only give that out to someone from here after I knew them from multiple posts and knew that they were for real. I don't really care who emails my bucket email. I go in every few days or so to check it but other than that it is just junk. That is why when someone from here says they are going to email me I ask them to give me a heads up otherwise I might miss it. Its a sad thing but I get hundreds of emails a day in my bucket email and most are spam or sales pitches of some kind, I can't possibly go through all of them.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/29/2010 12:47 PM (GMT -7)   
Navy this is exactly what i wanted to talk to you about ..lol
there is a site i joined not knowing what it was
well next thing ya know a fellow claiming to be General D Patreus contacted me .....
sweet talked to me for about 2 weeks
then he says he is sending pkg to me via another person
BUT
i had to pay 10.000 dollars as it was held in customs lol
i played him n then my brother n i contacted Dubai police dept
they are now checking into both ppl i saved all emails ect from both
the police here in town would do nothing..they were here
but as soon as police in DUBAI were contacted they sent me email saying not to send money ..like i would
anyways this person is using the generals name n profile n the other is a man supposedly a diplomat lmbo

they are now being checked from dubai n government here and states for fraud n other things

YES be very very careful
the thing is i was so vulnerable at time but finally came to senses when things just didnt add up

plz all watch for scammers..im not easily scammed but they really tried .....
i guess he thought i was real dumb n didnt know how to google info lmbo
check out this G ENERAL...HE IS SO LOADED WITH MEDALS HV NO IDEA HOW HE WALKS
live n learn
he learnt n will learn i might be deaf but doh that dont make me stupid.....
i hv email from Dubai police i will forward if you are interested
huggs
lyn

huggs to all
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/29/2010 12:50 PM (GMT -7)   
Sniper my friend would you know of this General.....

dang i felt stupid then my temper got me n i played him like a fine tuned fiddle
i feel bad for real GENERAL

huggs
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/29/2010 1:40 PM (GMT -7)   
These scams are quite common. The worse one's are where they claim to love you and just need a wee of money or credit info etc to get there where you are. Or they invite you to where they are and they do much worse. Glad you have your brain in gear and armor on!

General Petraeus has been in international news alot lately, especially when he became the commanding general in Iraq. So that is why his name is out there for people steal and use for illegal activities (not that you have to be famous for people to steal your info).
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 4/29/2010 2:00 PM (GMT -7)   
Navy is actually the ghost of General Patton . . .
Just send money and you will see!
I think I use the delete button on my email more than any other key on my computer. Amazing that some people are so dense as to fall for these scams.
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 4/29/2010 2:09 PM (GMT -7)   
Mike,
LOL I think Gen. Patton might spining in his grave.

The other part is that these criminals prey on vernerable people (particularly women) who have the normal want love, acceptance, communication, and some one to take notice of them, especially when they are feeling vernerable (especially when we are sick). It is not really dense, it is a almost reckless desperate sense of hope in humanity that someone will be there for you. Risk is inherant in any relationship, but just remember to use your head and not get too invested.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


ReactiveConstellationNE
Regular Member


Date Joined Dec 2005
Total Posts : 256
   Posted 4/29/2010 2:13 PM (GMT -7)   
Shameful.

I'm all for "probiotics way better than the crap you get in the drug store".....I take some stuff that has at least 3-5X as many strains as most things that are sold under the name probiotics, and they include several strains that usually don't show up in most blends which are very important. Notably L. Reuteri which has been shown to thicken intestinal linings as well as improve surface tissue condition.

But for people to go around using such tactics to sell stuff...that's obscene. I occasionally make specific recommendations to people about brands of supplements etc. that I have had good results with -- something I can't say about many of the treatments I've tried over the years, pharmaceutical or otherwise -- and would hate to be mistaken for a spammer/scammer in doing so. I help take care of my two kids (inasmuch as I'm really able to, which isn't nearly as much as I'd want), and I don't have a lot of time to spare....but I make a point of trying to share knowledge that has helped me, and perhaps help others who are suffering. That makes it a bit easier to cope with my own horror and pain....

...the notion that someone is out there, exploiting the awful things we're already going through to do nothing but line their pockets....infuriating beyond words.

Hopefully our community can help us keep track of those that do this, and ban them (preemptively, even, by their IP addresses) from as many sites as possible.
Conditions: Reactive Arthritis (AKA Reiter Syndrome), Crohn's Disease, Chronic Pelvic Inflammatory Syndrome, Sacroiliitis, Costochondritis, As Yet Unknown MS-Like Relapsing/Remitting Neuropathy, and a partridge in a pear tree.

Medications: Currently not that many are taken daily, but there are many at my disposal for part-time use. Low dose pain medication, after years at high doses. Working on innovative ways of taking lesser-known pharmaceuticals and non-prescription supplements to maximum benefit.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/29/2010 2:19 PM (GMT -7)   
LMBO... as you know Navy i am not dense and yes very vulnerable this last while but that sure as hades went out the window when i saw the medals and bio on ..the general..and his diplomat was so stupid lol to actually call my bro as bro asked thats how we found out alot more than we did
police are not impressed i hv forwarded all emails so they will hv ip addys of both persons as well as phone number sent to bros house
omg i felt stupid..but only for a bit then like i did SAY i n bro played him right back ......
The real General will be i hope notified that someone has done this he sure does sound like a great guy from profile.....on google..n like i said its a wonder he can walk with all those medals..
huggs
n thanks hun
luvs
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/29/2010 2:52 PM (GMT -7)   
This is probably one of the reasons I have a tendency to distance myself from people after a while... It's not something I really do intentionally, but... I get afraid of getting too close, sometimes...

'Course, this sort of thing doesn't just happen on the net (though, I imagine it's more likely to happen with me)... I do this sort of thing to people in real life, too... Dunno why...

It's good in a way because it helps protect me from people... but it's bad because I feel bad about it... Its just not very nice to distance yourself from people who really do care about you...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/29/2010 3:08 PM (GMT -7)   
No hun its not n ya get lonely too
i was very very vulnerable believe me but as i said i sure came back spitting mad n on the warpath n yes im native lol.....
i dont think it makes you a bad person just a trusting person n yes i hv learnt a great lesson in all of this
but then so has..the so called general n his company

this you need to know you hv friends here hun remember that kk
huggs
lyn
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 4/29/2010 3:33 PM (GMT -7)   
Yeah, I know... and I really do appreciate all of you guys' support... and I care about you guys a lot, too... (Well... those of you that I know... There's been some new members on here that I don't know yet, but I'm sure I will eventually... I like to help in anyway I can, regardless)... If I do drift away, again, it's not intentional... I don't always realize that I'm doing it... I probably will come back, though... This is a pretty safe environment for the most part, and that can be pretty hard to find...
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 4/29/2010 4:24 PM (GMT -7)   
This is why any time I see someone promoting something here that is better than "all your Meds" & "Doctors don't want you to now.." my blood actually BOILS! No wonder I've had night sweats! LOL

Matthew

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/29/2010 9:18 PM (GMT -7)   
Lyn, first of all dont feel bad for trusting, feel good for not falling for the scam. The old saying that if it sounds too good to be true, it probably is too good to be true. Nope I dont know any general. Have no use for them and any heros I know, and I know some, would never claim to be a hero. No amount of medals can make someone a hero either. It is sad that people pray on other people , and worse they do it when they are in need of good people . All that being said , I just happen to have some magic beans. All you need to do is send me ............((((((((Lyn)))))))) the Hug is free, no 10 bucks required...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 4/30/2010 2:50 AM (GMT -7)   
nw ya know why i luvs ya so my friend ty for your comforting words
you truly are my lil hero my friend
give love to C for me too plz
huggles
lyn

btw 10 bucks in the mail lmbo
..Co Moderator for Crohns...Anxiety/Panic......Alzheimers

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf

I Refuse To Give Up....Others Are Worse Off Than I Am

Donate to WWW.HealingWell.com
MEDS..Lyrica..Dilatin...Pentasa...Folic acid....Ativan..,Diazapam prn..Trazadone at HS..T 4s PRN

NEVER GIVEN UP NOR IN


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 4/30/2010 6:00 AM (GMT -7)   
Lyn, hugs are always free to you. If you need em, they are there. You know my e mail adrs too. I'm just so not a facebook person...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 4/30/2010 10:13 AM (GMT -7)   
I just want to add a "hip-hip-hurray" for all our forum moderators for keeping this thing to a minimum, and to Mr. Waite, for setting it up this way...at least here on this site...Cuz, I too, feel like Matthew, my blood boils when someone tries to get on here to sell something...or worse...

I feel safe here...I am emotionally vulnerable here...I also have made good friends here...I have come to care (and yes love, I know it may sound trite, but it is how I feel) about many of you ...so Anyhoo...THANKS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
"The earth laughs in flowers"

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