Repeated tendonitis

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mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 4/30/2010 11:25 AM (GMT -7)   

I have joint involvement with my crohn's (and may also have psoriatic and/or rheumatoid arthritis...rheumy won't commit to type).  Over the last 2 years, I keep getting bouts of mostly spontaneous tendonitis (i.e., not precipitated by an injury).  A different tendon seems to be affected every 3 to 6 months -- it's to the point where I'm putting off seeing the orthopedist because I feel like they must think I'm a hypochondriac...those close to me have made comments to the effect that they think I'm overreacting and it's become a joke at work.  After a week of walking around in pain, I finally saw an orthopedist this morning who confirmed tendonitis and prescribed some physical therapy.  After the first few bouts, I mentioned it to my rheumatologist and she said that it could be related to my arthritis.  Just curious if anyone else has a similar experience.  If so, is there anything you do to help prevent it or is it just treating each new case as it comes?

 

Melissa
34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Plaquenil,  Xyzal, Zyrtec, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/30/2010 12:20 PM (GMT -7)   
Oh ya, only started a couple of years ago for me, first in my right hand, then my right shoulder, which I tore very easily.

I just started low dose naltrexone, specifically for my shoulder, the shots did nothing ( but then steriods don't work on me), but I was happy to find out that it's being studied for treating Crohn's.

I stated with the MS protocol, 1.5 mg /night, and within the first week the pain came down. I'm now, maybe up to my full dose, weight dependent but with flexibility, and I've regained about 20degrees of shoulder movement after it being frozen for 3 months.

It seems to be helping my first flare in 9 years, though it's not as fast there, my appetite is improving, but I also have a colocutaneous fistula that is abscessing, so that may be slowing things down.

At any rate, you are not alone in this symptom.

Best,
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 4/30/2010 1:02 PM (GMT -7)   
sry * 1 month and shoulder has improved...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 4/30/2010 1:36 PM (GMT -7)   
Well it could very well be the reactive type arthritis we Crohnies get. While flaring I may have pain in one joint, then the next week its somewhere else. Kinda the nature of the beast. And no you are not a hypocondriac. You just have Crohns Disease. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 4/30/2010 1:51 PM (GMT -7)   
Enthesitis is inflammation of the tendon where it inserts into the bone. This is a somewhat common problem in the family of spondylitis diseases [ankylosing spondylitis, reactive arthritis, undifferentiated spondylitis, psoriatic arthritis, and enteric arthritis]. I have had repeated bouts of enthesitis. During a flare of my AS I once had nine tendons inflamed. It was nearly impossible to move.

I have learned to be careful - I try not to make sudden stressing movements like jerking on a heavy package or over using a joint. I also make sure to stretch prior to physical activities like gardening or briskly walking.

My rheumatologist has been great in trying to combat these flare ups. I have had numerous steroid injections around tendons that did not respond to rest or that are nearly impossible to rest [like fingers]. I was actually started on Remicade because of the joint and tendon involvement. Being on an anti-TNF med has been the best method to keep my problem under control. NSAIDs work but as Crohn's people we are usually told not to take them.
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 4/30/2010 4:27 PM (GMT -7)   
And you might want to seriously consider avoiding all flouroquinolone antibiotics. this class of antibiotics has a reputation for causing muscle and tendon tears as a very unpleasant side effect. Cipro and Levaquin are two drugs in this class.
My computer says I need to upgrade my brain to be compatible with its new software.


mbw1103
Regular Member


Date Joined Apr 2009
Total Posts : 71
   Posted 4/30/2010 7:50 PM (GMT -7)   
Thanks for the replies -- it's nice to get a dose of reality from others going through the same things. 
 
MToronto -- do you know if LDN helps prevent injury or treat existing injury?  I'm not that familiar with LDN other than a few posts i've come across on this board.  It sounds like you're seeing good improvement with LDN....I'll keep my fingers crossed that you continue to improve.
 
Nanners -- It's hard for someone looking in from the outside to understand everything and then it makes you question your own sanity.  My mom recently read a self-help type book by someone with crohn's and after reading she called me up to apologize for not really taking what I told her seriously . . . i just wish there was a way for others to get it.  BTW, I think it was you who told me about SIBO a few weeks ago...my doctor was thinking along the same lines and has me on xifaxan now.
 
Ides -- thanks for putting a name to it.  I have an appointment with my rheumy for Monday morning and will ask her again, armed with more info this time :-).   My rheumy and GI tend to manage my case together and they're holding off on trying another anti-TNF on me (one might suggest it, but the other tries adjusting a medication which takes care of the immediate need).  I was on remicade for about 15 months ... at first it helped the crohn's, but then I appeared to be going into a flare and it looked like it wasn't helping.  While we were trying to figure out what was going on, my insurance denied a camera pill.  Once the joint pain started we decided to stop the remicade (too high a risk when all indications were that i developed an immunity to it).  A few months later the pill camera was approved, which showed no signs of crohn's, so in fact it probably had been helping but i had something else going on .  Long story short, because there's no clear answer as to whether I developed an immunity to it or not...as a result, the other anti-TNFs are being held back as a last resort in case either the crohn's or arthritis gets really bad.  NSAIDs don't agree with me so they're out and I had steroid-induced Cushing's from steroids a few years ago, so I try to avoid any form of steroids if at all possible.
 
ChronieToo - thanks for the reminder on flouroquinolone antibiotics.  I do use them occasionally since they tend to help my flares, but I haven't been using them lately (maybe one 10-day course in the last 12-18 months).  At one point I had been on them for close to a year, but that was before any joint involvement.

34 - Diagnosed with Crohn's in Nov. '05
Current Meds: Apriso, Canasa, Methotrexate, Pamine Forte, Aciphex, Domperidone, Folic Acid, Restasis, Plaquenil,  Xyzal, Zyrtec, Align, Calcium, Vitamin D, Centrum, Digestive Enzymes, Thera-tears Omega 3 Supplement, Co-Enzyme Q10
Gluten free since Aug. '03


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 8:58 AM (GMT -7)   
I find the LDN is treating the inflammation of the tendons. The injury was a result of the tendons being so inflexible.

I first thought it was the cipro, as I was taking it when my hands flared (I didn't tear them, but it's easier not to, they are not weight bearing). It wasn't until I was off the cipro for 2 years before it hit my shoulder... and that I messed up falling and grabbing on to something. fun fun.

The inflammation, thus pain is coming down and my range of motion is expanding enough for me to be happy about it after a month.

Now for this dang abscess... sigh...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

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