1st Remicade bill from hospital-- holy &^%$!!!

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mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 4/30/2010 7:43 PM (GMT -7)   
i received the bill for my 1st two infusions from the hospital today...$26,058.00!!!!  i'm going to be the $6,000,000 man!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/1/2010 12:27 AM (GMT -7)   
$26 grand? How dare they! I pay $ 5000.00 for 5 vials(one treatment). Actually the BC Provincial Government does. You or your Insurance company (boy do I hope it's your Insurance company) are getting ripped off large!
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


kmfdm
Regular Member


Date Joined Jun 2008
Total Posts : 78
   Posted 5/1/2010 1:02 AM (GMT -7)   
I can't believe the amount of money you haave to pay to get well.  I am in B.C. so I am covered but even then it only costs about $1500 for two weeks  worth of Humira.

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/1/2010 1:25 AM (GMT -7)   
What?!!! That's absurd. I agree with Grandpa: you're being ripped off BIG TIME.

I hope your insurance policy isn't one of those mean ones that can drop you as soon as you claim $250K or more?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


engineer555.9
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/1/2010 8:07 AM (GMT -7)   
Mine fluctuates and has increased over the years. I recall the first few infusions being around $6000 or so, however now they range from $10-13000. I suppose it's what was said in a previous post, that it's weight based. I weighed 135lbs when I received the first few infusions, and now I weigh about 194 so it makes sense I suppose. Glad I don't have to pay for any of it. I'm sure my insurance company wishes I would drop dead though.
Age: 23
Gender: Male
Diagnosed: March 2 2005
Weight before diagnosis: 174lbs
Weight at sickest: 135lbs
Current weight: 192lbs 10% body fat
Current medication: Remicade 5mg/kg e. 7wks; Veramyst 27.5 mcg, Singulair 10mg

I joined this forum in hopes that my success story will inspire others to be proactive about their condition and to never lose hope.


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/1/2010 9:17 AM (GMT -7)   
yeah that was the "bill" they sent to me, but of course i'm sure the ins co has a cheaper deal with them and then i think my out of pocket max for the year is $2500 so thank god for ins...I also weigh 195 lbs so i guess my dosage might be higher...i saw that # though and was stunned!  and that's at 5mg per kg...they can double it i guess if that doesn't work...
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 1:37 PM (GMT -7)   
Once again I'm glad to live in Canada. Even if I did have to pay for it, the bill is $20,000.00/ year.

I read on this thread that there are other med assisance programs besides the one listed above, perhaps they can help?

I love AZ, beautiful place, but man the US health care system freaks me out.

Hang in there, I hope the Rem works well for you!
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 5/1/2010 1:55 PM (GMT -7)   
What's the breakdown on the bill? What was the length of the hospital stay?
Cimzia, Asacol


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/3/2010 10:50 PM (GMT -7)   
no hospital stay- infusions are done at the cancer center at the hospital...
$1700 for infusion and $24,000 for med plus a few small charges.
i will check out the remistart program- thanks!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 5/4/2010 2:33 AM (GMT -7)   
mtgman, where abouts in AZ, sorry don't mean to break the thread.  But I was curious what hospital you are using.  And if I may, who is your insurance company?  I live in AZ also.  Southeast part of the valley.

Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Lialda 2X/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Change in meds is forthcoming............
 
 


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/4/2010 6:38 AM (GMT -7)   
It's been at least 3 years, but when I had to go to the hospital for a 12 hr long infusion (which turned out to be 19 hrs) after having reactions at home, I think the hospital tried to bill me close to $10,000.  Of course, insurance made them write off a bunch and I had a $2,000 out of pocket max, but still, $10k for an infusion is ridiculous.

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/4/2010 12:49 PM (GMT -7)   
Zena, you were giving yourself Remicade infusions AT HOME? I've never known anyone who's been allowed to do that.

*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/4/2010 3:44 PM (GMT -7)   
That's horrible!

Mine costs $33.30 a pop

thank god for the Australian health care system!!

isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 831
   Posted 5/4/2010 5:20 PM (GMT -7)   
WOW that is a lot of money ..

I get Humira and the pen costs 1000 USD but I get it for free.
Because I live in Iceland :)
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


GDen
Veteran Member


Date Joined May 2009
Total Posts : 703
   Posted 5/4/2010 8:50 PM (GMT -7)   
I get Cimzia for free -- thank God for the US health system!!

Hospitals in the US are by far the most expensive places to get treatment. My gastro clinic does Remicade infusions -- not sure what they bill but it's likely much less. I've priced several biologics several times and they're all roughly $20K/year.
Cimzia, Asacol


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/4/2010 10:04 PM (GMT -7)   
i live in Cave Creek and have the infusions done at Scottsdale Healthcare Shea at the Piper Cancer Center. The bill is huge but my total out of pocket is only $2,500 a year so it's not that bad.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 5/4/2010 10:33 PM (GMT -7)   
I live outside of Queen Creek, actually halfway between there and Florence.  I have to drive 30 miles each way just to see the GI or go to any appointments.
 
I take it that is a good hospital?  All I have anywhere close to me are Banner's.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Lialda 2X/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Change in meds is forthcoming............
 
 


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/5/2010 6:32 AM (GMT -7)   
My GI office used to do the infusions for me. At that time, I was working for the House of Representatives. Thus, working for the state, my insurance covered 100% of the $15,500 treatment with no copay.
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/5/2010 9:58 AM (GMT -7)   
cleo35, I wasn't giving them to myself, the in-home nurse came and gave them to me in my home.  That was much cheaper (and so much more convenient) than the infusions at the hospital outpatient infusion center and being admitted for longer infusions at the hospital, but they couldn't do at home anymore once I had the reactions.  But, it was half the cost to have the in-home nurse come do it.   

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8550
   Posted 5/5/2010 4:11 PM (GMT -7)   
Wow. Just wow.

The gastroenterology department at my hospital have to jump through hoops to get funding for Remicade, and even so only enough for 3 doses per patient approved for treatment. It's NHS, so that explains it although I swear I've seen UK folks on here on Remicade as a maintenance treatment. If so, oh well =/ But if the dosage is that heavily weight-dependent, surely - at 88lb the last time I weighed myself - I can be allowed 4 doses for the price of 3 <_<.

orngie
Regular Member


Date Joined Feb 2009
Total Posts : 161
   Posted 5/5/2010 7:15 PM (GMT -7)   
My infusions are billed out to the insurance company at just over $15,000 each. The insurance company pays around $11,000 and the rest is written off.

Tink42
Regular Member


Date Joined Apr 2010
Total Posts : 42
   Posted 5/5/2010 8:36 PM (GMT -7)   
I also live in Az in Apache Junction and deal with Banner as well..ugh
42 yr Female
Dx'd with Crohn's 03/31/10, Fibromyalgia 97, Allergies since birth, Anxiety 06, Depression 97, IBS 00,
Endometriosis 01,Anemia since teen years, Osteoarthritis 00, Diverticulosis 07.
Just started Prednisone 20mg, Imuran 50mg x2


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/5/2010 10:23 PM (GMT -7)   
yeah- Scottsdale Healthcare is a great hospital system and my doc just got voted by his peers as the best GI doc in the state- he's up in N. Scottsdale and he's awesome. Just wish this Remicade would kick in already!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.

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