Being set up for sugery

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a hurten unit
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/1/2010 8:34 AM (GMT -7)   
I am  being set up for surgery for my Crohns at the terminal Iliam .
I am 52 was diagnosed 10 months ago (I feel like a newbe ) I have been living on yogurt and boost as main stays.
My flares last usualy 2 day. I try something new on a Friday  so i will be ok on monday to go back to work. I have been on endocert ,cimzia . If i have a stressfull day at work the next day Iam down or in the ER .
My surgen said i will be helped by the surgery . I am happy and a little scared at the same time .He said he will try to do it all by
lap but if he finds strictures he will have to open me up. I don't know if Iam more scared of the surgery,being in on the cimzia for the rest of my life or the stress of eating something new and going down . Work is being affected (i deal with people  all day ).they have  been supportive but i get the look . confused

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/1/2010 8:39 AM (GMT -7)   
Well I for one have only benefited from having my resections (2 open resections). Hopefully this will get you back onto the road to wellness. Whatever you do after surgery, be sure you get back onto maintainence meds or you could end back up in the surgery room again. Thats what happened to me. Had the first resection and my GI at the time (now fired) said I no longer needed meds, didn't take them and had to have another surgery only 3 years later. I am successfully maintained on only Asacol now and have been in remission for the past 5 years. Good luck and here's to a long long remission for you. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 8:45 AM (GMT -7)   
Hey Newbie,
Well you moved to surgery pretty fast, and yes it has it's risks, but it can also put you into remission. Hold onto that thought. Visualize, if you can, that laproscopic goes beautifully and that your enjoying food this summer.

Make sure you do your prep well (oh and barrier cream, zinc or Penatin outside and up your anus, plastic wrap you finger, while you do that will make a huuuge! difference. No rocket fuel poop sensations. ) and keep good thoughts.

Might I also recommend the epidural, it really helps you through the first 24-48 hours.
no spamming
 
Will be keeping good thoughts for you, and post back to let us know how you are.

Best,

Post Edited By Moderator (MMMNAVY) : 5/1/2010 10:08:45 AM (GMT-6)


a hurten unit
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/1/2010 9:04 AM (GMT -7)   
Thanks for the quick replys
you guys are great

My GIi Doc said i have about 4 " of scar tissue at the TI and 4 to 5 " of inflamed Iliam. On the last colonospy the Illiam was closed he had to shoot a steriod in to open up the passage way . Sounds like a shot of draino lol. The Gi doc could not tell me why with all the drugs i was taking.
Not really understanding the prep that MToronto2
was talking about?

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/1/2010 9:14 AM (GMT -7)   
Hurten,
Mtoranto is speaking of a enema prep rather then an oral prep. Obviously if you can do an oral prep it is a bit easier, but I do agree with the numbing butt cream is helpful.
Steriods are quite common to use in crohns.
Since you are just lossing a few inches of bowel and laposcopy surgery is a really great option that will promote a faster healing time rather the open surgery.
TC,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


a hurten unit
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/1/2010 9:30 AM (GMT -7)   
thanks MMMNAVY

ok two of the MM must be for Machinist Mate thats what i was 75 to 78 mm3,would the other M be for Master Chief?
being a old mm iam thinking remove bad piece of pipe resecure to stop ant spreading of the bad .
I am i thinking to plainly?
oh was a tin can sailor

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/1/2010 9:39 AM (GMT -7)   
No, I was a SWO.
The MMM's are for another personal part of my life. :)


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Bammer
Regular Member


Date Joined Mar 2008
Total Posts : 381
   Posted 5/1/2010 9:39 AM (GMT -7)   

The thought of surgery or taking the medications is naturally very scary. Hopefully you are confident in your GI and surgeon. It sounds like they have a good idea of what they are dealing with if they know you have scar tissue and where. Of course they might find more but strictures are scar tissue and not a reason in itself to have to open you up. I had  laparoscopic surgery to remove a stricture in the colon and after short recovery am doing great.

And Cimzia might not be the drug of choice for maintenance for you once you have had surgery. Together you will decide what is best.

Good luck, keep us updated and if questions ask.


58 yr. old F dx. CD 07/07
Started weekly methotrexate injections 09/22/08.
Lap assisted sigmoidoscopy done May 11/2009


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 10:32 AM (GMT -7)   
MMNavy, ... lol

I was talking about the oral prep. Specifically I am talking about protecting your butt hole by using a diaper rash cream (must be this kind, a zinc cream like Penaten) By the time you've got rid of the solids, the next step is the burning poops, the barrier cream, applied with a finger wrapped in plastic wrap inside, as far as is comfy, and outside, before and during the purge takes away one very nasty effect of the clean out.

Maybe this doesn't happen to you, but you'd be the first I've heard of who doesn't feel the burn when doing oral prep.

If this is the case, you need to rename yourself, assofsteel :)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

Post Edited (MToronto2) : 5/1/2010 11:36:12 AM (GMT-6)


Joie1
Regular Member


Date Joined Oct 2008
Total Posts : 376
   Posted 5/1/2010 12:55 PM (GMT -7)   
I usually felt completely better when it concerns my intestines after a resection. It truly IS usually better for us. It usually creates a couple years or more remission. You should still stick with your maintenance meds (the cimzia). Good luck. Don't be too scared, it's not so bad. I will say MAKE SURE YOU HAVE A PATIENT PAIN BUTTON after surgery. It's can make your body work harder if you're recovering and you're in pain. Get the pain button and don't be shy about using it, especially if they end up having to cut your open instead of work laparoscopy.
27/f
Allergies and Asthma my whole life: OTC Wal-Zyr D 12-hour
Depression after surgeries and illness of 2003.
Crohns Dx'd: February 2008: Pentasa
Fibromyalgia Dx'd: July 21, 2009: Lyrica, Cymbalta, Hydrocodone, Prenatal Vitamin


Becky77
Veteran Member


Date Joined Dec 2005
Total Posts : 1768
   Posted 5/1/2010 2:07 PM (GMT -7)   
MT2-I never thought of that, but next time I have to do a prep I'll have to invest in some cream first! I hate the burning poops!
Becky

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 2:38 PM (GMT -7)   
lol, see? Thank me then :)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/1/2010 3:06 PM (GMT -7)   
No, I have medical gloves and a rx cream that my pharm mixes for me is both numbing and protective.
But neosporin with ladocaine, baby cremes, and plastic wrap  work well in a pinch for dumping syndrome if you are on the road.
I really do not think using kitchen plastic wrap is very safe when you are dealing with areas that might have some open wounds, chemical burns, and/or abrasions.
If you know you are going to be dealing with this please think about appropriate medical protocol.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/1/2010 4:18:02 PM (GMT-6)


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 3:25 PM (GMT -7)   
Fair enough, but for most of us Penaten and plastic wrap will do just fine. Keep in mind, that as long as there are no open wounds, which I would use crack open a vite E cap for, we are not dealing with a sterile area.

Even the intestines are considered outside the body.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


a hurten unit
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/3/2010 5:01 PM (GMT -7)   
do you think they will use CIMIZA as a maintenance med?
shutting down the immune system that much?
 

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2010 5:11 PM (GMT -7)   
It does not shut down the system like cancer chemo's do.
It just turns the volume of your down to an acceptable level.  If you will forgive the stereo metaphor.


Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


a hurten unit
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/4/2010 4:52 PM (GMT -7)   
thanks
 

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/5/2010 11:35 AM (GMT -7)   
MToronto: where was that piece of advice when I needed it!!! :)

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/5/2010 12:48 PM (GMT -7)   
Apparently not on the doctor's info sheet, where it SHOULD BE, and though I keep asking them to do this.. they don't. *&())*&^^**!
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.

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