Accutane Caused Crohn's and UC Commercial

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gypsyfp
Regular Member


Date Joined Jan 2010
Total Posts : 336
   Posted 5/1/2010 11:54 AM (GMT -7)   
So apparently some hot shot law company has a commercial that is asking people if they have ever taken Accutane and also have Crohns or UC.
Check out the website.
I took an acne drug that I put on my face called Retin A, but I don't know if that is accutane.
Anybody else buying this BS?
What next, people?
Diagnosed with typical Crohn's at 16.
Got lucky with Asacol for a year, then even luckier with ten years of relative remission.
Now abscesses and fistulas are having an "atypical" Crohn's party around my junk.
My HMO refused the Remicade and now I could be going on Lialda or sulfa? blah


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/1/2010 1:33 PM (GMT -7)   
I got a zit a month growing up, and have friends who used accutane -- I got the Crohn's... sigh.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 5/1/2010 2:43 PM (GMT -7)   
There was a thread about this same topic at the beginning of the week.

I did use acutane and I did get Crohn's. Acutane has been said to cause a lot of problems after use. Retin-A is different, but I'm sure they've tried to connect things to this drug too!
I've met with many specialists who say that there is no concrete proof of this. The lawsuits will take years if they even go to court and the settlements will most likely be very small. You also have to surrender all of your medical records to the attorneys, which I would not feel comfortable with at all.

~Kelly
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/1/2010 3:16 PM (GMT -7)   
...and a few months ago, and maybe a year ago too...memory fails...however, just to note, I was one of the lucky to never really ever have acne, nary a zit beyond 13 years old...but not only do I have Crohn's but I have PSC (Primary Sclerosing Colangitis) to boot...yeah, gypsy, I think its a load of bunk...JMHO...
"The earth laughs in flowers"


aoccc
Regular Member


Date Joined Feb 2005
Total Posts : 455
   Posted 5/1/2010 3:29 PM (GMT -7)   
Over the years I have read this forum, I have just about seen everything linked to it. From farm chemicals to microwaves to Pepsi clear (you remember Pepsi clear right lol?) Maybe someday one of them will be able to dig up their thread and say I TOLD YOU SO. lol. Maybe we should start a pool and take bets...
SCD since 01, remission since 01, occasional random junk food breaks :)
No meds ever.


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 5/1/2010 7:20 PM (GMT -7)   
i used acutane and very shortly was diagnosed with crohn's. coincidence....
Crazy Harry

---------------------------------------------
Crohn's since 1993 (17 yrs old then)
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; July '06 told i needed ostomy surgery
began maker's diet in August '06 - now feeling the best ever with no symptoms of colonic inertia and i kept my colon
med free as of 10/31/07


sjt79
New Member


Date Joined Jan 2007
Total Posts : 10
   Posted 7/7/2010 9:07 AM (GMT -7)   
I took Accutane for about 5 months when I was 19 and was diagnosed with UC when I was 20 or 21....not joining the lawsuit though because I feel like I would've taken it knowing the risk.

UC, diagnosed 2000 or 2001 moderate to severe
Colazal-3 pills, 3x/day
Azathioprine-150mg/day
Multivitamin
Vitamin B Complex
Female, 28 yrs old
In remission 4 years, slight flares when I'm not consistent with meds


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 7/7/2010 10:51 AM (GMT -7)   
A week or two ago I posted a link to a recent study that found those that took accutane had a higher risk of developing ulcerative colitis. There was no significant increase in developing Crohn's disease in this study.
Moderator Crohn's Disease, IBS, and Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 7/7/2010 7:57 PM (GMT -7)   
Accutane is a wicked serious drug to be on, so it wouldn't surprise me for it to be implicated in other ailments.  My friend's brother was on it for awhile as a teenager, and we were reading the warning labels and it was really scary.  I know all drugs can be scary if you take the time to read the info, but this was far above and beyond the normal side-effect type stuff.  I know he had to get his liver tested every so often, and women who take it have to be on hormonal birth control b/c of the risk of severe birth defects.  Much different than Retin-A.   

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 7/8/2010 5:18 AM (GMT -7)   
Never took it, had first Crohns symptoms at age 19, probably before this drug was even developed. Lawyers would sue the sun for skin cancer if they could figure a way to get a process server up there . . .

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20576
   Posted 7/8/2010 11:00 AM (GMT -7)   
It's actually not BS...quite a few yrs ago already, it was noted that taking Accutane could cause UC-like symptoms (bring UC on as in a trigger for UC)...haven't heard of it being related to Crohn's though....in the pamplet that Accutane comes with, it's listed right in it that it may cause UC-like symptoms.


bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 7/8/2010 11:06 AM (GMT -7)   
How come when I asked this, almost everyone ignored the post?
Oh well, my IBD started before this drug was in wide usage. No settlement for me, alas.

Matthew

cindywchrones
Veteran Member


Date Joined Mar 2005
Total Posts : 1115
   Posted 7/9/2010 1:31 PM (GMT -7)   
My son was diagnosed with CD at 18..He took Acutane at 16.  We have a family history of IBD"S..His colon is also backward in his body along with CD. The acutane did get rid of a very bad case of nodular acne which with his red hair would have caused severe permanent scaring if left untreated.  The acne affected his self-esteem as well. Maybe it just screws with your immune system if already prone to it?

Ms Artichoke
New Member


Date Joined Feb 2010
Total Posts : 9
   Posted 7/9/2010 6:34 PM (GMT -7)   
Hello All,
 
I don't normally post on here. But I was on acctane when I was 16 years old for maybe six months. When I was about 17 I started taking notice of symptoms, and in March 2010 (19 years old) I was diagnosed with IBD. My gastro can not distinguise if I have Crohns Colitis or UC. My mom has Crohns as well, and I definatly would have suffered through the acne if I knew it might have triggered IBD. So maybe it could have triggered it, but nobody will ever know right!

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 8/12/2010 9:35 AM (GMT -7)   
Aww never mind Matthew! I know they missed your post, but I think the sudden upsurge of interest is due to the
high amount of commercials on this product right now....
Pssh, I wish someone would have a go at 6mp, remicade and humira, ah but, I guess I knew the risks....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 8/12/2010 3:06 PM (GMT -7)   
Unless a researcher comes up with irrifutable proof that there was cause and affect I don't see how anyone proves a link. The lawyers who put this commercials out there are the equivalent of ambulance chasers in my opinion. There's a class-action lawsuit in the works for almost every drug - have you noticed that? I say forget it - we have enough stress in our lives - can imagine how much more we'd have if we got involved in one of these lawsuits?

artist guy
Veteran Member


Date Joined Jan 2010
Total Posts : 1373
   Posted 8/12/2010 3:33 PM (GMT -7)   
they're also saying can cause aspergerhers, we have afriend who son took accutane and then developed aspergerhers.

artist guy

mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 8/13/2010 1:19 PM (GMT -7)   
My thought about those commercials is this...........it's probably true.  The more people those firms get in the lawsuit the bigger THEIR payout.  I would talk to my own lawyer first before getting on board with these guys because it could have such a limiting factor on the payout.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Flonase
 
 

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 8/13/2010 4:24 PM (GMT -7)   
While I firmly agree that people with IBD need to be on meds for the disease, I do think we throw systemic drugs at people too quickly in this society. Accutane does not have a good safety profile. If I were a dermatologist, I'd try everything in the book besides that drug to get people well. It is known to cause horrible birth defects, even after you are off the drug for a while. I think they recommend to be off it for over a year before you try to get pregnant, so it is a tough drug.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA.
Currently on flagyl and it is helping. Have apt with surgeon soon

Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 8/15/2010 3:08 AM (GMT -7)   
My money is on genetic predisposition triggered by exposure to some normally benign chemical found in deodorant.
Diagnosed with Crohn's late December 2004. Narrowly avoiding a full-blown flare using nothing but sheer awesomeness.

crohnniegurl97
Regular Member


Date Joined Jul 2004
Total Posts : 57
   Posted 8/15/2010 7:16 AM (GMT -7)   
I have never taken accutane so I have no idea what the effects of it may be. The thing that bothers me about this commercial is that when they list the diseases its listed like: crohn's disease, ulcerative colitis, inflammatory bowel disease. Ok unless I'm somewhere really out of the loop I thought inflammatory bowel disease was what crohn's disease and ulcerative colitis were when they are combined together. Am I wrong? It's like they're listing 3 different diseases on the commercial when both of the diseases combine to make the inflammatory bowel disease.

I apologize if I'm wrong in thinking this, but that commercial drives me nuts!

:)Sharon

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 8/15/2010 9:29 AM (GMT -7)   
Well it is interesting to read some of your feedback. My parents are wanting me to look into this as well. I was also on Acutane in my teen years and there is NO history of Colitis or Crohn's disease in our family.

I think, from what I am hearing and reading from in the States based in Canada that this IS in fact worth looking into BUT only if you can PROVE that you were on the drug. So medical records are a must of course. And yes, I agree - pursuing this would cause unnecessary stress in my life at which point I have enough of (divorce). So I am on the fence with it too. And as we recall - my family - we were not told or nor did we sign any agreement based on the risks and side effects pertaining to the drug.

I am also not sure if my family doctor will be able to prove that I was on the med as that was more than 10 years ago.

I agree that many doctors just throw out meds like base balls and its crazy and scary!!!
I fear the worst with being on Remicade - as this "SUPER" drug also doesn't have a very "nice" looking side effects history either.
I am VERY scared as to how it will determine the health of my future - and sure I might be a bit better now, but what about 10 years from now? Am I going to have or get Lupus or some other kind of serious ailment because of being on Remicade? I guess that's the risk you take. :o/
?
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 8/17/2010 9:19 AM (GMT -7)   
Sharon, inflammatory bowel disease is the "umbrella" term for for a group of conditions: uc and crohn's. In other words, if you have Crohn's, then that is a form of IBD. So you can say you have Crohn's, the manifestation of IBD, or you can say you have IBD. Both are correct.
 
The only difference is that saying you have Crohn's is more precise than saying you have IBD. 
 

Matthew
Veteran Member


Date Joined Oct 2004
Total Posts : 3932
   Posted 8/17/2010 4:45 PM (GMT -7)   
 
 
      Well, I have read some recent books suggesting chemicals in the enviroment are the causes of all kinds of auto-immune mischief & disasters.
     So maybe it does make sense that it could trigger a Flare in someone.
  Like the one reply said though, even if the attorney's win the Class Action Lawsuit, the claimants aren't liable to get much in monetary rewards. The Lawyers however will be raking in the cash. Situation Normal...
   Dunny: I guess i was just ahead of the Curve here! LOL turn
 
 
     Matthew
 
 

HBSSLAW
New Member


Date Joined Dec 2010
Total Posts : 5
   Posted 12/16/2010 3:27 PM (GMT -7)   
I recognize the benefits of Accutane, but shouldn’t the drug company disclose ALL the risks to doctors and acne patients before use. I believe Roche didn’t want people to know that Accutane could lead to IBD or Crohn’s Disease because they wouldn’t make as much money. That’s not right or legal.

An attorney I work with pointed me to this website for more information: www.hbsslaw.com/accutane <http://www.hbsslaw.com/accutane> . I hope it helps others who may have experiences serious complications after taking Accutane.
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