Pain & Pain Medication

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davidblink
Regular Member


Date Joined Apr 2010
Total Posts : 20
   Posted 5/1/2010 2:57 PM (GMT -7)   
I have my second Remicade treatment on Monday and am going to ask my Doctor if the pain I have is going to go away. I'm having trouble concentrating due to the pain I'm having an Ibuprofen doesn't seem to help. I did use some Percocet right after I got out of the hospital and then since I had to drive to the Doctors office and was in to much pain they called in a couple of prescriptions of hydrocondone that I used for a while. What pain medications seem to work best for any of you? I really can't function very much longer trying to ignore the pain, and it seems to be wearing me down more each day; having to wake up so many times at night.
Dx with Crohn's Feb 2009. But was told that I had probably had it a long time.
Flare-up Mar 20, 2009 sent me to hospital where I perforated and got emergency ileostomy. Took down ileostomy on Jan 5, 2010. First Remicade treatment on 19 April 2010. B12 once a month, OTC Multi, D, C, Fish Oil daily.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/1/2010 3:09 PM (GMT -7)   
Just a note...cuz not all docs know...even GI's...NSAIDs, such as Ibuprofen, aspirin, Aleve, etc...should not be given...they can cause more bleeding, and can exacerbate the inflammation that is already there (I included a site that discusses this...as do other threads on this site too... ibdcrohns.about.com/od/prescriptiondrugs/i/nsaid.htm)

As to the pain you feel...I can only hope, and say, that for many it does eventually go away. For those with persistent pain, many, like myself, find that going to a Pain Specialist Doc is the best choice as many Primary Care and GI docs tend to be leary about rx'ing pain meds (usually cuz of DEA laws, etc and this is also not their primary specialty)...pain docs, good ones, will document correctly, know the best type of med for a given condition...

Not sure if I answered your question...but I hope this helps...
"The earth laughs in flowers"


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/2/2010 9:16 AM (GMT -7)   
I have never gotten pain meds from my GI, I always have gotten them from my family doc. As they said above, if your family doc will not help then demand a referral to a pain mgmt doc. By the way as Becoming Undone said DO NOT take ANY Nsaids as they will cause you to flare and bleed. I learnt that one the hard way:( I take 1/2 tab of Percoset 3 x's a day for my pain, and its enough not to make me too loopy. Hope that helps.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

lilcrohnieUK
Regular Member


Date Joined Dec 2007
Total Posts : 414
   Posted 5/2/2010 1:49 PM (GMT -7)   
I've got pain meds from both my GI and family doc, all seemed to understand how painful this disease can be! Get on to them and get some different pain meds, ibuprofen/NSAID's can kill - I've had two deaths in my family due to perforation caused by them, like Nanners said you don't want to be learning the hard way about NSAIDs. Hope you find something that gives you some relief.
 
 


ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 5/2/2010 4:37 PM (GMT -7)   
I have found with my body that it is best to try to use as little pain med as possible, find a dose that works and stick to it. I usually take 1 Darvocet N-100 (each pill also has 625mg of Tylenol) in the morning and one before bed.

Also, some narcotics like Darvocet, even Percs, or Hydos can constipate you, so be cautious.
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in .
Nov. 09- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/3/2010 12:33 AM (GMT -7)   
Ziggy even with narcotics I still have 3-7 bm's a day! Guess how many without narcotics? Everyones different.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/3/2010 3:22 AM (GMT -7)   
the constipating effect is a huge blessing to me. Get 2 birds with one stone

Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/3/2010 8:53 AM (GMT -7)   
t-dwag...yup...that's another reason why I am on them too. As to some previous posts, my tract time (the amount of time from mouth to pooo) is super fast, normally at less than 4 hours..the meds help slow it down a bit...My GI says that, when dealing with the big D that seems unresponsive to many meds, He and others in his practice, will still use tincture of opium for crohn's patients...it's an old remedy, but it still really works...
"The earth laughs in flowers"


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 5/3/2010 10:28 AM (GMT -7)   
I went to a pain specialist and they gave me a drug called Nucynta. It is new just passed by the FDA last year. It has worked great for me as codeine and drugs of that sort are too hard on my stomach. May be worth a try.
JAS
 
Currently taking: Remicade


davidblink
Regular Member


Date Joined Apr 2010
Total Posts : 20
   Posted 5/3/2010 5:41 PM (GMT -7)   
Thanks to you all. I called my Primary when I was getting my second Remicade treatment and had to leave a message that he had not returned by close of business. I think I hear that I should try to refrain from taking NSAIDS altogether. OK.
Dx with Crohn's Feb 2009. But was told that I had probably had it a long time.
Flare-up Mar 20, 2009 sent me to hospital where I perforated and got emergency ileostomy. Took down ileostomy on Jan 5, 2010. First Remicade treatment on 19 April 2010. B12 once a month, OTC Multi, D, C, Fish Oil daily. A pathetic 130 lbs.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/3/2010 5:52 PM (GMT -7)   
David,
You also might want to think about getting your ANA tested, because I am wondering if your pain is not being triggered by the lupus like syndrome that can happen with A-TNF meds. Please do not take NSAIDS. Make sure when you talk to your doc that you mention your trouble sleeping. Since that can make pain and illness work.
Take care,
Navy
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

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