What do you do on the day of your infusion?

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*Phoebe*
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Date Joined Sep 2005
Total Posts : 769
   Posted 5/3/2010 9:09 PM (GMT -7)   
Other people take sick days for a cold, but me – I came to work this afternoon after my remicade infusion at 7:30am this morning!

I am quite proud :-)

The infusion runs from 7:30 to around 11:30 but I figured if I could, I would like to go to work afterwards, and use my sick days for other occasions!

Does anyone else go to work on the same day as their infusions? I am pretty sleepy and I have a headache but I am pushing through!

pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 5/3/2010 9:16 PM (GMT -7)   
When I was working, got the first appointment and went in late to work. Now that I'm unemployed, I get it at 9am, it finishes around 11am, and I go home and lay around; it doesn't really change my schedule.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/3/2010 10:48 PM (GMT -7)   
i go to work and leave at 1ish and then get the infusion.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/4/2010 12:12 AM (GMT -7)   
Every infusion is a little different for me but I generally feel fine except for being a little drowsy from the benedryl premeds. about a hour after the infusion though I start to get flu like symptoms for a while and ache for a day or 2 before getting back to feeling normal. I know do my infusions around 1 pm and get home around 5 pm which gives me the rest of the evening to just relax.

almost30inMI
Regular Member


Date Joined Jul 2009
Total Posts : 61
   Posted 5/4/2010 5:00 AM (GMT -7)   
I usually work the mornings and leave after lunch. I get done around 4:30 and then head home to relax.
Diagnosed with Crohns in 1998. Been on and off pred, entocort, immuran, asacol. Currently on Remicade every 6 weeks along with Asacol. Began having joint pain 01/2010.


JavaJay
Regular Member


Date Joined Mar 2009
Total Posts : 452
   Posted 5/4/2010 5:01 AM (GMT -7)   
I wouldn't mind working after my infusion buy by the time I would get to work, it would be time to go home.  That said, I take a sick or personal day.  I hate doing this but at least I have some "me time".  I can relax afterwords and get any errands I need to do done.

mv4au
Regular Member


Date Joined Jan 2010
Total Posts : 37
   Posted 5/4/2010 6:16 AM (GMT -7)   
I go to work right after my infusion.  The first few times were hard just simply due to complete exhaustion!  The one I had last week was the first time I wasn't tired, but I did take a 2 hour nap :)
31 year old female
diagnosed with Crohn's disease July 2006
12/09 discovered I had 2 fistulas and an abscess

Recently started Remicade 12/09 in hopes to avoid surgery


onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 5/4/2010 6:36 AM (GMT -7)   
I made the mistake of doing my first infusion in the morning, timed perfectly so I could go to an afternoon meeting with a client. I was so groggy and miserable the rest of the day, I decided to swap times.

I now do my infusions at 1:30 (the latest the infusion center will let me) after having gone to work, then go home and take a nap. Works out much better that way.
Diagnosed with Crohn's in 2008 at the age of 22. Also dealing with gastroparesis & GERD.
Currently on: Remicade, Imuran, Pentasa, Tramadol, Welchol, Phenergan, Ambien, Reglan, Prilosec, Hyoscyamine


*Phoebe*
Veteran Member


Date Joined Sep 2005
Total Posts : 769
   Posted 5/4/2010 3:47 PM (GMT -7)   
That’s actually a really good idea, I hadn’t thought of asking for an afternoon infusion! I might ask if that’s possible next time I get booked in – though yesterday worked well and I didn’t feel bad at work; I don’t take pre-meds so I don’t get overly sleepy, though usually about an hour in I get tired and have a nap.
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