What do you use for "rawness"?

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krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/4/2010 11:43 AM (GMT -7)   
I have diarrhea all the time- everyday- multiple times.  It can get pretty raw down there and so painful!  Does anyone use diaper rash cream?
 
Thanks!
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/4/2010 11:49 AM (GMT -7)   
yes, but I find what helps me is using something with ladocaine too.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Stef17
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Date Joined Feb 2003
Total Posts : 1811
   Posted 5/4/2010 12:18 PM (GMT -7)   
Yes, Desitin Original (40% zinc oxide) - it's the kind that smells really strong, but the high %-age of zinc oxide really heals fast.

UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 5/4/2010 2:05 PM (GMT -7)   
Another thing I've found that helps too (along with Desitin) is Aquaphor. Eucerin makes it, and you can find it in the baby aisle as well. Very healing.
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
Currently taking ONLY 4!!! Asacol HD per day, Align probiotic, prenatal vitamin
Dare I say it...in REMISSION after starting Asacol HD in April 2010!!!!


KEL1318
Regular Member


Date Joined Mar 2010
Total Posts : 23
   Posted 5/4/2010 2:05 PM (GMT -7)   
Also, try using contonelle wipes instead of just toilet paper. I've found this to make a huge difference! :-)
Dx: Crohn's in 2007 (after 10 yrs of symptoms)
Laporoscopy 10/07, Pentasa, Entocort, Prednisone (not working)
6mp - Nov/07-Nov/08 (worked great, but went off the meds in hopes of conceiving-no luck)
Remission until 2/10...Major Flare 3/10
Meds:Prednisone taper and back on the 6mp, Vit.D, Culturelle, Folic Acid, Pre-Natal Vitamin


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/4/2010 2:14 PM (GMT -7)   
Thank you- I am so miserable after about the 20th time in the bathroom I am going to try all these.  I think my boyfriend thinks I am crazy because it pretty much paralizes me with pain for about 45 seconds... does this happen to anyone else?  I am pretty sure I have a fissure too which doesn't help matters!
Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


Jonny Five
Regular Member


Date Joined Sep 2009
Total Posts : 107
   Posted 5/4/2010 2:33 PM (GMT -7)   
I haven't tried it yet, but this is what my doctor gave me last time I saw him:
http://www.buttpaste.com/BLButtPaste.php
 
*activated your link*

Post Edited By Moderator (Nanners) : 5/5/2010 7:20:19 AM (GMT-6)


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 5/4/2010 2:41 PM (GMT -7)   
Calmoseptine. Best stuff ever.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


Celey
Veteran Member


Date Joined May 2007
Total Posts : 1284
   Posted 5/4/2010 2:59 PM (GMT -7)   
Unusually for me (I usually have constipation issues with my Crohn's), I have been having the same difficulty (it's entirely my fault, I think... I overdid it on the junk food... I'm sure I will be fine tomorrow...)... I did have some kind of cream for that sort of thing, but I couldn't find it.... I did manage to find some baby lotion I got at the hospital a long time ago, though... I was pretty desperate so I used it... It seemed to help...

Still, the other suggestions are probably the best... //^_^\\'
I think I am being picked on by life, sometimes. But's that okay. Life and I are good buddies... I know life doesn't mean no harm. It just is the way it is. I can accept that.


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 5/4/2010 3:51 PM (GMT -7)   

I have the same issues. I have a fistula right next to my anus, so wiping, even with baby wipes, makes it extremely raw and irritated. So painful I can barely walk, and even had to miss a couple of days of work from it.

I took people's advice on here and ordered the Calmoseptine. It is the BEST STUFF!!! I just called the pharmacy, asked if they had it in stock. They didn't but could order it and I would have it the next day.

Where some of the other things I tried (and I tried many, believe me!) would burn when you applied it, Calmoseptine doesn't burn at all. It instantly cooled the area (has menthol) and I would reapply it after every BM.

Another thing that helps if you have one is instead of wiping, use a hand held shower attachment. (K, this is just gross, but) I have found that I will wash stuff out even after I thought I had wiped clean.

I know how painful this is, hope you find something that helps!


Dx'd w/ Crohn's in 1979 at age 14. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal. 
Dr. wants to try Humira...STILL waiting on that! Not sure what is taking so long...
Currently just take a probiotic, a multivitamin, calcium, magnesium, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.
 
Life may not be the party we hoped for, but while we are here we might as well dance!


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/4/2010 5:03 PM (GMT -7)   
Anyone thought of getting a bidet?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Tried SCD, didn't work, now avoiding gluten and dairy.


Go Saskatchewan Roughriders!


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/4/2010 5:51 PM (GMT -7)   
Bidet, oh ya lol.

I use Webber's Vite E OINTMENT (not cream), available in Canadian pharm's in the first aid section.

As long as you don't react to it, it's the BEST for rash (it heals them)

AND, get this

Hemorrhoids. Even the Rx roid stuff doesn't compare to the healing power of Vite E, in fact I stopped getting roids the minute I switched -- of course, the moment I fell an itch...

Also, I react baaadly to those whipes, and they're hard on your toilet/enviroment... just saying.

(Barring the ointment, you can make your own with multi-spectrum Vite E (15.00/bottle range) caps and some health food store neutral ointment-- no scent, no ingredients other than olive oil or the like, or pertolium jelly if can't source that 1 cap per tbsp).
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


ZiggyZagnut
Regular Member


Date Joined Apr 2010
Total Posts : 68
   Posted 5/4/2010 7:18 PM (GMT -7)   
Tucks wipes with witch hazel work for me.
30yo/male/western NY
Dx with Crohns in 2001- Asacol and diet beat it into remission in .
Nov. 09- Crohns is back!
Medical Issues- ADHD, anxiety, depression, kidney stones
Meds- Vyvanse, Lexapro, Xanax, Darvocet


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/4/2010 7:40 PM (GMT -7)   
Prep H wipes with witch hazel and aloe vera!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14149
   Posted 5/4/2010 7:57 PM (GMT -7)   
I am another Calmoseptie fan. When my butt was sore, it was the only thing that helped. I tried PrepH, A&D, Tucks...
March 2007: Diagnosed with mild proctitis - Treated with Canasa (as needed)
August 08 - December 08: Relapse & Anemic - Treated with Asacol (9/day) + Canasa 2x/day
January 09 - December 09: Remission!! Canasa nightly + Asacol (9/day) + Probiotics + Iron
December 09 - January 10: Flare :( - 40mg prednisone + Canasa - Relapse @ 2.5mg - Began Slower Taper
Current: prednisone, Colazal, Canasa


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 5/4/2010 10:24 PM (GMT -7)   
pimfram said...
Calmoseptine. Best stuff ever.


I also use this. It's awesome.
Diagnosed with Crohn's late December 2004. Controlled but not in remission via ABT-874 (700mg infusion every 4 weeks) and Azathioprine (50mg daily).


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/5/2010 6:14 AM (GMT -7)   
Thank guys- my sister brought over some of my nephews Boudreaux Butt Paste last night bc it was so painful all I could do was cry and lay on the bathroom floor- sounds pathetic I know- but it hurt something AWFUL! That stuff was magic! It was so soothing! I am never going anywhere with Boudreaux EVER! Thanks for all the advice... this forum rocks!
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/5/2010 6:16 AM (GMT -7)   
I meant WITHOUT Boudreaux- It will always be in my purse!

Thanks again!
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

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