No IV access...

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dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/4/2010 2:59 PM (GMT -7)   
I was sent home today from the hospital where I was supposed to have a MRCP. They couldn't get a vein up any
where. So they gave up and told me to contact my gastro and tell him to work something else out. Three plus hours
wasted, plus I had starved from midnight. I'm not a happy camper!!! Short of putting a port in, I really don't know
what they're gonna do....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 5/4/2010 4:40 PM (GMT -7)   
Hydration should help with the veins.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/4/2010 5:40 PM (GMT -7)   
Yeah it would, but I was NPO for nearly 12 hours, plus diarrhea is pretty non stop at the moment. I'm always
a hard stick, and have central lines because of it, but that's not available in the MRI dept....
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Brad P
Regular Member


Date Joined Feb 2010
Total Posts : 51
   Posted 5/4/2010 6:40 PM (GMT -7)   
If you are going to need regular IV access, I recommend a port-a-cath. I have a Power Port (needed for chemo last year but not yet removed) and its really coming in handy for a bad flare I;m having. I've had ferritin infusions recently through it and now TPN and lipids. It just needs monthly flushing when not in use.
Regular Member...Veteran Sufferer.

CD since Fall 1987
Small Bowel Cancer - Sept 2008
Surgery to remove tumor - Oct 1st, 2008
Chemo - Dec 2008 to May 2009
Apri 2010 - NED (Cancer-free!)
March 2010 - Active CD and Fistula in Duodenum


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/4/2010 7:15 PM (GMT -7)   
Brad, do yo ever get infections at the site?
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/4/2010 11:23 PM (GMT -7)   
Did they use the machine when looking for a vein? I always have problems with lines blowing and getting one started due to the Remicade so last week the used a huge machine to find one. I have seen when they use the small machine that looks like a pen with a light but this one looked like a floodlight and x ray machine had a child. It was like something out of a science fiction movie to see all the veins in my arm simply by putting the ultraviolet light on it and even cooler when one actually blew.(Although the bruise isn't so cool now)
Whenever I stay in the hospital they now put in a pic line and it is a lifesaver. All draws can be done through it and my meds put in. Unless you are going to be getting weekly I.V.s I would really question the need for a port. The infusion center tried to talk me but I just don't see the need if I am going to only have 1 remicade I.V. every month. How many times did they stick you? My record is 13 times and ironically when I was getting a MRCP done. It was painful but a little funny when the cocky anesthesiologist was mad that they made him come in to try and he could not get it after 2 attempts and he dropped the F bomb.

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 5:45 AM (GMT -7)   
Your story sounds very similar to mine. I was stuck, this time, about 10 times, but on other occasions ie;
ER's or hospitalization they're have dug away for a couple of hours, then they give in and call a surgeon to
place a central line. What amazes me, one nurse always knows another nurse who is so good at placing
IV's, I have to sit & smile that knowing smile.
My veins have been called small, tough, they hide, they blow & they are not where they should be. In other
other words a hard stick!!
I'm just concerned at the moment about getting this MRCP done, it's really needed!!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/5/2010 6:35 AM (GMT -7)   
Vicky I am in the same boat as you. Actually have a total knee replacement coming up in the next month or two, and your post has reminded me that I need to talk to the surgeon about a picc or midline for me. I have small, crooked and deep viens. I usually end up getting stuck multiple times.

I am part of an HMO and at the hospital I go to they have 2 special RN's who go around with a ultrasound machine that looks for the viens before they insert the picc or midline. Sometimes thats the only way they have been able to get an IV in me.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 6:44 AM (GMT -7)   
Gail I hope things go well for you. They did mention an ultra sound machine yesterday, but
it never appeared. (((Hugs)))
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/5/2010 7:07 AM (GMT -7)   
Hey Vicky,

Just thought I'd add a bit to the port thing. I've had a port-a-cath for 4-5 years (I've lost count:P). I had it fitted after cannulas and long lines were only lasting one dose of antibiotics, then failing. I could never even manage 1 week of IV's let alone 2!! I have Cystic Fibrosis and have IV antibiotics every 3 months, so I really needed better vein access.
My port is situated on my chest wall on the left. The only complaint I have about it is that I can't go on the roller coasters with straps over the chest. I've never had an infection in it, and it very happily gives blood and receives meds. Noone has missed yet, though I've been told that is a bit sore when they do, it can be a bit sore first few days of being accessed too, but after that I hardley notice it's there.
Access is done aseptically, but changing dressings and things I'm a bit less particular about that-just clean my hands and alcorub them, as long as its me changing the dressings and noone else. I use Mepilex dressings as they are almost waterproof, if it does look like water has leaked underneath the dressing when I have a shower, I just change the dressing stright away.

Even after all these years I don't have many accesible veins. But, they have told me I can't donate blood because they take so much for blood tests-so no wonder really. :P

There are also passports (I believe they are called) basically smaller ports in the crook of your elbow. I have a friend who says they're great and only get in the way as often as a normal port does.

I like my port, it makes life a LOT simpler. :)

Gail - the ultrasound thing sounds cool. Wish they had one at our hospital. They've even resorted to paediatric needles, and still sometimes have to just give up trying to get blood. I arrange blood tests for port flushes now. :P
Moderator of the Cystic Fibrosis Forums
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 10:04 AM (GMT -7)   
Darkies Gem, thankyou so much for your post. Everything you said was clear, and if I come faced with the option to
have a port fitted, then you've made my decision easier.
BTW I'm from the UK also, so I understood everything, I originally lived in Norfolk, but I've been in the States for 15
years:)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/5/2010 10:27 AM (GMT -7)   
Haha, glad you understood it!! :) Got a few American friends on here, and I started making an English-American dictionary for them. :P
My brothers live in Norfolk! I live in Yorkshire. :)

Glad it helped you, if you need any more information about ports, feel free to ask I'll answer where I can.
Gem
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.


krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/5/2010 10:44 AM (GMT -7)   

I am so glad I am not alone with this...Be it a ER RN or lab they can NEVER find a vein for blood work or an IV.  I have one tiny little bity vein my my finger that I tell them to use and they basicly laugh at me and say, haha I have been doing this for years- I can find a better vein then that.  Well then it never fails- 12 sticks later they finally ask, which little vein were you talking about?!  GRRR... makes me so mad!  Now whenever I have to go the ER, I ask for a specific nurse who knows how hard of a stick I am.  If she isn't there then the usually just put in a midline or central line ( bc 9 times out of 10 I get admitted).  So Vicky, I feel your pain- do you ever feel like you would be able to start your own iv, bc you know your veins best!  I have been told all the vein damage is from all the TPN, iv steroid, iv phenegran, blood tranfusions and all the other crap they push in you!

 

I just think this site is awesome... it sure does help with my frustration knowing that I am not alone and there are many other people out there who can relate to me!  Thanks everyone:)

 

 


I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/5/2010 11:04 AM (GMT -7)   
Thanks for the info...I've been stuck so many times...yeah, I have to tell them where in my hand and arm, and don't even let them go near the antecubital fossa (the crook in your arm)...haven't been able to get it out of there since my dx...yet some still want to try, I sigh, and yes, then point them to the correct veins...

I was stuck by 4 different nurses each doing about 4x each before finally getting it in when I had my liver stuff done in October...and then when they dig...I try and smile...but DANG it HURTS! And then some have the nerve to get cantankerous when I wince or cry out...shakehead

I actually smile for joy and give great thanks to anyone who gets it on the first try...which the nurse at the GI clinic for my c-scope did this last March...she didn't seem to think it was a big deal...if only she knew smilewinkgrin
"The earth laughs in flowers"

Post Edited (Becoming undone) : 5/5/2010 9:20:45 PM (GMT-6)


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/5/2010 12:11 PM (GMT -7)   
Hi Dunny. I have a port for that reason and its worked out real well for me. No trbl with it and I dont even notice its there anymore. No more stabs and blowouts.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 6:39 PM (GMT -7)   
I'm so glad I'm not alone with this problem, but sorry that so many have to go through it.

I wish I knew in which direction I was going in. I called the doc's office and told them I couldn't have the MRI done,
but to date they haven't got back to me, and I need to know because I'm supposed to have endoscopy done on the
11th. I really don't know what I'm doing. All I need is one phone call and some guidance,, now why does that seem
so bloody difficult!!
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/5/2010 6:46 PM (GMT -7)   
Perhaps you need to call your doc and ask about a port. Maybe they are waiting for you to make the first move. I use to think I had to wait on the doc and take all that he said as gospel but I have found out you do better if you take charge of your own condition and ask lots of questions, do lots of research and have a real good idea of what you need, then the doctors seem to open up more .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 7:13 PM (GMT -7)   
Thanks again. You really are a good friend. I will have to get strong, pull myself up to my full 5' height and take charge!!
Well I'll try:)
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/5/2010 9:31 PM (GMT -7)   
((((((((((((((((((Dunny)))))))))))))))))))))) I have faith in you, the hug is just for a little extra support ....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/6/2010 6:50 AM (GMT -7)   
Awww thanks..
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Brad P
Regular Member


Date Joined Feb 2010
Total Posts : 51
   Posted 5/6/2010 12:13 PM (GMT -7)   
No infections and I've had the port for 1.5 years. Low chance of infection with the Power Port because its under the skin.
Regular Member...Veteran Sufferer.

CD since Fall 1987
Small Bowel Cancer - Sept 2008
Surgery to remove tumor - Oct 1st, 2008
Chemo - Dec 2008 to May 2009
Apri 2010 - NED (Cancer-free!)
March 2010 - Active CD and Fistula in Duodenum


Gemsi
Forum Moderator


Date Joined Feb 2007
Total Posts : 1050
   Posted 5/6/2010 12:22 PM (GMT -7)   
Quick question........What's a power port? I have a normal port I believe which is under the skin until accessed. :S
Diagnosed with: Cystic Fibrosis, Asthma, ABPA, Clinical Depression, Mild Liver Cirrohsis, Mild Osteopenia, Erythema Nodosum. Waiting for final diagnosis on Muscular Dystrophy type symptoms.
Medication: Creon 10,000, Vitamins A,D+E, Salbutamol, Paracetamol, Tramadol, Nefopam, Ursodeoxycholic Acid, Trazodone, Slow-Sodium, Azithromycin, Metachlopromide, Omeprazole, Tobi Ineb, Folic Acid, Adcal-D3. I use PEP and Flutter device as my physio as well as the occasional ABC when bored. Had a Port-a-cath fitted on chest wall since Nov 04
Help support the forums so we can support you:  http://www.healingwell.com/donate
Sometimes, I feel that I should go and play with the thunder - then I get scared and run away.
I'm from the UK!!!!! If anything I say makes no sense to you, let me know so I know how not to be so English.

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