What type of doctor?

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Mormor Vicky
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Date Joined Mar 2007
Total Posts : 684
   Posted 5/5/2010 8:00 AM (GMT -7)   
I know it's been a long time since I've been online, but I have a question.  My back has been getting worse and worse for the last 3 years.  My doctor gives me lidoderm patches, hydrocodone and exercises but it doesn't seem to be helping.  I really need to find out what is causing the pain and if it is Crohn's related.  What kind of doctor should I go to?  A spine specialist or a rhemutolgoist (sp?). 
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/5/2010 9:10 AM (GMT -7)   
It really depends on the back problems.  My rheumy said she can't give me lidoderm patches because they aren't FDA approved for arthritis, so it sounds like you might be beyond rheumatologist help if you are on those.  But, if they aren't helping, then it might be worth seeing one, but they may just refer you somewhere else.  They can at least tell you if they think it's Crohn's related.  My husband has back problems and has seen an orthopaedic surgeon, a pain mgmt specialist and had physical therapy.  They all refer him to someone else, but they at least had the equipment to figure out what was going on with his back. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/5/2010 9:17 AM (GMT -7)   
I personally feel you should start with a Rheumatologist. There are so many joint issues related to Crohns and personally feel we should all have one on board. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MikeB
Veteran Member


Date Joined Mar 2006
Total Posts : 1169
   Posted 5/5/2010 10:31 AM (GMT -7)   
Chronic back issues like that over a long period of time are usually related to spine and bones, so I would choose an orthopedic surgeon, preferably one who specializes in spinal issues. Most larger orthopedic group practices have one. In reality, either specialty (ortho or rheumy) is probably going to start with the same exam and same series of Xrays and probably MRI.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/5/2010 12:57 PM (GMT -7)   
And "I" wouldn't go near an orthopedic surgeon until I'd run out of every where else to turn. Since this pain is chronic I would start w/a pain specialist. If they all work pretty much as our local pain specialists do, they require a referral from your doctor. Your initial visit is w/a nurse practitioner who takes your history, etc., etc. Then you are scheduled w/the pain specialist and he will order any tests he feels necessary: back xray, MRI, whatever. When he has those results then you discuss what options are recommended and available to you and are scheduled for any treatments agreed upon. Our pain clinic utilizes not just nerve blocks, etc. but also physical rehab, biofeedback, etc. the whole gamut of pain management.
My computer says I need to upgrade my brain to be compatible with its new software.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/5/2010 2:04 PM (GMT -7)   
I would suggest talking to you primary get a grip on what is causing your pain, and see what specialist you need from there. It might be that you need to see all of the above.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/6/2010 12:26 AM (GMT -7)   
Go to your Dr. explain exactly what symptoms you have and how this affects your quality of life. Then follow his advice. My Dr. completely surprised me with a trip to a neurologist he got the job done.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 5/6/2010 5:26 AM (GMT -7)   
I woudl highly recommend talking to your primary to get to the root cause of the problem. My back issues...I would never let an orthopaedic near me and only accepted a neurosurgeon. It all depends on the cause behind your issues. A rheumatologist would be my start due to the CD unless you know it is nerve/disc related. You really need to find the cause to know the best practitioner
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa [until I surrender to the bigger meds]
I'm riding on the escalator of life....


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/6/2010 7:49 AM (GMT -7)   
I had back pain for most of the 15 years I flared, it was all CD related, except for when I actually put my back out-- which when I learned to walk again with no stomach muscles I did quite a bit-- I don't any more, thanks to Bowen Therapy.

If it only hurts when you bend a certain way, you've put your back out. If you have full mobility and it hurts most of the time, it is CD.

Surgery on my gut which cleared up much of the adhesion helped a lot.

In the end Bowen therapy, no surgery, no pain meds, did me the best service both for the CD pain and when I put it out. If you want to know more about it please post back.

Bowen also cured me of the migraines I had since childhood. I really really cannot say enough good about it.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/19/2010 7:51 AM (GMT -7)   
Thanks everyone. I'm lucky that I live in a major metropolitan area and had just gotten a flyer in the mail for a new back clinic. I called and made an appointment with them for today. Hopefully they can determine what is causing the problem. I just need to know if it's crohn's related and if there is something I can do about it.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/19/2010 10:09 AM (GMT -7)   
where is the back pain?? is it near your kidneys? I always had lower back pain (and pain over my kidney area) and it turned out to be from my crohns and it was actually my inflammed intestines squishing the uretur that was causing the pain.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/19/2010 12:03 PM (GMT -7)   
Well, I'm back from the spine specialist. She was terrific. She had me bend in all kinds of different ways and some of those positions really hurt bad. She also believes it's Crohn's Arthritis and is sending a letter to my GI to see if he'll start me on remidcaide to see if that relieves it. If it does then that is what it is. Crohn's is the disease that keeps on giving.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril

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