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ant34
Regular Member


Date Joined Apr 2010
Total Posts : 22
   Posted 5/5/2010 12:15 PM (GMT -7)   
hello all,i've just been doing some reserch on b12 and seems alot of cd's take it.
 
I've been suffering with extreme tiredness recently and wonderd if i should take some?
 
any comments please as cant take this tiredness thing anymore its driving me insane mad
 
thanks

krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/5/2010 12:51 PM (GMT -7)   
I had my 3rd shot of it today and I do feel like I have a little more energy that comes and goes... and I am hoping it keeps getting better!

I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 5/5/2010 1:58 PM (GMT -7)   
 
I believe that it is a blood test that will flag up if you are deficient and here in the UK if you are then normally a medical person will inject you with it (I believe it is usually done every 3 months)

ant34
Regular Member


Date Joined Apr 2010
Total Posts : 22
   Posted 5/5/2010 2:03 PM (GMT -7)   
thanks for the advice

nawlinscate
Veteran Member


Date Joined Jan 2007
Total Posts : 656
   Posted 5/5/2010 2:24 PM (GMT -7)   
For a couple of years, I was feeling totally exhausted all the time, as if I were seeing through gauze and trying to walk through waist-high mud. Those were the post-Katrina years, so I'd stopped having my monthly B-12 shot. Finally, I got advice from the wonderful people on this forum--and there are three things that have made a huge, huge difference and given me a lot of my energy back: (1) monthly B-12 shots (They said I could inject myself, but I'd rather have the nurse do it, so I run into my doctor's office once a month for a quick injection); (2) a multivitamin (I hate pills--and have taken way too many of them--so I take Viactiv's individually wrapped chewy chocolate ones, which makes it feel like a treat instead of a pill) and calcium (Viactiv's caramel-flavored ones); and (3) a big daily dose of Vitamin D3. A LOT of people on this forum recommended D3, and it seemed to be the final puzzle piece for getting my energy back.

Good luck!

NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8552
   Posted 5/5/2010 4:23 PM (GMT -7)   
This is probably almost too obvious to mention, but have you been checked out for iron-deficiency anaemia first of all? Should get checked out for both iron and B12 levels.

Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/5/2010 6:38 PM (GMT -7)   
I was on B 12 shots. All I got was a sore butt.
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/5/2010 6:47 PM (GMT -7)   
I'll go along with that sniper, but in my case a sore thigh because I give myself a shot weekly. I really don't notice any
difference in energy, but it's helped with neuropathy. Plus the fact I have to take it, because it's very necessary. So
Ant get your levels checked, and go from there, but remember to do it, it is important.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


Lady G
Regular Member


Date Joined Sep 2006
Total Posts : 321
   Posted 5/5/2010 7:21 PM (GMT -7)   
I've been taking monthly b12 shots for years...I can't really say I notice TOO much difference but I take them. If you want just ask your doctor to make sure a test for it is included in your next bloodwork and they will know. Gastros' I've noticed tend to check for it automatically with us anyways being such a common problem, but I would do as others suggested too and check your iron levels as well.
29 year old Crohns patient of 10 years. Currently on Imuran and Vitamin B12 injections.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/5/2010 11:52 PM (GMT -7)   
If you've had the last part of the small intestine removed then you need B-12 shots as thats the only place in our bodies that absorb b-12. Every 4-8 weeks is recommended. At 4 weeks apart the only thing I notice is I get 1 or 2 nights of great sleep, at 5 weeks I get more energy as well. Severe lack of b-12 causes prenicious anemia, goggle it to see why the body needs it. Oh just to add even if you haven't had a resection of the terminal ileum you can have enough disease present so you don't properly absorb b-12.


Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


ant34
Regular Member


Date Joined Apr 2010
Total Posts : 22
   Posted 5/6/2010 1:39 PM (GMT -7)   
yes i had a resection 17 yrs ago and was never really bothered with,now i'm suffering big time!!
I had my levels done about 4 months ago and they said they were fine but recently i've found out i could have new crohns in the butt! and i since this last bad thing i'm going through i've started getting more amd more tired and drained,i'm on no meds nothing.

i am due a small bowel barrium soon so hopefully things can start to get moving

thanks for advice everyone x

freespring
New Member


Date Joined Apr 2006
Total Posts : 2
   Posted 5/17/2013 1:02 PM (GMT -7)   
If malabsorption is a factor, liquid is the best way to go. low b12 seems common and goes hand in hand with low iron problems I've been fighting with it all for over 15 yrs and still learning what to and not to do :)

freespring
New Member


Date Joined Apr 2006
Total Posts : 2
   Posted 5/17/2013 1:06 PM (GMT -7)   
All we can do is Laugh or Cry Live or Die I am Scott CC 48 yr old carpenter with crohn's god bless all stay strong keep the faith I pray for us all :)
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