An update from my GP

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/6/2010 5:03 PM (GMT -7)   
Hi all
 
Well, yesterday I went to see my new GP.  I cant say how wonderful he is.  I was in his office for at least an hour.  My hands were sweating unbelievably as were my fee tand my shirt was drenched. (yes I did change it before I went to the appointment).  He was shocked!  Something of major interest happened though.  After seeing him a week ago, he requested my pathology reports from my GI.  To his surprise - and mine- the pathologist who looked at the biopsy results from the colonoscopy of a month ago, had suggested that because there was no evidence of granuloma cells in the tissues of the bowel - it was probabe that the diagnosis was infact UC.  10 biopsies were colected throughout the large colon showing moderate to extensive ulceration pertaining to the top mucosal lining of the bowel.  When I discussed with the GP about commencing imuran and my concerns for doing so, he also became alerted.  The other comment posted by the pathologist was that acute bowel colitis should be ruled out before immunoloduator treatment.  Acute bowel colitis referring to a viral, bacterial, parasite infestation.  My GP could not believe the sweating and actually held my hands to comfort me and said, we will get on top of this.  He did say that given the pathology report and the fact that the GI was wanting to commence me on imuran, he strongly recommends that I have a second colonsocopy before starting any further treatment.  He noted that the pathology report was done locally and that it had also been sent off to Sydney for a second opinion.  Again, it was reported from Sydney that viral, bacterial, parastitic infection and UC cannot be ruled out.  The GP said that if it is infact UC it will be that of what is called pancolitis, given that the entire large bowel is involved.  But a second scope must be done to be sure.  He also said that he felt that there was indeed some anxiety setting in, and given the many misdiagnosis I have had in the past and possibly yet another here, he understood my frustrations completely.  So to calm the waters a bit, he scripted me for a night sedative and some Xanax - which he tells me will relieve the anxiety until we get on top of this and also help the sweating.  Had a good sleep last night and took 0.5mg Xanax this morning with no sweating!!  Although he suspects that the probablility of this being and IBD - wether it be crohns or UC, he did say it is important to know which one.  He trully was a breath of fresh air.  He also said that he is happy to go ahead with anyfurther testing for confirmation including CT and barrium swallow to see if indeed the full thickness of the bowel is involved. - What a guy!
 
I told him about you guys too - about how much I have learned and how nice it is to talk to others going thru similar ups and downs.  - His advice was to keep online with you and is happy for any suggestions I may pose to him about others that are experiencing success with their treatments.
 
Thankyou so much to all of you
 
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/6/2010 7:55 PM (GMT -7)   
Oh, that *is* good news. I'm glad you have a compassionate doctor who wants to get involved and is on your side there.

just an idea, but might it be helpful to have colonoscopy #2 done by the specialist team in Sydney? It's probable they've dealt with many more difficult diagnoses than your local team has.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/6/2010 9:01 PM (GMT -7)   
Ivy,

Yes. Did I mention before that my GP says there is a good IBD team at Concord Hospital. I will get back to him shortly and request a referral to them. Dont want to tread on the toes of the GI here, but need the best outcome for myself in the end....not to mention a definite dx for a definite tx plan and right mx.

Thanks
Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/6/2010 9:51 PM (GMT -7)   
Great news Charlee!

There is nothing like a good GP, nothing.

Interesting that it might be infectious. Have you traveled much?

I'd be asking to see an infectious disease specialist, I really would if only to rule this out. Treatments for UC will not help if it is that.

Sleep well, again and again and zzzzzzzzzzzzzzzzzzzzzzzzz (it's late here)
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/7/2010 1:29 AM (GMT -7)   
MToronto2,

No no travel to note, and I'd like to think that I'm quite a hygienic person!. Cant rule out a true IBD but at least I can rule out it the future any doubt that conflicts with GI vs pathologist. Must say the sweating has eased, thank God! Sleep well my friend! Still treating myself on the IBD protocol with diet and pred - not ready to give that up. Nor was it recommened by the GP until further testing.

Sleep well my friend,

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/7/2010 1:38 AM (GMT -7)   
Sometimes you have to just find the right doctor. All to often we think that doctors don't make mistakes and take everything they say as scripture but if you are not getting better something is wrong. You did the right thing by getting a second opinion and while I am praying that you do not have crohn's disease and it is parasite or curable illness atleast you found someone good. Hang on to a good G.I. with good bedside manner because they don't come along that often. I don't think that it is bad to have a good GP also in them mix because if they work together with you G.I. then you can treat all the problems. I am sure your G.I. would agree.

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/7/2010 1:56 AM (GMT -7)   
tsitodawg,

Thanks for the reply. "gut feeling" (pardon the pun) is that yeah, there is something going on. And the colonoscopy did reveal coliits throughout the large colon. However, I am going on the advice of the GP and requesting that second scope. What ever will be will be. But at least I will be sure. Just need the pathologist, GI and GP to agree!

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/7/2010 6:24 AM (GMT -7)   
Charlee,

I do want to add to be careful with the Xanax as it is highly addictive. I use it myself for my anxiety, but only use it on a as needed basis, which is usually about 4-6 times a month. I was told that you can take it for up to 10 days in row without any dependency issues, but after that you may have problems. Just for your info.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease & Anxiety/Panic
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dreamlady
New Member


Date Joined May 2010
Total Posts : 19
   Posted 5/7/2010 4:30 PM (GMT -7)   
Hi Charlee

So happy to hear that you are feeing a little better and getting good results from your GP - he sounds great! I see my GI in Sydney at a private practice but he also works at Royal North Shore (where he has a good team - and where I spent time recently for a hospital stay) but he also has rooms at Concord Hospital and works at a couple of the private hospitals also. Keep asking questions and I would definitely get a second opinion if you do not feel sure about the first scope! Good luck with it all

DREAMLADY

DX Chrons - currently on predisone 25mg, coversyl 10mg, somac 40mg

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/8/2010 1:19 AM (GMT -7)   
Hi guys,

Nanners- yes, I have read that Xanax can be very addictive and my GP did warn me of this. I think when he saw the sweating, he couldnt believe it! Took just one yesterday and the sweating settled for hours. None this morning unitl about 11am and then woosh!. Took just 1/2 tab and again settled within about 1/2hr of taking it. Will be very cautious about it and will only take it if it becomes unbearable and I have run out of shirts to wear and the poor old washing machine isnt keeping up. Dreamlady - thanks for the info regarding those in Sydney. A specialty team would certainly help in pinpointing exactly what is going on. Thanks all for taking the time to read my update. And thankyou for your concerns, always so appreciated, especially in times when these ideas dont come to you of your own thinking. What a great group!

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/8/2010 2:05 AM (GMT -7)   
 It's nice to hear your getting good advice and support from your new GP. I love mine as well, he's pretty open to trying different things to see if they give me some relief. He doesn't mind when I hand him a download from the internet to ask questions about something. As he did with your post on buscopan, which by the way is working wonderfully well at night. I'm much better thoughout the day too, except when I add heat to my body in any form. Charlee it's nice to see the different tone in your post, I'm smiling for you! smilewinkgrin

Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 5/8/2010 7:49 AM (GMT -7)   
We should all be so lucky as to have a good PCP like that. Mine is good but doesn't know that much about GI issues. I sweat a lot when my stomach is churning and I am in a lot of pain. Try to get on an antidepressant. They are good for anxiety too. Have they done stool testing for you yet? They should. You could also ask for the serological tests for IBD. They aren't foolproof by any means but sometimes they can add to the picture. They seem to use them more in pediatrics though and rely on them in the kids population so they don't have to do so many invasive tests. For us adults, they stick it to us. lol...... If you switch GI's they will probably want to do another colonoscopy but sometimes they will do a CT scan or other tests vs. another colonoscopy. Best of luck to you.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies,  high BP, fibromyalgia, GERD, restless legs and periodic limb movement in sleep, low thyroid, the list keeps growing..........................
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux (trying again)
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA rheumatologist suspects mixed connective tissue disease 4/2010
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/8/2010 12:15 PM (GMT -7)   
Grandpato2 - Thanks for taking the time to read my update. As what you did with the info you received from the posts on the forum, my GP is also open to such suggestions. He seems to be interested in the tx and mx of those who are also sufferings and takes into account what maybe working for others. He certainly acknowledges it is an individual thing and, as I mentioned before is very pleased that I have a wonderful support group on the forum. I AM SO GLAD THAT THE BUSCOPAN IS WORKING FOR YOU!! And I do appreciate your concerns when noticing that I am having a bad day. Sometimes it takes someone else to recognise and alert you..and for that I am most grateful.
Jeanneac - Thankyou also. I am going to see if I can indeed get a series of stool specs, and a CT, as well as a second scope with biopsies, just to exhaust the tests that are available for a complete confirmation on just which IBD this is. Who knows - could be both.

Anyway, will keep you up to date.. love reading the posts, feel terribly sorry for those who are suffering and so pleased for those who are having a breather and coping OK - even for just a while.

Thanks again to all of you for sticking with me and embracing me on your forum!

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 07, 2016 9:31 AM (GMT -7)
There are a total of 2,734,105 posts in 301,180 threads.
View Active Threads


Who's Online
This forum has 151308 registered members. Please welcome our newest member, garf222.
344 Guest(s), 15 Registered Member(s) are currently online.  Details
PeteZa, Wdan, Bololidat, 81GyGuy, Aj1734723, Susannah R., Serenity Now, nanahateslyme, Scaredy Cat, garf222, Present&Grateful, NiceCupOfTea, njfillet, 1039smooth, Graytech


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer