Uterine Endometrium Ablation - tired of these nasty crohn's periods!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 5/7/2010 9:07 AM (GMT -7)   
I am so frustrated with my periods. I have always had heavy bleeding, painful cramps, worse CD symptoms, but since I had my baby 1.5 years ago, I have had even more bleeding problems. I had long post partum bleeding, then had periods even while breastfeeding, I had flooding (like a faucet of blood coming out), and now I'm still having heavy clotty periods that come usually every 21-24 days, but occasionally sooner.

So, I've heard about uterine/endometrium ablation where the gyno basically gets rid of endometrium lining so that it cannot build up and cannot shed. Virtually no more period or extremely light period. It's day surgery, recover is in a few days. I know you should not get pregnant after this, and that is not a problem for me.

Has anyone had this? Please tell me everything!

:-)

Post Edited (Roni) : 5/7/2010 10:12:22 AM (GMT-6)


jujub
Forum Moderator


Date Joined Mar 2003
Total Posts : 10391
   Posted 5/7/2010 9:18 AM (GMT -7)   
You might want to post this on the UC forum. One of the mods there has had this done and I'm sure she'd be happy to discuss it with you.

Mary41
Regular Member


Date Joined May 2010
Total Posts : 74
   Posted 5/7/2010 10:02 AM (GMT -7)   
I had it and it works great!

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/7/2010 10:10 AM (GMT -7)   
I had it in November. I had Fibroids and Polyps that needed to be removed. I had also had lots of period trouble going back for years, probably fibroids, but not sure. The procedure itself was easy, I was knocked out. Since I had to have things removed it had to be done at the hospital under sedation, but it can be done in the doctors office with some sort of valium type of drug. I was in quite a bit of pain for the rest of the day, nothing compared to CD pain, but more than I expected from what I had been told. Recovery was a few days, mostly I was just wiped out, could have been the anesthesia or just the fact that my body had been through surgery and I was healing, but also this was more than I was expecting, but nothing I couldn't handle. I was told I could go back to work the next day if I had a sedentary job (I don't so I didn't), but I don't think I could have functioned at any job for a few days. I needed to nap, big time and I was in some serious cramping pain and wanted my heating pad.

In the following months, I have gotten a period, but much lighter and no real cramping. Each month has been lighter and for a shorter duration. I am due now for my period and have no signs of it coming so maybe it has finally stopped them altogether?!? Who knows, but things are much better now. If you are sure that you are done having children and are having such terrible pain and trouble, then it certainly can be an option. I actually had had my tubes tied years ago, so the not having kids part was a done deal for me anyway.

If you have any specific questions just let me know. I don't always check my posted email, but I will keep checking this post so if you want to email me just post that you have sent one and I will go to my email to check.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


mdf34
Veteran Member


Date Joined Feb 2010
Total Posts : 925
   Posted 5/7/2010 11:43 AM (GMT -7)   
My wife had this done, it did not take 100% but offered up much relief.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Lialda 2X/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day
Change in meds is forthcoming............
 
 


mom-who-hurts
Regular Member


Date Joined Mar 2010
Total Posts : 28
   Posted 5/7/2010 12:58 PM (GMT -7)   
Hi.  I had this done March 2009 for bleeding that lasted 3 weeks a month which at the time we thought was the cause of some anemia I had.  I had heavy bleeding/prolonged bleeding and debilitating cramps for over a year.  A uterine fibroid may or may not of been the cause. 
 
I had the type of ablation that is called Novasure.  You can google it to find out more about it.  My doc does them in the hospital under general anesthesia.  (which is the only way Id agree to do it.)  The procedure was a piece of cake...15 minutes total.  In/out of hospital in just a couple hours.  Some moderate cramping (but for me no worse than usual) for about a week afterword.  The doc rx'd some good pain killers though.  I recall being super tired for a few weeks afterword...almost like when I was in the first trimester of pregnancy kind of tired.  IF you go the general anesthesia route, be sure to be on the lookout for UTI symptoms.  about 10 days out I ended up sooo ill with a bladder infection that I didn't recognize right away because I had never had one before, and I thought my discomfort was from the surgery.  The UTI was most likely because of being cathed during surgery..I had a friend have the same procedure done, and same thing happended to her.
 
It was totally worth it to get this done.  I have been so blessed to have NO periods at all since.  I haven't had to buy any feminine products since recovering (i bled about 2 weeks after)  My cramping is much better, but unfortunately not totally gone.  During ovulation, I still have some mild/sometime moderate pain, and during the week I'd normally have my period I have very mild cramping.  But still much better than before the surgery.

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/7/2010 5:26 PM (GMT -7)   
I did some research on this and am a bit concerned about the long term consequences. It is difficult to get all the tissue at the top of the uterus so some can be left behind. This tissue bleeds every month but there may be no where for it to go, especially in women that have blocked tubes from tubal ligation or scarring. Eventually it gets painful enough that women get a hysterectomy. Most of these types of problems take a long time, five years or more, to cause a problem. Also, there is a very small risk of asymptomatic endometrial cancer in the tissue left behind. The procedure doesn't cause cancer but it may make it harder to notice if you get it.

Some methods may be less likely to cause this complication than others so you might want to do a bit of research, especially if you can have a choice of methods.

I think most women who get an ablation are quite happy with it because they are usually suffering so much already. It's certainly worth checking into.

Good luck.

Dagger
Veteran Member


Date Joined Apr 2008
Total Posts : 1522
   Posted 5/7/2010 5:26 PM (GMT -7)   
I did some research on this and am a bit concerned about the long term consequences. It is difficult to get all the tissue at the top of the uterus so some can be left behind. This tissue bleeds every month but there may be no where for it to go, especially in women that have blocked tubes from tubal ligation or scarring. Eventually it gets painful enough that women get a hysterectomy. Most of these types of problems take a long time, five years or more, to cause a problem. Also, there is a very small risk of asymptomatic endometrial cancer in the tissue left behind. The procedure doesn't cause cancer but it may make it harder to notice if you get it.

Some methods may be less likely to cause this complication than others so you might want to do a bit of research, especially if you can have a choice of methods.

I think most women who get an ablation are quite happy with it because they are usually suffering so much already. It's certainly worth checking into.

Good luck.

Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 5/7/2010 7:19 PM (GMT -7)   
These symptoms are new to me (a few months), but I was experiencing heavy prolonged bleeding alsowith lots of clots. I have a rectal vaginal fistula also, so I was scared thinking oh no what has this fistula eaten its way through now. After 3 ultrasounds they said I have a cyst on my ovary about 1 inch in size and the uterine lining is twice the thickness. I was put on medroxy pills (14 days) to stop the bleeding and when I am finished the pills I will start to bleed again and with it the uterine lining is supposed to shed. Keep fingers crossed! I see my gyno June 1 so I will know more then. I hope I don't have to have any kind of surgery.

Julia

Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 5/8/2010 12:10 PM (GMT -7)   
My gyn offered the Gynacare, the balloon method. Is this the safest and most successful? It is hard to find which method is best.


fyi: Ultrasounds, bloodwork, hormone levels, everything looked ok they said.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/8/2010 3:14 PM (GMT -7)   
I had the Novasure. I am unfamiliar with Gynacare. I think you want to just make sure that your doctor has been doing the procedure for a good long time and is very competent with it. Possibly see how long this procedure has been in use? I know I had been told about Novasure at least 4 or 5 years ago so I know that it has been around for a while and isn't a new procedure. It has been tried and tested for many years.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


staroflife911
New Member


Date Joined May 2010
Total Posts : 10
   Posted 5/8/2010 10:27 PM (GMT -7)   
This may be a little irrelevant, but I myself have very painful periods with clotting and moderate to heavy bleeding. They are very irregular but they only last about four to five days. I was just wondering if there is some connection between that and the crohns that I am not aware of yet. I also noticed that I tend to have minor flare ups (nausea and diarrhea accompanied with abdominal cramps that are relatively high for menstrual cramping) during my period. Is this just me being weird and crazy or is this common?

redone
New Member


Date Joined Nov 2009
Total Posts : 19
   Posted 5/9/2010 6:47 PM (GMT -7)   
I always have what seems to be a "flare up" during my period...I never really thought about it but I suspect it may be related. I don't normally have period cramps, but I get cramping in my bowels and diarrhea.

Weird stuff.
37 y/o female.
Diagnosed in 2001
Started Remicade on December 3, 2009


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 5/9/2010 6:52 PM (GMT -7)   
Hi all, what constitutes a flare? How long to they typically take to go away? Thanks!
newby


Roni
Veteran Member


Date Joined May 2003
Total Posts : 2480
   Posted 5/9/2010 8:45 PM (GMT -7)   
Grumpygi,
A flare is when the disease is active. A flare can last anywhere from a day to years. Sometimes it can be mild, sometimes severe, even if it lasts for a long time. Everyone is different. Some people have short flares, long flares, non-stop flares.

When the disease is not active, it is said to be in remission.

Post Edited (Roni) : 5/9/2010 9:49:03 PM (GMT-6)


grumpygi
Regular Member


Date Joined May 2010
Total Posts : 266
   Posted 5/10/2010 8:59 AM (GMT -7)   
Roni:  Thank you for responding.  So any pain or D consititutes a flare?  I have been trending what people have said about food and methods to control pain.  Last week I ate canned fruit and hard boiled eggs for 24 hours and very little the next day.  Ended up with a whoppin headache but my gut sure felt better.  Then forgot that I really had a gut ache -ate too much -the headache was better but the gut ache came back. . . . yikes. . .
newby


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/10/2010 9:04 AM (GMT -7)   
Here's some info on why your bowels behave differently at different parts of your cycle.

When progesterone is high, which is from the day you ovulate until the day before you bleed, muscles all over your body are more relaxed. Bowels move more slowly. Some women complain that they get constipated.

When the luteal phase is over, progesterone crashes and uterine cramps might begin at the start of your cycle. Any pelvic cramping is going to stimulate your bowels - lots of women (even without IBD) get diarrhea at the start of their cycle.  A DR once told me that lots of prostaglandins are released into the pelvis during these kind of events, and prostaglandins are irritating all over.  NSAIDs are anti-prostaglandins I think, and that's why you're told to "take Motrin" if you have bad period cramps.
 
By day 4 or 5 of a normal menstrual cycle, the pituitary gland is in gear sending messages to the ovaries to build an egg - estrogen starts to rise and progesterone is very low, so bowel activity is faster.

Post Edited (kazbern) : 5/10/2010 12:33:57 PM (GMT-6)


Julia Hill
Veteran Member


Date Joined Mar 2008
Total Posts : 543
   Posted 5/10/2010 4:25 PM (GMT -7)   
How much is to much blood? Has anyone's Gyno ever said when to worry?

Julia

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/11/2010 11:06 AM (GMT -7)   
Too much bleeding is filling a thick pad or a super tampon in 1 hour.
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 02, 2016 3:27 PM (GMT -7)
There are a total of 2,731,792 posts in 300,964 threads.
View Active Threads


Who's Online
This forum has 151130 registered members. Please welcome our newest member, Inhisname.
324 Guest(s), 14 Registered Member(s) are currently online.  Details
cupcakespinkgal, Alcie, Purple Tulip, 81GyGuy, Skyy, Scaredy Cat, getting by, exqualls, poohcheez, JayBee1, Worksop, gilly2, Lisa-Dionne, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer