Help! possible rectovaginal fistula

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kccrohns
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/7/2010 9:36 PM (GMT -7)   
Hi, So I have never done this before but I often read the posts and find them very helpful. I was diagnosed 3 years ago with Crohns, and started humira and azothioprine. But about a year ago I began having back to back vaginal infections. Like I take a round of antibiotics followed up with a round of diflucan (oral yeast infection medicine) and within days it comes back. I am very itchy down there and I just dont know what it could be. I have switched detergents and tried everything! I also I had an a periannal abcess this past spring which I had a seton put in for 6 weeks (its out now). But about a month ago I also developed an abscess on my vagina. I just really dont know what is going on. Could this be a some sort of anal connection? or is it just back to back infections because of immunosupresants? My Gyno seems puzzled and I just don't know what my next step is! PLEASE HELPPPPPPPPPP

firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 5/8/2010 4:13 AM (GMT -7)   
Your GI or colorectal surgeon should probably take a look at it and then run some tests (CT Scan or MRI) to determine if it is an actual fistula or a skin infection. According to some articles I have read, due to immunosuppressing meds, people with Crohn's can get skin infections in that area that look a lot like a fistula, but in fact are just painful abscesses without any tracts to the bowel or anywhere else. I included a link to something that is often mistaken for the start of a fistula. I hope you get help and relief soon.

http://www.mayoclinic.com/health/hidradenitis-suppurativa/DS00818/DSECTION=causes

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/10/2010 1:45 PM (GMT -7)   
I agree w/firecracker - a gynecologist would have a very tough time recognizing a fistula....at least that's what mine told me.

dorothy678
New Member


Date Joined Sep 2009
Total Posts : 15
   Posted 5/10/2010 2:16 PM (GMT -7)   
At times I get lots of these infections as well. I did EVERYTHING they say to prevent them (yogurt, showers not baths, cotton underwear, etc etc) but used to still get them quite regularily. I also have had a perianal fistula that I had surgery on years before I knew I had Crohns. I, too wondered if the slight drainage that somtimes occurs caused the infections, or if I had some sort of vag fistula. Related to this, I also had a a bad time, again, before I was diagnosed with Crohn's, where my entire right labia was about 3 to 4 times the size it was supposed to be. It stayed this size for months and was extremely itchy. Dr nor gyn. knew what it was. MRI was done but nothing found. Gyn gave me cream to make itch go away. One Dr wanted to cut the "excess skin" off. The funny thing is that (even though I didn't know I had Crohns) I used to tell my husband that it was either my stomach OR down below that would give me grief but NEVER at the same time. The symptoms had to have been Crohns related in SOME way but I am not sure what/how. This hasn't bothered me now in a few years. Just went away one day. I will only get an infection now if I go on antibiotics. Interestingly enough, I recently went on prednisone and imuran and have started to get some relief with stomach symptoms......just when I start to feel good I notice one day that labia felt very itchy.....I haven't noticed it get worse yet, but if I have to choose....I think i will go for the sore guts! Good luck with your problem. Let us know if you find out what it is so I can tell my dr what is wrong with me next time ;-)
__________________________________________________________
~Dorothy~
~diagnosed in 2007 at age 29 (Crohn's Ileitus and Duodenum)
~presently on Prednisone, Imuran, Pantoloc, vit. D, Calcium
 
 


kccrohns
New Member


Date Joined May 2010
Total Posts : 4
   Posted 5/10/2010 5:54 PM (GMT -7)   
Thank you so much for all your feed back! Dorothy-I will let you know as soon as I find something out, it is nice to know I am not the only person with this issue!

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 5/11/2010 8:20 PM (GMT -7)   
firecracker1 said...
Your GI or colorectal surgeon should probably take a look at it and then run some tests (CT Scan or MRI) to determine if it is an actual fistula or a skin infection. According to some articles I have read, due to immunosuppressing meds, people with Crohn's can get skin infections in that area that look a lot like a fistula, but in fact are just painful abscesses without any tracts to the bowel or anywhere else. I included a link to something that is often mistaken for the start of a fistula. I hope you get help and relief soon.

http://www.mayoclinic.com/health/hidradenitis-suppurativa/DS00818/DSECTION=causes


THANK YOU for posting this link. I get these sores/abscesses in my nether regions every time my Crohns flares (it's my first sign of trouble!) and my GYNs never knew what the heck they were (they called them boils) and my GI just agreed with me that they were connected somehow to the Crohns. He had never had a patient with them before. I'm printing this mayoclinic info and taking it to him next visit! I bet that is exactly what they are.

firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 5/15/2010 4:59 PM (GMT -7)   
You're welcome!
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