SLEEP- cant get any

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tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/9/2010 8:10 AM (GMT -7)   
I am having trouble sleeping since I am in flare, I Have taking hot baths, tried busppirone, and
HYLANDS insomnia, nothing seems to be helping, I AM in high anxiety mode,
any suggestions, cant seem to get my mind clear, I AM TAKING ASACOL AND PRED 30MG
A DAY, will start weening in 7 days to 20
thanx TIGERPAWN
ps lack of sleep and taking pred, making me real jittery

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/9/2010 8:14 AM (GMT -7)   
You should be taking all your Pred as early in the morning as you can. When you take split doses like you are, it really cause alot of insomnia. Or you can ask your doc for something to help you sleep. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/9/2010 8:22 AM (GMT -7)   
when i went to 30 mg I started taking it all in the morning, any other suggestions,
thanx for quick response
tiger

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/9/2010 8:26 AM (GMT -7)   
Then ask your doc for something to help you sleep.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/9/2010 8:37 AM (GMT -7)   
I did and he prescribed BUSPIRONE OVER XANEX, and it hadnt helped, tried it 2 different nights,
he prscribed 10mg dose.
thanx again for quick reply
as alawys I remain tigerpawn

alacer1
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/9/2010 8:48 AM (GMT -7)   
Its worth exploring the idea of exercise - tension gets stored in muscles. If you can find the right teacher, yoga does a wonderful job of helping calm the body. Also, breathing exercises are an easy, but very powerful way to help a body rediscover its balance.

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/9/2010 10:27 AM (GMT -7)   
I didn't sleep more than 3 hours a day for months when I was on pred, it made me very jittery. I'm normally a good sleeper, so the insomnia was a new experience (joy) for me.

I did use Imovane (don't know if it's the same class of drugs your doc Rx'd), but this one allows you to dream. I found it did nothing for me when I was on the higher dose, but helped as I got below 20,mg...Still I went through another night of insomnia when I came off it which was a few days after coming off the pred.

Seems you might have to wait it out, but this doesn't mean you don't need to rest as best you can.

I found 2 things that kept my mind busy while my body rested,

1) Meditation, I did some of my best meditating on pred, go figga. If you can find a Mindfullness program in your area, I cannot recommend it highly enough. Whether you can get into one now or not, it helps you deal with the anxiety a life of CD can bring. It will give you tools to help you cope in so many positive ways.

2) Quiet music. I went to single instrument recordings, guitar, cello, etc. I let my mind wander with the music and in the mean time my body got rest.

This is my two points worth, hang in there, and reign that mind in when it wanders into worrisome territory, that will only make your anxiety worse...

Hang in there Tiger
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/9/2010 10:50 AM (GMT -7)   
thanx, mtoronto2, will try some of the things u suggested, but being on this pred, my attention span
is about 5 seconds before it wanders back into worrisome terrotory,
I guess I MIGHT have to wait it out, I HAVE ANOTHER 3 WEEKS OF TAPERING.
THANX AGAIN
tigerpawn

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/9/2010 10:55 AM (GMT -7)   
Best I can suggest with the worries, is to let them go, think other thoughts, it do take some practice, but it can be done. Honest!
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/9/2010 2:32 PM (GMT -7)   
I like most on here can almost guarentee that your insomnia is due to your pred. It is one of the worst side effects of the medication and it is not odd for me to go 2-3 days without sleep when I am on it. The best thing you can do is eliminate any caffiene while you are on it such as coffee, tea, cola, or anything that will stimulate you. If it is really bad call your primary care and let them know what is going on and have them prescribe you a sleeper medication like ambien or lunesta. Be advised that these medication are really strong and can make you do some odd things if you are a sleep walker.(I still have a day that I do not remember when I accidentally mixed ambien with nyquil but don't worry my family remembers is for me lol) If you don't want to go prescription medication you can also try Tylenol PM or Excedrin P.M. which I promise will put you out like a baby.

Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/9/2010 2:33 PM (GMT -7)   
Not all sleeping medications work the same way. If the one your doctor gave you is not working, tell him. You need to speak up for yourself and ask for something that works. This is one of my pet peeves about our doctors. They give us these drugs that work wonders for our DD but forget that they can wreak havoc on the rest of our lives. If you are not sleeping your body is not healing. You need to be sleeping and your doctor has the power to help you, all you have to do is ask/demand it.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/10/2010 1:11 AM (GMT -7)   
A simple over the counter remidy is benydryl take 2, should help you sleep.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/10/2010 4:14 AM (GMT -7)   
wiull benadryl mix okay with pred and asacol
thanx

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/10/2010 5:31 AM (GMT -7)   
Best to get something from your doc, or at least check with pharmacist re: benedryl mixing with your meds, and how it may effect CD.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/10/2010 6:04 AM (GMT -7)   
I have taken Benedryl many times while on both those meds. Just helped me to sleep. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/10/2010 9:27 PM (GMT -7)   
Prednisone has also kept me awake too. The GP gave me a script for a night sedation which gave me about 4 - 5hrs of sleep. Not alot I know, but it was a relief to have some sleep on board. The name of the drug is temazepam. He assurred me there was no interaction with the prednisone.. as suggested above, taking the pred as early in the am is best - 6 or 7am. I am currently on 25mg and on the weaning process each week too. The temazepam is what is called a "short acting drug" and has a half-life of about 4 hrs. Meaning that you are very unlikely to wake feeling groggy or "out of it". Designed to get you to sleep and keep you asleep for a few hours. When I take it, I do notice it also relaxes you abit and takes the edge of the anxiety. Anyway, ask your doctor if you can have a script for something like this whilst on the pred. Its not something he will script you for time after time because it is a benzo drug which can become addictive, but used in the short term, should help. Good luck.

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil

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