Teary couple of weeks...

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flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 5/9/2010 7:17 PM (GMT -7)   
Have had so many events to get to in the past few weeks. Baptisms, College Graduation, Bridal Showers, Baby Showers and yada yada... Pictures are just starting to surface from all the events and... I'm NOT a picture person but am always surprised to see myself now! 
I just don't look healthy! It's made me quite Teary latley.  I have Pred face, and am just plain puffy. My skin has turned a lovely color of yellowish..Sounds so prideful but, I just miss my "old self"!!! Hard to realize all the time that it's just never going to change.  Some days excepting it is better than others. I try to tell myself that I am soooo much more than my shell... that's not being very nice to me! I am a fun, caring, loving, person..that unfortuantley looks sick. Just bums me out...at times! How does one stay positive about this......I just don't know sometimes... 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


heatmiser
Veteran Member


Date Joined May 2003
Total Posts : 1671
   Posted 5/9/2010 8:28 PM (GMT -7)   
I am in the same boat with the puffy round face.  I hate to look in the mirror.  I've been feeling warm and wanting to pull my hair back but I don't because I am trying to hide my face.  My son very affectionately makes fun of my puffy cheeks which at times even are red.  He thinks its cute but.....we all know otherwise.   I tell myself it's temporary and worth it to get better, but I've been on prednisone most of this year.  I'm already overweight, so add to that the water retention and hunger which has made me gain weight.  The alternative is to be sick and end up back in the hospital so I guess for me it's a matter of keeping things in perspective. 
 
I would just keep an eye on the yellow skin that you're having.  I've not noticed that with pred, but when my hubby had it, it was due to obstructive jaundice and was a serious issue.
 
Hang in there, we will get through this.
Dxd CD in 2003. Scope Aug/09 shows UC.
Meds: Colazal, prilosec, darvocet, prednisone, cipro, flagyl


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/10/2010 12:47 AM (GMT -7)   
I agree you might want to get a blood panel for liver function if your skins yellow! I can relate to how Prednisone makes us look so bad, even though I'm a male I hated it too. Eventually you'll get off it and you'll return to normal, keep that in mind.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/10/2010 5:35 AM (GMT -7)   
Just remember that even with puffy face and yellow tint you will always be more beautiful than old sniper. When I was born they almost pushed me back in . My teachers always put me in the back of the room or used me in the closet to scare the mice away. I had to make the army issue me a weapon. They wanted me to use my face. All that was before this illness so think how lucky you are to be talking to me ala text.....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/10/2010 8:25 AM (GMT -7)   
sniper..u r too cute who loves ya more than me ..well okay first C then me lol

i look in mirror n do not recognize self at all the bags under my eyes the pained look on my kisser plus im at a total of maybe 102 lbs i just am not me..force self to eat at least a can of soup each day everyone telling me to eat
well if they really knew me they would know i dont eat if something is going on n especially if others are telling me too
it bothers me

im sure this is scaring my cait all to hades but i just dont feel right
something def going on here n i am having the doc check me out tomorrow
i need answers n fast

i hv become a shell of self lost in time just lost in all this dd n im sick of it all...tired of it all

i come here as i hv great friends here n i feel i can do maybe a lil something for someone it helps me

keep posting n know u r being heard n our thoughts are with you
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

DONATE TO www.Healing Well.com
LYN


Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/10/2010 3:29 PM (GMT -7)   
I started pred around 4 weeks ago and didnt notice any change for the first week and then...WHAM! My face became puffy and it was noticable to those around. Given that prior to staring pred, for 16months I had lost a heap of weight to the point I looked guant. People were making comment then, "oh, you look so sick, why are you losing weight?, have you been checked out for cancer?" This list goes on. Now that the pred has helped to put on the weight, the comments are "wow, your really wacking it on now!" 172cm tall before pred 47kgs, still 172cm tall and now 56kgm. Moral of the story - people talk, but if you know what to expect and whatever med youre taking is helping you feel better, then looking good on the inside is better than looking good on the outside, I say! Dont judge your looks, its the last thing you need.
There is that issue of yellow though, get your liver function tests done. We need you liver to look good too!

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 5/11/2010 2:51 PM (GMT -7)   
Thanks for the replies...everyone is right! I will get my liver funtions checked. I get my blood drawn now and then they haven't mentioned anything...I think it's just malnutrition.  
Unfortunatley, when I was younger..much younger I was always given attention for my looks. Now, aging and all these stupid diseases which by the way a Dr. said the other day..Oh..you have fibro...what the heck why didn't they just not tell me! I don't want anymore titles!!!
Time for a rebirth of of who I am on the inside.
 
Sniper....you make me laugh. I don't believe what you say for one second. The way you shine on this website I'm sure your quite a beauty;)
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        


Sniper
Veteran Member


Date Joined Feb 2004
Total Posts : 6518
   Posted 5/12/2010 7:51 AM (GMT -7)   
Ive been called many things,,,beautiful,,, was never one of them....
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/12/2010 1:08 PM (GMT -7)   
flowery: am I missing something because you don't list prednisone w/your other meds. Or is there something else that causes the "moon face" that I'm not aware of.

Advise: whenever I get lab work done I call to get the results and also request a hard copy for my files. I never rely on the nurse or doc to call me with the results - they're human, they're busy and they forget.

Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 5/12/2010 4:12 PM (GMT -7)   
So long as you don't let yourself become too self-conscious, you can make your sickly appearance work in your favor. You and your friends/family know how awesome you are, and when you remain at a steady level of awesomeness, even when you're sick, people notice. They think to themselves "Holy crap, he's poopin 20 times a day, feels like garbage, and can still make 'That's what she said!' jokes!"
Diagnosed with Crohn's late December 2004. Narrowly avoiding a full-blown flare on Azathioprine (50mg daily).


sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 5/12/2010 5:33 PM (GMT -7)   
flowery- I would first like to say to you that I can understand how you feel as far as not feeling so pretty anymore. I was always known for being very pretty plus being a loving and caring person. When I first started losing so much weight people were talking about me saying they think I'm doing drugs and my kids friends would tease them and ask "what happened to your mom, she use to be so pretty and now she looks like she is on crack". My kids would get upset and say that I am sick and then their peers started saying I have AIDS. I was getting so depressed with all the comments but my husband would always tell me that I am still beautiful (love is blind I guess).

I decided that just because I didn't feel well or look well that I didn't have to look that way so my husband took me shopping for clothes (because all I could wear is PJ pants because I had NO clothes that fit anymore from all the weight loss). When we went I hated it so much because I had to look for the smallest size clothes they had and I didn't know how I was going to look. I even had to get padded gel bra's because I lost all my chest. The first day I got dressed and did my hair I walked out of the room and my kids and husband looked like they were in shock. They all kept saying how beatiful I looked and it made me feel so good. The sad thing though was when we went out and bumped into people that haven't seen me in a long time they all responded with "OMG, are you sick...you have lost so much weight", well my self esteem went straight down the drain in the matter of seconds. I feel as women we feel we need to be so concerned about our outer appearance but what really and truly matters is who we are on the inside. I came to realize one day that if I can get this crohn's under control and enjoy my life with my kids and husband that would mean more to me then anything in the world.

I am suppose to start steroids and 6mp next week and I don't know how the steroids will change how I look but I have come to realize that I probably will never look how I did 2 years ago but just feeling healthy again (I pray the medications work) and getting out in the world again spending time with my kids and husband, laughing, and just being happy will mean more to me then anything. People are going to talk about you no matter what, even when you look good there are people who will want to put you down. What matters is trying to find all the good things you have and when you do that it will make you shine.

Sniper- I am new to the forum but have been reading a lot of different post and I have read a few that you have wrote on. I just want to tell you that I think you are a wonderful person because you have always made me laugh and put a smile on my face. I bet you are absolutly gorgeous :-)
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago
I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula
Medications I have taken for crohn's is..... Asacol and Entocort EC
Currently taken....Asacol
Suppose to start Steroid and 6mp next week (May 18, 2010).....I'm so scared :-(
Seton drain was put in on May 4, 2010
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(


flowery
Regular Member


Date Joined Jul 2008
Total Posts : 440
   Posted 5/13/2010 10:09 AM (GMT -7)   
Cleo, I'm on and off Pred and lots of other things too...I just don't take the time to always change my page. sorry. I do wonder sometimes if Immune Resistant Drugs don't make a persons face and body puffy though.
Sweetnikra, thanks for sharing your story. Welcome to HW. My kids friends asked them if I did Meth...back when I was first dx. I had lost 45 pounds...and had a staff infection. People and their words can be so cruel.
You are going to feel tons better when you start your meds. Keep your chin up!
You are right that all that matter is being able to enjoy your family and doing functions. I really need to realize that. Somedays are just bluer than others. Their was a time I couldn't even go anywhere. We seem to always want the "whole PIE" right..lol! My relationship with my husband has even changed. Your right that love is blind....I think it's changed because I don't love myself as much anymore. Need to work on that! It reflects in our relationship! It's difficult being dependent on him so much. I was always the care taker and now our roles have changed. I guess we'll have to Grow....OUCH!
Sniper... somebody not only called you beutiful but... gorgeous...what do you think about THAT;) ....
 
Flowery
 "Get busy living or get busy dying"
Dx in 2005 with Crohns after a Hysterectomy. Re-section in 2006...came apart so got to do it again! Frequent Kidney stones and Shingles... a new present as of 08-09 Diabetes Type 2. Total of 12 surgerys.
Imran, Asacol, Colestid, Bentyl, Lamotil, Paxil, Nexium, Probiodicts, Vit D, Folic Acid, Lots of Potassium, Fish Oil, up to 6 Immodium a day. Oh, and one Giant Pill holder!
 
 
               
                        

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