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chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 5/10/2010 1:27 PM (GMT -7)   
Hey guys,

I've been trying to have b12 jabs 3 monthly for several years now. I'm at uni and my GI and GP are at home (which is 170 miles away from uni). I have to do this as i'm in the UK and on humira so it goes through PCT ect ect.
I am at uni alot, as obviously i'm trying to get my degree. Each time i'm at home i start ringing my GP surgery to get an appointment for my b12. I've been doing this for 3 months now and i CANNOT get an appointment for love nor money. I'm getting really desperate! Each time i ring they have no appointments with a qualified nurse. So they refuse to give it to me. The odd times they have had appointments i've had to be at the hospital or i've had to be back at uni (for exam/assignments ect).

I've been googling and have seen b12 patches and sprays. What are your thoughts in these? I'm not entirely happy with the patches as there isnt a huge amount of scientific info there and the study they talk about has a laughable sample size. So i'm leaning more towards the sprays. Will i still absorb some b12? maybe not all of it, but some has got to be better than none?

Help guys!! smhair
Dx - Crohn's - 2006, Depression = 2010
Currently - Humira fornightly, iron tablets, B12 3 monthly, prenatal vits+minerals
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks,
Allergic to Infliximab
Doing BSc (Hons) degree Equine Science - some support from uni. This year has had to be split in to two.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/10/2010 1:35 PM (GMT -7)   
I heard the sublinguals were really good and that if not doing the shots these were good, but haven't heard anything about the spray or patches.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/10/2010 8:02 PM (GMT -7)   
I get monthly injections but often wondered about the other forms of getting this vitamin, outside of eating lots of liver, ugh? If I couldn't get someone to give me my injections I would find a way to get it thru other means. To some B-12 injections are a must because of removal of the intestine that absorbs B-12 as it can lead to pernicious anemia. As well I imagine if that area is constantly inflamed it probably won't be doing a very good job of absorbing B-12 so may need supplementing.
Hope you can find someone to give you injections.



Andy2158
New Member


Date Joined Apr 2010
Total Posts : 5
   Posted 5/10/2010 8:07 PM (GMT -7)   
Yeah the sublinguals are meant to be good, but you have asked your doctor/nurse about being able to give yourself b12 injections? It maybe different where you are but I was getting sick of needing appointments all the time to get a B12 shot. I have had surgery and can't absorb B12 through my digestive system because I have had that part of my bowel removed.

After asking the nurse was there a better or more convenient way to get a B12 shot she said that I could do it myself. I thought that it might hurt and be hard to do myself but it hurts way less than when someone else does it. It would be worth asking as it maybe something that could save you a lot of hassle.

Andrew

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/11/2010 10:02 AM (GMT -7)   
I'm with Andy - the B12 shots are not hard to give to yourself and eliminating the run-around you're getting with be well worth it.

vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 5/11/2010 10:16 AM (GMT -7)   
I am assuming here that for whatever reason you want to stay with your GI and you don't want to register with a local GP.
 
Maybe this is too simple, but generally  there are three breaks from Uni, Easter, Xmas and summer, with summer being a three month break  in itself so can you not phone(in advance of  going home!!) and arrange an appointment (lets say a month in advance of each break) and then for the summer break book one in for start of it and one in for the end and that way you should get one done approx every three months??

Gilda
Regular Member


Date Joined Apr 2009
Total Posts : 194
   Posted 5/11/2010 10:27 AM (GMT -7)   
I use a sub-lingual liquid B-12 that I take under my tongue. It definitely gives me more energy so i guess it must be helping. Try this form and see what it does for you!

chocholic
Veteran Member


Date Joined Apr 2006
Total Posts : 634
   Posted 5/11/2010 10:33 AM (GMT -7)   
You would think that ringing my GP 6 weeks in advacne would get me an appointment, wouldnt you! nope, i get told to ring back closer to the time, so i leave it two/three weeks and bam they are all gone. Its insane.
I refuse to change GI's and changing GP surgeries to a local one would mean that all my paperwork would have to be resubmitted to allow for the humira. Its kinda like swapping insurance companies!

I'm due to see my IBD nurse so will talk about giving the jabs myself. I already inject humira and havent killed myself yet so hopefully this will work!! I've filed numerous complaints about my GP surgery's ineptitude before. Maybe thats why i cant get an appointment????
Dx - Crohn's - 2006, Depression = 2010
Currently - Humira fornightly, iron tablets, B12 3 monthly, prenatal vits+minerals
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks,
Allergic to Infliximab
Doing BSc (Hons) degree Equine Science - some support from uni. This year has had to be split in to two.


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 5/11/2010 11:03 AM (GMT -7)   
 
You would of hoped so-that is appalling service.
You are may be right re the complaints but it is still appalling. Is it not possible to change GPs without having the agro of redoing all the paperwork(especially if still under the same PCT and GI)?
I guess that as you are managing to give yourself humira then there should not be a problem with the B12.
I'd file some more complaints smilewinkgrin

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 5/11/2010 3:40 PM (GMT -7)   
If you can find a way to give yourself the injections, your quality of life might improve. 
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 1000, 10mg zinc. SCD diet modified years ago to include potatoes and rice. 

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