Feeling a little blue today!

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New Member

Date Joined May 2010
Total Posts : 19
   Posted 5/11/2010 12:46 AM (GMT -6)   
Hi guys
Just needed to get on here to vent a little.  I am feeling a little blue today. I had a GI appointment this morning and even though I knew what to expect it still kind of hit me that yes i DO actually have Crohns (only diagnosed early April).
I guess because I have been responding so well to the Predisone treatment so far and seem so unlike many Crohns people that I know that maybe they had just made a mistake (ha ha I know you probably have all thought that at some point!).  I mentioned this to the doctor but unfortunately it is not so (even though deep down I already really knew that).  Even though the gastroscopy and colonoscopy that I have had recently shows Crohns the doctor said that CT enterogram that I had a couple of weeks ago also confirms active Chrons - good news I guess is that it is only in the terminal ileum approx 12cm in length, no evidence of fistula or abscess formation. there is mucosal enhancement and bowel wall thickening and narrowing of the bowel lumen in this area. But no evidence of Crohns involvement elsewhere in the small or large bowel.  Also blood tests came back 2 out of 3 things positive (cant remember what they were called) which apparently also common in Crohns!!
So why am a bit blue is because now we have to start the next stage of treatment with Imuran tomorrow (starting at low dose of 50mg daily for the next four weeks whilst tapering down off the predisone also - staying at 25mg for next 10days, then down to 20mg for 1 week, then 15mg for 1 week then 12.5mg for 1 week and then see GI specialist again and review)  I guess because I feel quite stable at the moment I am a bit nervous about starting this new medication tomorrow - The doctor explained all the side effects that can occur with this medication but I really dont have any choice I have to start a maintenance medication (which he tells me I will need to be on for life!) as you cant stay on predisone for too long.  Obviously if this drug doesnt agree with me he will need to review it sooner than that and change to something that will work.
I know you have all probably felt this way in your early stages of diagnosis and I know what drugs work for some dont for others - i guess its just fear of the unknown!!
Wish me luck

Regular Member

Date Joined Apr 2010
Total Posts : 20
   Posted 5/11/2010 1:17 AM (GMT -6)   
Please don't feel blue, I am thinking about you and try to find the way out of the blueness. Sometimes it takes a while. In the meantime, it makes me so sad to hear of people that feel blue.
Dx with Crohn's Feb 2009, but was told that I had probably had it a long time.
2nd Flare-up Mar 20, 2009 sent me to hospital where I perforated and got emergency ileostomy. Took down ileostomy on Jan 5, 2010. 28 cm active Crohn's terminal ileum. Strictures. Remicade 1 on 19 April 2010. Remicade 2 on 3 May 2010. B12 once a month, OTC Multi, D, C, Fish Oil daily. A pathetic 130 lbs.

Regular Member

Date Joined Jul 2009
Total Posts : 61
   Posted 5/11/2010 7:24 AM (GMT -6)   
I understand how you feel. I call it feeling brown. I am just off my normal took at the bright side and a little sad. And going to the bathroom many times during the day! Medications are something that you get used to and it sure beats ignoring your disease and having it kick your butt. There are many people here that can tell you their stories about ignoring the disease. Hang in there and I am crossing my fingers that the medicine works and you can get off pred.
Diagnosed with Crohns in 1998. Been on and off pred, entocort, immuran, asacol. Currently on Remicade every 6 weeks along with Asacol. Began having joint pain 01/2010.

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 5/11/2010 8:37 AM (GMT -6)   
I know it sucks to be diagnosed with a disease that you know you will have for life, BUT...there is still life with Crohns. I have lived with this darn disease for almost 35 years, but I still have had a good life. Only had a few bumps in the road along the way. I am married to the most amazing man in the world, have 3 adult daughters, been at the same job for over 20 years, and have 5 soon to be 6 healthy and absolutely the most beautiful grandbabies in the world.

In the beginning it is really tough for us. It takes time to find the right meds and diet for each of us. But once you find the right combination for "you", you will start feeling better. Here's to a better tommorow for you.


Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

New Member

Date Joined May 2010
Total Posts : 19
   Posted 5/11/2010 5:39 PM (GMT -6)   
Thanks so much for the words of encouragement everyone. I know that there is life beyond Crohns (I have a sister who has been battling it for 20yrs!) and I know that I have so so much to be thankful for in my life - 2 wonderful amazing daughters and a great husband and loving extended family and friends. Guess I was just having a down day yesterday (luckily I dont have them too often!) I guess this is just all new to ME at the moment and still trying to get my head around all the changes and adjustments that I am having to make in my life. I know how important medication is in treating this disease and hopefully I will be one of those who experiences few side effects! Its great to know that you all care and know what I am going through but I am definitely determined to live a very full and happy life with or without this disease

46YRS female from Australia
DX. Crohns early April 2010
Meds: Pred 25mg tapering, imuran starting today 50mg to start, coversyl 10mg, somac 40mg

Regular Member

Date Joined May 2010
Total Posts : 88
   Posted 5/11/2010 5:45 PM (GMT -6)   
I really do hope the prednisone taper and the new introduction of imuran today will work out wonderfully. I really do. You're lucky to have found this place (the forum) so early on in your diagnosis, I wish I would have known about it 4 years ago when I was first diagnosed!
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.

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