remicade question

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huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 5/12/2010 5:10 AM (GMT -7)   
I recently started remicade about 3 weeks ago, I just had my second infusion on monday and ever since that I have felt like I have been hit by a truck. I started with a fever around 99.2 now they are going up to almost 101. is this something I need to let my dr know about? is this normal or what could it be?
diagnosed 1 1/2 years ago and still trying to figure it out!
MEDS Currently-
Pred 40 mgs
lialda 4.8gms
bentyl 20 mgs
cipro x 2 a day
flagyl x 3 a day
6mp 100 mgs


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/12/2010 6:06 AM (GMT -7)   
I think you really might want to get in touch with your doc to see if you have some kind of infection going on. Good luck and keep us posted. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/12/2010 10:17 PM (GMT -7)   
agreed...can't hurt to check in with the doc.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/12/2010 11:22 PM (GMT -7)   
It is pretty common to run a low grade fever for 23-48 hours after getting your infusion and it is something that should be told to your doctor. I usually run aroun 100 for a day and then it goes away but I use tylenol to help get it under control. Are you being premedicated with anything like benedryl or coristeroids? Some people are premedicated with tylenol and your doctor may have you do this. I am premedicated with benedryl and cortisteroids and usually take a hydrocodone 10 after to help with the body aches.

huntersmom
Regular Member


Date Joined May 2009
Total Posts : 50
   Posted 5/17/2010 6:19 AM (GMT -7)   
Thanks for the responses. I actually had a severe uti and the remicade treatment made it worse and it went crazy. I ended up running fevers of 103 and even one day where they were 104. I had to go to the er cause I was severely dehydrated and my potassium was very low. I'm still fighting these fevers and trying to get them under control but they arent as extreme anymore

diagnosed 1 1/2 years ago and still trying to figure it out!
MEDS Currently-
Pred 40 mgs
lialda 4.8gms
bentyl 20 mgs
cipro x 2 a day
flagyl x 3 a day
6mp 100 mgs

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