I so hope this doesnt make me EVIL but...

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Regular Member

Date Joined Mar 2010
Total Posts : 186
   Posted 5/12/2010 8:38 AM (GMT -6)   
Ok, so first of all I love my mom more then anything... she is my best friend and although she has been thru all my GI issues with me I still feel like she thinks alot of the pain and nausea is in my head.  Well she got so sick yesterday, throwing up, diarrhea and stomach pains ( I hope and pray its just a bug- which she feels better today so thats good) and she said, I can't imagine dealing with this everyday.  So ha- it just made me feel better for her spend a day in my shoes... maybe now she won't think its all in my head!!!
Thanks for letting me vent:)
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck

Regular Member

Date Joined Apr 2010
Total Posts : 76
   Posted 5/12/2010 9:31 AM (GMT -6)   
No one really understands unless they are going through it 24/7 even when they are supporting you. Glad she is feeling better but also glad you feel that someone close has had a tiny taste of life as WE know it !!

Regular Member

Date Joined Apr 2010
Total Posts : 119
   Posted 5/12/2010 11:24 AM (GMT -6)   
I have to agree with missnuts, if someone doesn't feel what we are going through they really have no clue. My husband and older children are supportive but really don't know how I feel. Around January everyone in the house caught a bad stomach virus (and we only have one bathroom). They were better in about a day in a half but they all felt like they were dieing. Of course, for me, it lasted longer and I ended up having to go to ER for IV fluids. I told them all that what they went through is how I feel on a daily basis. I sometimes feel that although my husband is very supportive (and the older kids who understand whats going on) that sometimes they feel it's all in my head and if I just got out of the house I will feel much better. Well, it's hard to just leave the house when I have to use the bathroom all the time :-(

Regular Member

Date Joined May 2010
Total Posts : 88
   Posted 5/12/2010 7:30 PM (GMT -6)   
I sometimes feel as though my mother doesnt understand when I'm not feeling well, and I know for a fact she does, she has had over 36 operations, all before I was 8 years old.. but she hasn't had and real problems with her crohns in years, so sometimes I feel like she forgets what it's like and how hard it is to cope sometimes. :(
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 5/12/2010 7:45 PM (GMT -6)   
My mother is the same way, she NEVER believes what I say about how I'm feeling or how bad it is.  Anyways, she got the flu really bad, stuff coming out both ends at once she had it for like a week and was in the worst mood ever, wouldn't get up out of bed, yelling at people ect ect.  I said, now you know how I feel every day of my life. =]  She hasn't questioned me since.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 5/12/2010 8:46 PM (GMT -6)   
I think the fact that people don't physically see what we go through makes it easier to lessen our problems in some people's minds. My sister, who I love dearly, just doesn't get it. She thinks and makes comments that I'm a hypochondriac...and I keep telling her that hypochondriacs just THINK something is wrong, while I ACTUALLY do have something wrong with me. The problem is that she is very healthy. I wouldn't want her to take CD from me, as I think I deal with it well, but sometimes I think knocking her down with a 24 hour bug would make her appreciate what I have to deal with.

I had to go to my PCP today (not crohn's related) and we were talking about how most Crohn's patients tend to be stoic about their pain, since it's something we have to deal with more than the average person. He was saying that he tries to remember things like that, since people don't always look sick or in pain when they actually are. It was nice to hear a dr understand how frustrating this disease can be!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

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