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mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 5/12/2010 11:27 AM (GMT -7)   
I can't stop being so tired . All day want sleep all day just so hard just even get up do laudry. Been taking vitamins. Trying see help me and give me energy but its not working... My doctor just say fatigue part of crohn's disease.. So does that mean just have live with this?? Cuz seem like I can't ever do anything or go outside and play sports or anything really enjoy stuff . Cuz so tired and weak and sore and in pain all over my body and joints....

krw135
Regular Member


Date Joined Mar 2010
Total Posts : 186
   Posted 5/12/2010 11:41 AM (GMT -7)   
Miranda, I feel your pain. I never have energy. I manage to work 40 hours a week, but aside from that I do nothing! After work I go home with intentions of doing stuff but it rarely happens. I just had my 4th injection of B12 today, and honestly I can't tell much of a difference. My friends have stopped calling me and asking me to do anything bc I always end up cancelling. Between being so tired and fear of getting to far from the bathroom, aside from work I feel like a prisinor at home! I know this was not much help- but just know you are not alone.
I am a 29 yo female, Dx with UC in 97, hospital stays monthly, tons of blood transfusion, bowel rest on TPN, prednisone, asacol, sulfa, imuran, VSP
99- multiple failed remicade treatments, more hospital stays
finally in 2001 had enough and had total colectomy (j-pouch) surgery, 1st step was good, then the reversal was not such a breeze, got peritinitis which was awful!!
the rest of 2001-2006 were amazing!
now having problems again- they are thinking Crohns.- have been on Humira with no luck


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/12/2010 11:49 AM (GMT -7)   
Have you had your iron levels checked? What about vitamin D?

These both can make you very tired if you are deficient. Even if you're taking vitamins, check to see how much iron and D are in your pills, and ask your DR to test your levels.

I take 1000 iu D daily and ferrous sulfate during my menstrual cycle. Last year I was so anemic that it took 3 months of ferrous sulfate pills daily to get my stores up and my hemoglobin normalized.

newfoundsun
Regular Member


Date Joined Nov 2009
Total Posts : 145
   Posted 5/12/2010 11:57 AM (GMT -7)   
I'm tired way too much as well.  Sometimes it feels like it takes too much energy just to breathe.  I think mine is partly the Crohn's, but also tied to my low thyroid.  I'm on meds for the thyroid, and I hope that will end up helping!
newfoundsun
 
http://www.newfoundsun.wordpress.com/  (my blog about this journey I have just started)
 
CD diagnosed 11/12/09
Being treated by a Naturopath who himself has Crohn's.


mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 5/12/2010 12:38 PM (GMT -7)   
Yeah alway been anemia. But the doctor check that and said its finally normal. cuz alway been anemia sense been 13... I had them check my thyroid said it was normal cuz I have hypothyroidism, endometrosis, elipsey, mitral value prolapse, crohn's disease and acid relux disease, mood disorder, ulcers. They can't even ever seem know how treat the ulcers in my mouth there like 24-7. I take prenatal and calcium and vitamin d and b 12 the pill and omega 3 and stuff. But half time take calcium half of it just ends up in the toilet. Just started trying juice see help with energy. I don't know cuz so much I can't eat or drink. no juice or acid stuff or spice or greasy or fatten stuff. cuz whenever have ulcers in your mouth anything eat or drink comes in contact with them and makes them even worse and huge and extremly painful . i use this one stuff just so I don't feel the worse pain whenever brush my teeth

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/12/2010 8:49 PM (GMT -7)   
I don't want to hijack your post, so please see my new one under "Causes of Fatigue"
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/12/2010 8:53 PM (GMT -7)   
i'm always anemic which makes me always tired, but when i forget to take my iron pills and it gets to the point of being severly anemic i suffer from the things that you stated. maybe your iron level just dropped more then normal? I also suffer from adrenal exhaustion and that also causes someone tom be very tired all the time.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/12/2010 10:17 PM (GMT -7)   
Fatigue is very much a symptom of CD. Maybe that's why steriods are Rx'd in part. Checking your blood work good idea. B12 may or may not help. I know there are different types of shots, and that this can make a difference for efficacy. I'll try to get more info.

Of course talk to your doc about this, but I find this is one symptom I get little MD response with, why is that? It's one of the most debilitating.

I have found ways out of it, a tea called Flor Essence (or Native Legend Tea or Essiac), this had helped me over the years. The best is to brew and can it yourself. I found it helped my appetite too and it's tasty. I've taking it with meds, no problem, Keep in mind this is my solution, and I am not a doctor, though it was suggested to me by an ND.

I would also suggest getting your adrenal function test, it's a 2 par test. apparently.

(Suggestion for mouth ulcers, a multi spectrum, mid price range, vite E) chew a cap 2 'x day, one right before bed -- test to make sure it doesn't make worse, but it helps me immensely. Oh I spit the cap).

In the mean time, if you have to sleep you have to sleep. I feel less guilty about that if I at least get out for even a short walk...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


mirandadawn
Regular Member


Date Joined Apr 2008
Total Posts : 90
   Posted 5/13/2010 11:55 AM (GMT -7)   
They said my b12 at 250. I don't know thats normal or whatever. Cuz they said b12 go up to like 1,500
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