Cimzia and skin infections---FRUSTRATED

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firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 5/13/2010 6:04 AM (GMT -7)   
Good morning! I am so glad I this forum is available. I get more info here than anywhere else.
 
I am currently on Cimzia and have been getting boils/abscesses in the vaginal, rectal, and pretty much every other area down there. My GI said it is a skin infection due to being on Cimzia because it is lowering my immune system. He said it is a chronic staph infection. He basically told me it is either deal with this or stop Cimzia and deal with Crohn's inflammation. I am allergic to Flagyl and had to stop taking Cipro due to nerve damage it caused. He said there is no other treatment for these except Flagyl or Cipro on a permanent basis, which I cannot take. When I asked him if he would feel comfortable walking around with a chronic staff infection he said no, but that I just had to learn to live with it because it is part of having Crohn's. These abscesses/boils get pretty big and make it difficult to walk and sit. Even when they are small they hurt like hell.  But more worrisome to me is that it is a staph infection and I think those can cause many serious issues, especially if they spread to other areas and to the muscle.
 
Has anyone ever had to deal with these types of infections while on biologics? If so, has anyone found an antibiotic or other treatment that got rid of the infection? I get an abscess/boil and it has to be lanced and drained. Then as soon as one clears up, another forms.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/13/2010 7:08 AM (GMT -7)   
I have to admit I deal with alot of boils, abscesses, and HS in the the groin area. The ones that are the diameter of quarters I end up having to be lanced. The best thing I have found so far is to use antibac soap (which generally I would not recommend, but for this it is best I have found), use a salicylic acid as a splash around the entire area (I go thru about a bottle a week of the neutrogena acne stuff), plus I also use a acne lotion (it will bleach your clothing and bedsheets, so I would recommend using old ones when you are going thru this).

I hate it when they are so deep they burst under the skin and end up as salettites
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/13/2010 8:17:53 AM (GMT-6)


firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 5/13/2010 7:20 AM (GMT -7)   
MMMNAVY-

Thank you so much for your reply and information. I will go out today and get those products. I never even thought of using acne medicine, but if it works it works : ) That's why I love this forum. So much useful info. What the doctors could learn by reading this forum!!!
 
I have not had them burst under the skin yet. That sounds excruciatingly painful.

grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 5/13/2010 9:25 AM (GMT -7)   

I agree with Navy,

I use to have this same problem all the time.I keep a bar of good ole' Dial soap (the yellow kind) in my shower specifically for washing the area down below. This seems to keep most of them away, but if I do feel something showing up, I start using acne medication. It may still pop thru, but I havn't had a really bad one in ages...

My Dr. recommended this after I started getting absesses in the Bartholin's gland. He said that normally this area is self cleaning for the most part, but with all the other stuff us crohnies go thru, good ol soap and water wouldn't hurt. Just make sure you rinse well.


Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


Iram
Regular Member


Date Joined Jul 2003
Total Posts : 145
   Posted 5/14/2010 6:30 AM (GMT -7)   
Yes, I have been also getting these sort of boils and other infections and it is probably due to being on remicade for me. Normally, most of my boils are in the armpit area and I had one in the neck, thankfully both of them responded to antibiotics, but the problem is they keep coming back and I am not sure I want to keep taking antibiotics. So, I will follow the soap suggestions, I already use anti-bac soap pretty rigorously.

thanks for the suggestion.

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/14/2010 11:29 AM (GMT -7)   
I don't have this problem but am on cimzia so I appreciate the warning and the information on what to do if it comes up. You all rock!

SSG Mommy
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/14/2010 11:02 PM (GMT -7)   
I am about to start Cimzia in a few weeks. These posts were very helpful.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/15/2010 5:18 AM (GMT -7)   
HS and foliculitis are basically about the same thing (as in within the related classes of derm issues), just manifest in a slightly different ways.
I have used antibodics in the past for it, but I wonder if it was because I shooting oral meds thru too fast.
But very good to know there is a shot for it.
I used the crater term too and I am embarrassed about how nasty the scars look.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


firecracker1
Regular Member


Date Joined Apr 2007
Total Posts : 208
   Posted 5/15/2010 10:00 AM (GMT -7)   
Excellent info! Thank you so much.

Aimee =)
Veteran Member


Date Joined Jun 2004
Total Posts : 1020
   Posted 5/15/2010 2:03 PM (GMT -7)   
I get them all the time, but have since before I was even diagnosed with Crohns. When my Crohns is under control (usually thanks to Remicade, Humira, or Cimzia) they go away. Y'all seem to have it the other way around!

For me, the fix is to let that area "breathe" a lot and get my Crohns flare under control. They are really painful, and can put a damper on your lifestyle if you know what I mean, so I hope you find a fix soon =)

redrock
New Member


Date Joined Oct 2011
Total Posts : 2
   Posted 11/5/2011 7:53 PM (GMT -7)   
I somehow got staph infection - draining ulcer like things. I've been taken off Cimzia and Mtx. Anyone know timeline to heal?

Wonderwen
Regular Member


Date Joined Mar 2009
Total Posts : 52
   Posted 11/5/2011 8:12 PM (GMT -7)   
I've had two on my leg and have a third one developing (I'm on HUMIRA). My doctor suggested that I not shave anymore. Since they are on my legs and it is winter, I am not shaving, but I have also thought about waxing. He also told me that if I do shave, only use a razor once. So I bought the cheap disposables for a while. I had to go on two rounds of oral antibotics to clear them. This thrid one is small, and I have been putting Tea Tree Oil and will see what happens.
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