sleep-please help

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tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/13/2010 8:28 AM (GMT -7)   
hadnt been able to sleep since 4/13/2010.  MY gi
prescribed ambien, 12 MILLIGRAMS, i AM SCARED TO TAKE BEEN reading side effects i am already on prednisone and asacol weening off pred.
he also prescribed buspirone for ant anxiety, which i only took twice and didnt help, he said i need to take it longer
to get in my system, i dont want to take the AMBIEN
AND BUSPIRONE AT SAME TIME  if u had a choice which one would u take. also would u just take a half pill of the ambien to try it,
are there any other maybe over the counter sleeping pills that might be as good without so many side effects,
buspirone is similar to xanax
thanx tigerpawn

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/13/2010 9:26 AM (GMT -7)   
We are not doctors here, just fellow Crohns sufferers (patients), and I do not feel that we are qualified to be answering these types of medication questions. I think you really need to get back in with your doctor and discuss this with him, since he is the one with the medical degree. Good luck!

Rule #20 from the forum rules. Do not use the forum to give professional medical advice. 

 


Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/13/2010 9:52 AM (GMT -7)   
I agree. If you have medcation issues go back and ask your doctor. they are the only onse qualified to answer those questions.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/13/2010 10:41 AM (GMT -7)   
I was merely asking for suggestions, not a prescription,
just something to bounce off other people on forum,
I have no immediate family within 900 miles,
sometimes getting through to your healthcare professional,
can take some time, then again, i feel like i might have botherd him enough, maybe it my social anxiety,
I am sorry I POSTED,
NANNERS, I think I NOTICED in some previous post u have quite a big family, thats a good support group, basically all I have is the forum
thanx anyway
tigerpawn

MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/13/2010 10:51 AM (GMT -7)   
Tigerpawn,
Why don't you try the pharmacist, they are experts at answering these questions, really. I have no experience with these drugs, so I can't share from that perspective, but a pharmacists can tell you how to combine them. Trust them.

And Hon, the steriods are playing with you, I can read it in your posts. Remember on roids everything goes to 11, our emotions, our anxiety, and our reactions.

Please try to give yourself a break and find anything else to occupy your mind, lame tv will do.

Like you, I've done CD alone, it is hard and you do need support. Do you have some friends you can talk to and spend time with, you'll have to explain, calmly (roids again) what's going on for you, but good friends will get it.

Don't stop coming here, but keep in mind we are not doctor's, our support is here but it's limited to some degree.

So, tell me, what do you like to do? Do you play an instrument, draw, read, video games, movies, ... what?

I read, play bridge online, watch lame tv and good tv and movies, I'd play my guitar but my shoulder is still messed (missing my guitar) so instead I put on my favorite music and sing as best I can without stomach muscles.... It helps...
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 5/13/2010 11:20 AM (GMT -7)   
I was going to suggest talking to a pharmacist also. They are much more accessible than doctors, and sad-to-say, I know they are often more familiar with drug interactions/side effects, etc than the doctors who prescribe them.

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 5/13/2010 11:35 AM (GMT -7)   
tigerpawn- I am so sorry you are going through this and I can definatly tell you I know EXACTLY how you feel because I suffer from severe anxiety and panic disorder. Everytime the doctors prescribe a new medication for me I am on the computer looking at all the side effects (which is not a good thing at all when you have anxiety). I take Xanax 1mg. three times a day for anxiety and have been on that dose for about 6 years after my father passed away. I see we are not allowed to give medication advice and I don't want to get in trouble. I have always found that when I am really nervous about taking a medication I will talk to the doctor and also ask the pharmacist. I will tell them I have anxiety disorder so I don't look like I am so crazy about why I'm freaking out over the medication. The pharmacist are always very helpful and once I start the medication, so far, they have been correct and I do fine.

I have to start on steroid and 6mp next week and I am freaking out. I think I am way more nervous about the steroid because I already suffer from anxiety and panic attacks and from what people are saying about them it seems like I am going to end up the way I was years ago when I couldn't even leave the house because I would have severe panic attacks. I don't have any family ouside of my kids and husband who support me as much as they can. I also have tried buspirone many years ago but it didn't work for me at all. One thing I am trying to learn what to do is not to read side effects because that will freak me out. I know you already read them but take a look at the side effects for tylenol and you will see stuff that is scary too. I'm not sure if I am allowed to leave you my email and I don't want to get kicked off the forum because it has been very helpful to me in the short time I have been on but if anyone knows if I am allowed to post it please tell me and if you would like to email me I would have no problem with that at all.

How long have you been on the steroid? what dose are you on? did you start feeling this anxious after the steroid or is this normal for you? I was on Entocort EC (a milder steroid, well it works different and only about 10% goes into the blood stream) and I was ok for about 4 days and then on the 5th night I couldn't sleep, started having anxiety, and then very bad panic attacks that lasted till the morning hours. I believe that lasted for about a week or so and then the symptoms went away. I definatly think it was from the steroid (entocort) so that is why I am so nervous to start pred. (steroid) but I am going to make sure they don't start me on a high dose and I pray that helps.
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago, I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula, Medications I have taken for crohn's is..... Asacol and Entocort EC......Currently taking....Asacol
Suppose to start Steroid and 6mp next week (May 18, 2010).....I'm so scared :-(
Seton drain was put in on May 4, 2010
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(


gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 5/13/2010 11:50 AM (GMT -7)   
I agree that having another appt with your doc makes the most sense. You have a lot going on. I'm not giving you medical advice, but I just wanted to let you know that I normally have no underlying history of depression or anxiety disorder, (although I am probably a neurotic worrier), but when I needed high doses of prednisone, ,my doc gave me Xanax to go to sleep. I would have been up all night without it!!!!! Please try not to take Nanners advice the wrong way. She just wants to make sure you get safe and correct information. Definitely keep posting. I live in a small town and I don't know anyone else with Crohn's. This forum helps me keep my sanity! Good luck to you.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/13/2010 12:01 PM (GMT -7)   
Something else to understand, your not sleeping is messing up your perception and guess what else lack of sleep causes, anxiety and panic.

Between the steriods and 2-3 hours of sleep a day I became manic to some degree. The thing was, I understood the effects were not me, having miss-spent some of my youth, I knew what was the drugs, what was lack of sleep and what was me. I focused on me, and did my best to get help with the rest.

Follow the pharmacist's advice, and give over to sleep. You might need a while of lot's of sleep to recover, and you will recover.

Right now you need to sleep more than anything, hang in there, this will pass.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/13/2010 12:55 PM (GMT -7)   
I would definitely talk with your doc.
This is in part about being proactive in your health care.

Should you be upsetting yourself with the what if's? In order to deal with them you obviously need to develop a safety plan and have good communication with your medical team. I do not have relatives close and I find some of them to be untrustworthy. So my safety plan has been to get an emergency button, which really does help with dealing with the what if's. Plus if I am really concerned that if I am going to have an interaction that I am with someone that can call for help with me or I make an appointment at my doctor's office.

So my next question is what is your safety plan?
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/13/2010 3:14:56 PM (GMT-6)


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/13/2010 1:26 PM (GMT -7)   
Tigerpawn,

I actually don't have alot of family near me, just my husband. But I do agree with the others I think the Pred is really effecting your anxiety. I know it does it to me too.

But these are not questions, we folks on the forum can answer for you. Please do contact either your doctor or your pharmacist. I would hate for you to be hurt, by someone inexperienced giving their opinion, and things getting even worse for you.

Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

tigerpawn
Regular Member


Date Joined Apr 2006
Total Posts : 346
   Posted 5/13/2010 2:15 PM (GMT -7)   
god bless each and everyone who have answered,
and I say that with TEARS rolling down my eyes,
TO ME YOU ARE FAMILY.
thanx
sincerely
tigerpawn
 

onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 5/13/2010 3:30 PM (GMT -7)   
I take Ambien every night, and it is a godsend if you're lacking sleep. I tend to overreact to any and all medications, but surprisingly, I have not had any side effects at all from it. I take a small dose, only 5 mg. If you are really concerned, as others before have said, talk to a pharmacist or a doctor. Good luck!
Diagnosed with Crohn's in 2008 at the age of 22. Also dealing with gastroparesis & GERD.
Currently on: Remicade, Imuran, Pentasa, Tramadol, Welchol, Phenergan, Ambien, Reglan, Prilosec, Hyoscyamine


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/13/2010 3:41 PM (GMT -7)   
I am so sorry you are feeling this way i do agree you need to talk to the doc n the pred is wearing on you very much imho
know we are here and hey no worries bout tears
sometimes its great to just let them fall
it will be okay
keep us posted plz
huggs
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

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LYN


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/13/2010 4:29 PM (GMT -7)   
I know that the prednisone can also affect your sleep...At higher doses, I was lucky to get 3 hours of sleep at a time...
We're here from you...and I too have been through the emotional stuff that steroids can do...

I am another who takes ambien almost nightly (it is to conteract another medication)...so if you are worried, call your doctor or pharmacist...
"The earth laughs in flowers"


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 5/13/2010 7:05 PM (GMT -7)   
Hi Tigerpawn,

As others have said, none of us are doctors. All I can do is relate my experience, but clear it with your doctor before doing anything.

That said, there are the so-called "first generation antihistamines" sold across the counter which can be used short-term as sleep medication. Which ones are available depends on where you are in the world. In the USA, the most powerful one sold is doxylamine succinate. It's non-addictive, but if you use it for a long time, it can have side-effects and also becomes less useful as your body adjusts to it. In my part of the world (Taiwan), it's not available, but meclizine is and it works well.

You should read Wikipedia about these drugs - gives you a good idea of the possible side-effects. If you experience these side-effects, you may need to discontinue usage, so it's worthwhile educating yourself:

http://en.wikipedia.org/wiki/Doxylamine

http://en.wikipedia.org/wiki/Meclizine

Wikipedia also has an entry for zolpidem, which is the generic name for Ambien:

http://en.wikipedia.org/wiki/Zolpidem

Never mix zolpidem with alcohol. There have been cases where people do that and wake up jail, because they essentially become hypnotized and go outdoors, drive around, get into a car wreck, etc, and don't even remember it.

Some time back I did a post about using antidepressants as sedatives. At first I was enthusiastic about this, but after about two weeks of usage, I experienced one particularly bad side-effect (cardiac arrhythmia) and immediately discontinued. Antidepressants have a very long list of dangerous side-effects, and I now would not recommend taking them. Anyway, doctor's prescription is required.
Crohn's since 1988
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