steroids - how long to work?

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butterflybe
New Member


Date Joined Oct 2008
Total Posts : 10
   Posted 5/14/2010 4:20 AM (GMT -7)   
Hi
 
my 2.5yr old has crohn's it has been a battle for the last few months. ANyway she has joint pain as well, so dr changed from pentasa to sulfasalazine and uped the doses of flagyl. Things are very up and down and her legs and tummy are sore, her behaviour is crazy as well. Anyway he rang saying she also had a bug in her poo and is worried the flagyl isn't killing it as she has had it so much over the last few years. But before I knew that she started the steroids (5 days now) and still no real improvement still very up and down. I am waiting for the second poo test to come back, but dr said this bug in her tummy makes crohn's worse. SO I am now wondering the sterioids are a waste of time since there is something else in there too. Once I made the decision to start steroids I thought it was going to be some magic solution, but turns out it hasn't done much, am I expecting too much? How quick does it work? Its only a 7 day course and 5 days have been taken.....
 
Thanks

sweetnakira
Regular Member


Date Joined Apr 2010
Total Posts : 119
   Posted 5/14/2010 7:37 AM (GMT -7)   
I am so sorry to hear about your daughter, am I reading correctly.....she is only 2 1/2 years old? I have children and I pray they never have to suffer from crohns disease. I have been concerned about my 4 year old for about 2 years because he never has had a formed bowel movement and he seems to go shortly after eating. I asked his doctor about it and she just made it seem as though I was paranoid because I have crohns and said it was to early to test him. I recently got a call from his school and the social worker mentioned to me that when he comes into school that he complains about his stomach hurting but eventually will get into his routine for class. She knows I have been going through a lot with my health and was thinking he might be imitating me but now I am very much concerned.

I am so sorry to ramble on, I also am very sorry that I don't have an answer to your question regarding the steroid. I am suppose to start steroid and 6mp next tuesday and have so many questions regarding steroids myself. I do know that they are suppose to help pretty fast compared to the medications that you have to wait months for. In my opinion I would think she would need them a little longer then a week but like I said I really don't know. There are a lot of people on here who have a lot of knowledge and I hope someone will come along and answer your question. I hope your daughter starts to feel better very soon.
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago, I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula, Medications I have taken for crohn's is..... Asacol and Entocort EC......Currently taking....Asacol
Suppose to start Steroid and 6mp next week (May 18, 2010).....I'm so scared :-(
Seton drain was put in on May 4, 2010
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/14/2010 10:28 AM (GMT -7)   

I tried to post a response earlier but it must not have worked, so let's try again.

It can take a few to several days for steriods to start working, but I would think you should be noticing some improvement after 5 days.  Even though it's only a 7 day course, steroids are like antibiotics in that they can continue to work once you've stopped taking them.  If you haven't noticed any improvement in a few more days, I would check with the dr.  Maybe the dosage wasn't high enough or the stomach bug is keeping them from being as effective. 


Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/14/2010 11:11 AM (GMT -7)   
butterflybe: Good Lord, I too am sorry to hear of your little one's battle with this. Is she under the care of a pedidatric gastro doc because if not, that would be my first piece of advise. The second one is the idea that she's too young to test - is this doctor kidding? There are blood tests that can be done to show markers for crohns as well as scans - testing doesn't have to mean a colonoscopy to get some idea as to what's going on. This disease is just too vicious to let go for several years putting bandaids to the symptoms and prolonging her misery when there may be something that can help her.

butterflybe
New Member


Date Joined Oct 2008
Total Posts : 10
   Posted 5/18/2010 8:20 PM (GMT -7)   
Hi
 
Thanks for your replies, sorry for my slack time in responding.
 
Cleo35, she is seeing paediatric gastro.
 
 
zenawp, I am not really sure if the dosage was high, it was 3ml and she is 15kgs. I spoke to the dr again on Sunday and the steroids have been extended for another full week then another two weeks of weaning off them. We are starting to get some results, monday/tuesday she got up in the morning without crying that her legs were sore. But today she said they were sore again, but still better then they have been. Her emotional state is off the planet, and she still has lots of poo action happening. So I think that progress is finally been made after 2 months of this crap. But when she had two pretty good days I sort of though it was over and she is coming into remission but today not so good, can it still fluctuate like that with steroids????
 
sweetnakira, my daughter had really bad reflux as a baby so they decided to scope her (not a full colonoscopy but part one and a endoscopy) at 13 months, seh was pooing heaps and they thought it was food allergy, they found ulcers that were consistant with crohn's (biopsy report) but I still didn't have the diagnosis by then as they thought maybe it was bad gastro bug or something, but ever since she has flared up every 6-12 weeks and now with her joints going too I have a unofficial diagnosis, he needs to do a full colonoscopy to find out exactly what is happening but we are trying to put it off a bit longer. There are lots of markers as well like her liver function gets stuffed up the CRP is high she had full on anemia too. the specalist said that he once diagnosed a 4 month old, so definately get a second opinion.
 
Anyway thanks and fingers crossed for my little princess
 
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