What is making me so tired all the time?

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isergodur
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Date Joined Jan 2009
Total Posts : 818
   Posted 5/15/2010 3:57 PM (GMT -6)   
I can barely stay awake for one minute.

I did take Humira last Thursday is it possible that Humira is making me so sleepy?
other then that I am taking Asacol, Cipralex and the pill.

My disease is not very active at the moment and all blood tests are super good.

I did sleep 11 hours last night, I know that if you sleep to much you can get tired, but this is not like that at all!!

I am just exhausted..
25 year old female from Iceland.
Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

My wonderful dogs :) ~ www.poodle.is ~


sammies
Regular Member


Date Joined Feb 2008
Total Posts : 493
   Posted 5/15/2010 4:33 PM (GMT -6)   
the humira did make me quite tired--often, I'd get sleepy the 2nd day after I took it. Remember, with crohn's our blood labs could change quickly so if you continue to feel tired, might be good for a quick cbc or a round of iron saturation tests. How about diet? Have you had a lot of sugar? Are you taking in enough protein? Hope things improve!
25 years with Crohn's/colitis; fistulizing crohn's; ileostomy and proctocolectomy; propranolol, xanax, procrit, ursodiol; anemia of chronic disease, PSC, kidney issues from crohn's as well


Matthew
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Date Joined Oct 2004
Total Posts : 3926
   Posted 5/15/2010 6:09 PM (GMT -6)   
Ok, so no anemia? This has been a recent issue with me. Near complete exhaustion, this winter.

Matthew

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/15/2010 6:25 PM (GMT -6)   
i was severly anemic and am giving self b 12 shots per doc approval n knowledge
im not as tired as i was in all honesty
let us know how yr doin
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

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MoobyDoo
Regular Member


Date Joined Sep 2009
Total Posts : 212
   Posted 5/15/2010 8:28 PM (GMT -6)   
Did the B12 shots help with the anemia, or are they used for an energy boost?  I have an oral b12 spray for my daughter. Maybe I should give it to her more often.


  • dunny2
    Veteran Member


    Date Joined Jan 2007
    Total Posts : 3200
       Posted 5/15/2010 8:43 PM (GMT -6)   
    B12, is not for anemia. it's prescribed when b12 levels are low, which is often the case with this disease. It often can
    boost energy levels for some people. For me however, this is not the case.
    It might be Humira making you sleepy, but often the disease itself can cause fatigue, even when labs look good...
    Vicky

    Too many years with CD
    Two bowel resections, several obstructions.
    Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
    B12 Shots bi-weekly

    Laughter is the brush that sweeps the cobwebs from our hearts...


    isergodur
    Veteran Member


    Date Joined Jan 2009
    Total Posts : 818
       Posted 5/15/2010 9:29 PM (GMT -6)   
    Matthew said...
    Ok, so no anemia? This has been a recent issue with me. Near complete exhaustion, this winter.

    Matthew


    I have no idea :S

    My GI is really weird when it comes to iron deficiency.

    But I will ask my regular doc to do a total blood test when I meet him this week.
    25 year old female from Iceland.
    Diagnosed with : Endometriosis march 2007, Anxiety disorder august 2007, CD/UC they don't know witch October 2008, Autoimmune Hepatitis in July 2009
    Medication - Humira, Asacol, Librax, Cipralex and Cerazette.

    My wonderful dogs :) ~ www.poodle.is ~


    Aimee =)
    Veteran Member


    Date Joined Jun 2004
    Total Posts : 1020
       Posted 5/15/2010 10:07 PM (GMT -6)   
    My first guess was iron... man, I can barely function when mine get low. Thankfully my GI is very proactive and sent me straight to a Hematologist for regular monitoring. I'm on weekly infusions right now but hopefully after 4 we will see a boost and I can take a break for awhile.

    I would definitely ask your PCP to have some basic labs run if your GI won't.

    Wolfie40
    Veteran Member


    Date Joined Dec 2008
    Total Posts : 947
       Posted 5/16/2010 7:29 AM (GMT -6)   
    Ever since I started Humira, I get really fatigued daily. It could be that I'm getting older or that I'm not exercising that much either. I just know that I'm shot on the weekends and just want to rest.
    I am going to my reg doc for a complete physical and have everything checked including diabetes test. I'll let you know if my levels are low.
    Diagnosed with Crohns in 2001
    First and hopefully last Ileocecectomy 2/18/2009

    Medications:Humira,  Asacol, FolicAcid,  Multivitamin, 1000mg Calcium, Vitamin D, Probiotics, Pepcid Complete, Questran,  Monthly B-12 injections.

    Living a Great life with my Wife and my two Chocolate Labs
    Hunter & Hailey.
    I love them dearly.


    Nanners
    Elite Member


    Date Joined Apr 2005
    Total Posts : 14994
       Posted 5/16/2010 9:22 AM (GMT -6)   
    Well I am in remission, per docs not anemic, but borderline anemic, but I am exhausted all the time too. I think its just part and parcel of having this dd. But I have also heard that many on Anti-tnfs are fatigued for a couple days after they get their injections.
    Gail*Nanners* Co-Moderator for Crohns Disease 
    Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
    *Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

    jpnutritionfirst
    Regular Member


    Date Joined Apr 2009
    Total Posts : 362
       Posted 5/16/2010 10:26 AM (GMT -6)   
    it's so strange than an antibody against TNF could cause fatigue
    Crohn's Colitis diagnosed 6/08
    Organic SCD since 4/09
    Remicade since 6/09
    Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D + zinc + Barlean's fish oil
    Remission


    tsitodawg
    Veteran Member


    Date Joined Sep 2006
    Total Posts : 845
       Posted 5/17/2010 2:14 AM (GMT -6)   
    Have you had your vitamin D level checked? I know that many of us are deficient in vitamin d and you will notice a difference with a supplement, I did. Also I know that I was low on testostorone due to the vitamin d and TNF meds and getting a shot each month has worked wonders at helping me. I realize that you are a girl so that same shot would not work for you but you could be low on estrogen. I read in you bio that you have endometriosis and that could really change your hormone levels causing mood swings and fatigue. I have a sister that had this problem due to P.C.O.S. and having estogen help her out big time. Have you been on prednisone recently? Sometime despite tapering our bodies still go into a withrawl syndrome and fatigue is the biggest symptom.

    Grandpato2
    Veteran Member


    Date Joined Dec 2009
    Total Posts : 681
       Posted 5/17/2010 2:51 AM (GMT -6)   
    Dunny 2 Lack of vitamin b-12 does indeed cause anemia, pernicious anemia. Isergodur I had trouble with asacol causing fatigue at a dose of 2 times 400mg twice a day. So total of 1600 mgs caused fatigue. I cut out one pill a day, now at 3 times 400 = 1200mg a day and poof goes the fatigue. Ask your dr. if you can try reducing your dose to see if you have any reduction in your fatigue. I noticed a difference 2 days after the reduction. Good luck!
    Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


    dunny2
    Veteran Member


    Date Joined Jan 2007
    Total Posts : 3200
       Posted 5/17/2010 9:45 AM (GMT -6)   
    Grandpa, you're so right. I had forgotten about the pernicious anemia. I don't know how, because the docs were
    concerned that my levels were so low that indeed that was the case.
    Thanks for the reminder!!
    Vicky

    Too many years with CD
    Two bowel resections, several obstructions.
    Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
    B12 Shots bi-weekly

    Laughter is the brush that sweeps the cobwebs from our hearts...


    cleo35
    Regular Member


    Date Joined Feb 2007
    Total Posts : 430
       Posted 5/17/2010 10:32 AM (GMT -6)   
    I take Fe Gluconate every day - and believe me I notice it when I forget to take it for a few days. B12 has nothing to do with anemia. Fe Gluconate is much easier for my system to handle as opposed to regular iron tablets. My daily "general" vitamin doesn't even have iron it because it's so rough on my disgestion.

    Ashworthml
    Regular Member


    Date Joined Jan 2010
    Total Posts : 222
       Posted 5/17/2010 11:47 AM (GMT -6)   
    I am anaemic and take iron tablets, as well as B12 injections, which I have just had on friday and I feel really tired this week, and its also not from too little sleep as I have been getting 10 hrs a night lately.Although I think I am still flaring slightly and am also back at work, my 2nd week back now so that might add to the tiredness as I had not been at work since february due to my flaring constantly!
    I'm not sure about the humira as I have never been on it, but usually after my B12 injections I'm fine.
    Maybe look into taking more vitamins if your not taking any supplements atm, ask your doctor to recommend some for you,this might boost your energy too.
    Good Luck!
    Michelle 40 years old
    Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
    Bowel resection 2005
    medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
    loperamide 2mg (prn - take as many as 10-20 a day)
    calcium tablets, multivitamin tablets, Omega 3
    Ferrous sulphate(anaemia)
    levothyroxine (thyroid)
    questran light (3 sachets/day), 3 monthly B12 Injections


    Grandpato2
    Veteran Member


    Date Joined Dec 2009
    Total Posts : 681
       Posted 5/18/2010 12:44 AM (GMT -6)   
    cleo35 try googling pernicios anemia and then come back and tell me that b-12 has nothing to do with anemia. Without b-12 the bone marrow can not make hemoglobin.
    Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


    mtgman
    Veteran Member


    Date Joined Mar 2005
    Total Posts : 1285
       Posted 5/18/2010 7:48 PM (GMT -6)   
    i had my 3rd remicade infusion yesterday and i'm BEAT today...work was horrible. but i also found out my blood count is really low so i think that has something to do with it also...need to call doc tomorrow...was trying to be a trooper but that's just stupid i decided.
    35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
    Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
    In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.

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