Pentasa question and happiness

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/16/2010 5:28 AM (GMT -7)   
Ok.. so going with a bright wonderful spot today as I have had my first somewhat normal bowel movement since Christmas.. not diarrhea. I am very elated.. strange but true...

So I am down to 15mg of Prednisone and taking Pentasa 4 times a day, 2 pills each... just started that on friday. Also still taking probiotics. My joints are killing me but my stomach is not feeling as bad as it did... and I am running to the bathroom less.

Pentasa doesn't work that quickly does it?

I am grateful....just grateful for whatever happened... I even enjoyed my family outside last night...sitting around the firepit... watching fireworks from a rally nearby.. just enjoying my backyard..it was just nice to be able to sit outside with them...small things =)
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 5/16/2010 5:39 AM (GMT -7)   
Glad to hear you are feeling better.  I started Pentasa a year ago when I was diagnosed - no change.  I then went on to Entocort which was wonderful but back to square one when I came off them.  Since then I have had to go onto Pred and Methotrexate and am waiting to start Remicade.  I believe Pentasa helps calm inflammation but I had no 'wondercure' reaction to it.  Everyone is different though.  At least when you have a condition like ours you do learn to make the most of the good days and appreciate them - I went shopping out of town yesterday yipee !! Spent most of today so far in the loo though - thats life !

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/16/2010 7:19 AM (GMT -7)   
I have been in remission for the past 5 years and solely maintained on Pentasa's sister med Asacol the whole time. For some of us luckily the 5 ASA's have worked and gotten us out of flares. Not all can take them, so enjoy the fact that you are able to use such a light Crohns med. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

JennA1300
New Member


Date Joined Jan 2010
Total Posts : 4
   Posted 5/16/2010 1:22 PM (GMT -7)   
I don't know about other people but for myself Penstasa was an almost immediate turn around for me.  I started it in January of this year, same dosage as yourself, 4 a day 2 at a time, the first two weeks I suffered the side effects, but after that I've been good.  I'm far from controling my disease, just got into a specialist clinic in my city so I'm hoping he'll give me better results.  But long story short, it worked that fast for me!  In two weeks I'd gone from severe daily pain and D 7 - 8 times daily to a fairly normal life.

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/17/2010 2:49 AM (GMT -7)   
i have been on pentasa since before my op 4 years ago, or round about then and have always been on 8 tablets a day, 4 twice a day, and still had the flares etc and had to be on prednisolone, i am still tapering down atm,yet again but managed to get to 5mg but i know myself I am still not right.I went from the Big D everyday for 4 years even after the op, to having solid stools and constipation,and now i just dont know what my bowels are going to be like everyday. Sometimes I am running with urgency 4-5 times a day, sometimes more and other days I dont go at all and only go after about 2 days. Weird this disease!!!!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 5/17/2010 5:08 AM (GMT -7)   
Like nanners...I am a lucky one who is maintained on Pentasa as my only inflammatory med. I was a bad patient and neglected taking mine for a long time. I jsut started back on regular dosing and found relatively quick relief myself.
It all depends on the individual. My hope for you is that Pentasa can keep you maintained...it's great to be able to stick with such a mild med for me!
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa, cholestyramine, iron and vitamin supplements. 
Prepare for the future, but live in the present


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/17/2010 10:03 AM (GMT -7)   
I agree, Pentasa has worked well for me. I can't seem to remember to take it 4x/day tho! I'm lucky to get in 3. What is the secret to remembering?

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/17/2010 10:13 AM (GMT -7)   
i take it with meals and bedtime...thats the suggestion that the gi dr gave to me.. said its the easiest way to remember.

its not quite working today.. just a moment in time that i treasured =) but maybe in time this will work.. just needs more time.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


beave
Veteran Member


Date Joined Mar 2007
Total Posts : 1091
   Posted 5/17/2010 11:33 AM (GMT -7)   
In spite of what some doctors will tell you, Pentasa does not need to be taken 4x/day. Take it 2x/day if you have trouble remembering to take it 4x/day (example: Instead of 2 pills 4x/day, take 4 pills 2x/day). Research has shown no benefit in taking it 4x/day versus 2x/day.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/18/2010 6:54 PM (GMT -7)   
beave, that is fascinating. I will bring this up to my GI. I can get 3g/day pretty regularly. So if I just add a capsule morning and night I'll have my 4g/day.

It's a time release thing, tho, so I think it should be distributed somewhat evenly over the day, right?

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2010 6:38 AM (GMT -7)   
I take the sister med Asacol and I take it in two doses also. I take 3 tabs in the am and 3 tabs in the pm. I kept forgetting the afternoon dose, so my doc said it was okay to take it twice a day instead. Hope that helps.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
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