Thoughts on Diagnosis

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Kaybee6698
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/16/2010 4:54 PM (GMT -7)   
Hi. I'm new to the forum and not sure this is where I should be. I was diagnosed with iron deficient anemia a couple of years ago. In the past 6 months or so, I have developed terrible joint pain in my hips and pain in the lower back. I also have bloating and sensitivity in the stomach.

My gastroenterologist ordered a colonoscopy that didn't show anything abnormal. Then I did the PillCam, which showed about 10 small ulcers/abrasions in the upper part of my small intestine. He then did an upper endoscopy to get a better look at the ulcers to confirm Crohn's, and they seemed to have disappeared. I would have been thankful for that, but I still have all of the symptoms.

He biopsied the area where the ulcers were and ordered a series of blood tests that I hope to hear from this week.

What do you all think? Does this sound like Crohn's or something else? I don't have any of the diarrhea. Any advice on other things I should get checked? I'm so sick of tests. I'm ready for a diagnosis of some kind.

Thanks so much for you input.

Kaybee6698

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4095
   Posted 5/16/2010 7:53 PM (GMT -7)   
I'm not a doctor, but it does sound like Crohn's. Try to hang in there while you wait for all of your test results. If it is Crohn's you may get on medication and feel better soon. Good luck to you
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


CrohnieToo
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Date Joined May 2003
Total Posts : 9448
   Posted 5/17/2010 7:29 AM (GMT -7)   
If you end up w/yet another "non-diagnostic" result, symptoms are suspicious enough I would ask to try Pentasa to see if ANY difference or improvement of symptoms occurs. Pentasa is one of the more relatively "benign" medications for Crohn's.
My computer says I need to upgrade my brain to be compatible with its new software.


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/17/2010 9:57 AM (GMT -7)   
Kaybee,
 
I was iron-deficient last year.  I already know I have Crohn's, but I asked my GI for another scope (stupid, stupid me!) because I wanted to make sure there weren't new bleeding ulcers in the colon.  He found nothing.  We talked about the pill-cam, but elected not to do it.  I already take Pentasa, and that has eliminated the diarrhea, but I still have inflammation in other places, and joint pain, so clearly the IBD is not in remission.
 
I think the idea to try Pentasa is a good one.  I was taking Nexium, too, because I had inflammation in the esophagus and stomach - that might be something to think about for yourself.  You might also consider going lactose-free to see if that helps with the bloat.
 
I take iron supplements, but only when I'm menstruating.  They bother my bowel too much to take regularly.  I am not anemic currently, so that seems to be working.
 
 

beave
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Date Joined Mar 2007
Total Posts : 1091
   Posted 5/17/2010 11:29 AM (GMT -7)   
This *could* be Crohn's, but it could be lots of other things as well.

First, iron deficiency anemia is relatively common, especially among women - so that's an interesting piece of your puzzle but doesn't necessarily point to Crohn's disease.

Second, when the ulcers were seen on the pillcam, had you taken an NSAIDS in the recent time prior to that exam? ie, had you taken ibuprofen or any similar med in the 2-4 weeks before having the pillcam done? These meds can often cause ulceration of the small bowel mucosa that mimics Crohn's disease.

Do you know whether one of your pending blood tests was the Prometheus Labs IBD Serology test? That one is sometimes useful when other test results are inconclusive.

Kaybee6698
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/17/2010 6:58 PM (GMT -7)   
Thank you all for your replies. Beave, I rarely if ever take any kind of pain meds. I just hate taking meds of any kind so that shouldn't be the cause.

The pending blood test is in fact the Prometheus Labs IBD Serology. I'm glad you brought it up. That's encouraging. I'm just scared that these test won't give me any answers and I'll be back to square one.

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1812
   Posted 5/17/2010 7:14 PM (GMT -7)   
I am interested to hear how the Prometheus tests come out. Keep us, posed, ok? Put Prometheus test results in the title so I don't miss it, ok? Sometimes these things take some time to unfold. I got sick about 5 years ago, a CT scan showed inflammation. They did a colonoscopy the next day, said all was negative even the biopsy. They had put me in the hospital, gave me IV antibiotics and some steroids. After the scope and the treatment, I felt great for about 6 weeks. Then the usual stuff started. I continued to have constipation with occasional bouts of diarrhea, pain with sometimes blood. In Dec 08 I got really sick, and the scope showed inflammation and so did the biopsy but not crohn's colitis. My blood test says I have crohn's. Either way, my stomach has been especially sensitive in the past year but the colazal has helped. So, that is my story and that's why I am interested in the IBD serology. Stay on top of things and don't give up.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies,  high BP, fibromyalgia, GERD, restless legs and periodic limb movement in sleep, low thyroid, the list keeps growing..........................
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux (trying again)
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA rheumatologist suspects mixed connective tissue disease 4/2010
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!

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