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dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/17/2010 7:33 AM (GMT -7)   
I hate it, I still don't have my test results from my small bowel scan and it's been about 10 days.
 
Let me vent, when it comes to these tests it's a waiting game and it stresses me so much.  First you wait to see the doctor, then you wait to get your tests done, then you wait to find out about the results, if you need to go for surgery, then you wait to see the surgeon, then you wait for an appointed surgery time, I hate the waiting,  there is so much time to worry about things.   I feel for anyone else who has to go thru this as well.
 


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/17/2010 7:46 AM (GMT -7)   
Have you tried calling your docs office and asking them what the results are? Why not give them a call to at least give yourself some peace of mind. I know I would. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/17/2010 7:52 AM (GMT -7)   
You vent and I'll vent with you. I'm waiting on test results too. I swear the docs office has them, but they never call.
It's a big hospital, and when you try and call (for any reason) you get sent to voice mail, where they say your call is
so important to them, and they will return your call within 2 business days, yeah right. I've had it with all this waiting
that I'm thinking of changing GI's for that reason.

I hope you at least get your results soon. Good luck.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/17/2010 8:03 AM (GMT -7)   
The hospital where I had the scan done usually takes a week to 10 days to send the results back to the doctor.
I will call if I don't hear anything within the next couple of days.
My doctor now sends a notice in the mail with a pre booked appointment if he wants to follow up, more waiting. What happened to normal phone calls? Times are a changin.

Thinking of you Dunny, it may not help to change GI's if the whole system is slow.



dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/17/2010 9:08 AM (GMT -7)   
I was thinking of going to a smaller hospital. My only problem is, that right now I'm being
seen by a specialist. I don't know whether a regular gastro will accept me. Really though
sometimes the bigger the hospital, the more of a number we become...
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/17/2010 10:56 AM (GMT -7)   
Vicky, I thought that all GI's were Specialists atleast they are in the area I live. I never knew there were regular gastro's? Are there where you live?

I got my mail for today and there is nothing from the doctor. Think I will call later?
I hope you get your results soon as well. All the best.


Hugo's Mom
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/17/2010 11:01 AM (GMT -7)   
I agree with the bigger hospital. I have been taking my son to a Specialist and everything is 3 weeks, to get a test wait 3 weeks, to get an apt 3 weeks. Everything is 3 weeks wait time. I was surprised when today she said she could see him on Monday!

Best of luck to you. Try and stay busy so you keep your mind off the phone!

dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/17/2010 12:14 PM (GMT -7)   
I better sit quiet or I may be waiting 3 weeks. I had my scan done in one of the bigger hospitals. I do have to wonder, if they did see an emergency situation on the immediate tests if they notify the doctor sooner? Are we just a number? probably?


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8561
   Posted 5/17/2010 3:55 PM (GMT -7)   
Vent away. I agree with you. Crohn's disease (and presumably all other chronic diseases) seem to me to be one long waiting game. It's not just the waiting around for weeks for tests and appointments. It's the long wait for your new medication to kick in, or for your new medication to fail, or to see if an unsually good day turns into more good days or, conversely, if an unusually bad day heralds a worsening of symptoms. It's also the wait to see what effect the food you ate today will have.

It's enough to make you climb walls if you let it.

I also had to learn patience when taking my driving test this year - a six-week waiting time for driving tests does that to you. I passed on the 3rd try. During each waiting period I thought about the test as little as possible; as a tactic for reducing impatience it worked pretty well.

The Crohn's is worse, though, because, as much as I felt like I would never pass my driving test, there was an end in sight and it eventually arrived. A chronic disease is open-ended, with inbuilt uncertainty. It takes courage, I think, to look uncertainty squarely in the face and not let it rattle you.

Anyway, good luck with your test results when you do finally get them.

gumby44
Veteran Member


Date Joined Nov 2007
Total Posts : 4100
   Posted 5/17/2010 4:06 PM (GMT -7)   
Be assertive! It can't hurt to call. Sometimes things get lost in the shuffle, and your call will maybe motivate someone to look it up. Let us know what you find out.
51 yr. old female, diagnosed with Crohn's in small intestine and terminal ileum Sept-Oct. 2007. Also have IBS, and had Salmonella Dec. '07
currently taking Pentasa- 4 500mg pills per day, Metamucil and colace for constipation, probiotics


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/17/2010 4:10 PM (GMT -7)   
Some gastroenterologists specialize in crohns and others in other areas. I see two GI, one for my pancreatitis and
the other for crohns. Mind you, it's a double whammy when I have to pay two co-pays.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dunny2
Veteran Member


Date Joined Jan 2007
Total Posts : 3200
   Posted 5/17/2010 4:21 PM (GMT -7)   
BTW Dori, I go to St. Louise University hospital in Missouri. I see a Dr. Burton, professor of medicine, who
specializes in pancreatic diseases, and a Dr. Omran assit. professor, he specials in crohns. I guess they take
their professions a little further by doing this. I was referred to them by a GI I used to see in my home town
who found he couldn't go no further with my treatment.
Vicky

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...


dorri
Veteran Member


Date Joined Feb 2003
Total Posts : 1876
   Posted 5/17/2010 5:08 PM (GMT -7)   
Thanks everyone you all make my wait a little more bearable.
Interesting. I assumed that a GI takes care of all gastro problems. The GI that I have specializes in bowel problems, interesting though there may be a GI who is more knowledgeable for pancreatic and gall bladder issues etc.. makes good sense that some doctors would specialize in one condition more than another.. I just never gave it thought, so thanks for bringing this to my attention.
Vicky I see by your sig that you also have fibro, lupus and pancreatitis, whoa, wasn't CD enough? I feel for you, I have CD, & fibro and that hurts enough and here's me complaining about waiting. Take care.


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/18/2010 10:37 AM (GMT -7)   
I don't know what "bigger" hospitals people are referring to - I get better, faster service at the U of Chicago than I do as my community hospital. I also know my doctor's PA's name and I have her card with her phone and fax number. She never fails to call back in a timely manner.
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