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Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/17/2010 9:59 AM (GMT -7)   
well eventually after seeing the GI 3 weeks ago I have date for my colonoscopy...16th June, this just seems so far away before anything will eventually get sorted out, then the long wait after that again before I see the Gi again on the 6th september,presuming there is nothing serious they see on the scope!
I am still on the low maintenance dose of the pred 5mg , but know I am still flaring a little as my bowel movements are still all over the place and don't know from day to day whether I am going to running or not go at all!!
I just want to be more normal!!!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/17/2010 2:08 PM (GMT -7)   
Oh, Michelle, that's just ridiculous... especially the three-month wait to see your gastro afterwards. That's really not good enough.

I wish I could wave a magic wand to make things better for you :-(. It's awful to be sick and in pain and to know you're going to have to wait ages before you can get help :-(.

:-(

Ivy.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 5/17/2010 5:36 PM (GMT -7)   
A 3-month wait after a colonoscopy sounds too long. Are you sure you'll have to wait until September? I would query that with the hospital. On the other hand, a month's wait for a colonscopy sounds about right, at least for the NHS.

You could always go to your GP in the meantime. It's not ideal since GPs seem limited in what they can prescribe (my GP wouldn't prescribe me 6MP until he'd cleared it with the GI first, even though I was coming to him from the GI who had prescribed me 6MP in the first place. Cue a 3-month delay before the 6MP ever arrived). But it's better than nothing and brings attention to the fact that you are suffering.

MayOK
Regular Member


Date Joined May 2010
Total Posts : 111
   Posted 5/17/2010 6:32 PM (GMT -7)   
Wow! Three months? That's normal for the UK? Unbelievable. I mean, as much as I hate paying for stuff myself in the US, I think I'd rather do that if it means getting stuff done quicker.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/17/2010 9:05 PM (GMT -7)   
Ha! I'm in the USA w/good insurance. I see my gastro once a year in her office and six months later for a colonoscopy. That's it. If I get sick and run into problems it can take 2-3 weeks to get an appointment. I've learned to call and go see my family doctor at such times. I have NEVER had an appointment w/my gastro after a colonoscopy.

This last annual "well visit" her NP wrote a script for my Pentasa for ONE refill and my Imuran for TWO refills. Which is no biggie as my family doctor has written my scripts for me before and will do so again as needed.
My computer says I need to upgrade my brain to be compatible with its new software.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/17/2010 10:58 PM (GMT -7)   
I think I only got the appointment for the colonoscopy because I phoned them to see what was going on as I hadn't heard anything since going to the GI! And I know 3 months is a long wait afterwards. I do go to my GP but she now doesn't know what to give me any more except the steroids, as nothing seems to be doing much, thats one of the reasons why I ended up in hospital a few months back and seeing the GI,having a sigmoidoscopy and now eventually after seeing the GI after that scope am now having the C-scope!!
I can cope just about at the moment on the 5mg pred but as I said before I dont know if I'm Arthur or Martha with my bowel movements.
But I am going to see my GP again hopefully this week as my back is really getting painful again,so much so that I am awake every morning from about 4Am and cant settle again as every time I turn,I'm in agony and if I lay still my back is twinging due to the sacroilitis brought on by flaring too!! :(
I just don't know what to do any more with this darn disease!!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 5/18/2010 4:20 AM (GMT -7)   
When I have had a colonoscopy or sigmoidoscopy my GI has done it (except when I was in hospital) and he does the procedure and then meets with me afterwards in his office to discuss the results. Obviously this doesn't include the results of any biopsies, which have to be sent to the lab.

Most of the time I was also awake enough for him to show me stuff as he was doing the procedure. I only slept through my first colonoscopy, as I received a little too much sedation!!

I think that if there was anything to be concerned about your GI would bring you in sooner. My GI sees my every 6 months as long as things are OK. If I have had any real concerns I have seen my GP. If she is concerned she has send me to my GI's office with a note to see him immediately.

I have also called my GI's office and explained that I feel the need to see him for my mental health, if not for my physical well being!! He will usually see me a little sooner in that case.

I don't think the wait for the colonoscopy is too bad, but I would ask if you can move the follow up appointment up if you don't get some feedback on the day of the procedure.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 5/18/2010 4:24 AM (GMT -7)   
Hmm. A lot of time may have been wasted already by doing a sigmoidoscopy to begin with instead of a colonoscopy.

If the colonoscopy does show inflammation higher up in the colon, ie something that a sigmoidoscopy couldn't have shown, I seriously would kick up a fuss and insist on seeing a GI within two weeks. I've a lot of complaints about the NHS, but to be fair to them in my case they have a) done the right sort of tests to begin with and b) seen me within 2 weeks after a colonoscopy. It's the least you can expect.

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/18/2010 4:33 AM (GMT -7)   
I know, I dont feel it fair that I have to wait til september to see my GI after the scope,but I presume if there is anything that needs treating urgently then they will do a follow up appointment sooner.But I will be calling them after about 2 weeks to get any results if I dont get any feedback on the day of the scope.Plus I dont know how the sedation is going to affect me, so dont know if I will actually remember or take in what they say on the day!!! When I had my sigmoidoscopy I had to wait 3 weeks to see him again too, but I knew no results were going to come of that as it was inconclusive because of the enema not working!
I am a very anxious person as it is, and there is no way I can wait that long for the results,I will have sleepless nights worrying about it!!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8586
   Posted 5/18/2010 5:12 AM (GMT -7)   
Whoever does your c-scope should give you feedback shortly afterwards. If you're worried about not remembering anything, then maybe you can jot down notes or bring along a friend or relative to listen in? However in my experience I've always been fully conscious as soon as the colonoscopy was over.

Easier said than done god only knows, but try not to worry. The NHS doesn't exactly go out of its way to make you feel like a cared-for patient and that in itself is anxiety-inducing: when you feel that nobody could care less about how you are doing or making you better - really better, not just doing the minimum patch-up job. But that's another issue. Hopefully after your colonoscopy you will be given an appointment with the GI a couple of weeks afterwards - I think that is how it's always worked with me. (Memory is so bad I don't really remember >_<) If a new appointment isn't given, then I would politely but firmly insist on one being given.
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