Entocort EC 9MG

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got guts
New Member

Date Joined Mar 2009
Total Posts : 3
   Posted 5/17/2010 8:36 PM (GMT -6)   
I was on Pentasa for about five years after having surgery in 2005.  I just now got switched onto Entocort EC 9MG that I am suppossed to take for 8 weeks and then for 2 weeks 6MG.  I was told to stop taking Pentasa all together since it was not doing anything for me, and that I would try this since my last blood test results and colonoscopy showed high inflammation.
My question is have any of you taken Entocort and if so did you end up having the side effect of "moon face" or did you not have any side effect from it?  This whole concept of "moon face" is very important to me, since I have experienced the chubby cheeks before when very ill when I took the steroid Prednisone.  Just worried same thing will happen with Entocort such as the "moon face" and gaining weight.
Also, how did you feel after taking Entocort, and did you in fact feel better?  I have been on almost every medicine for Crohns-Remicade, 6MP, Immuran, Prednisone, Pentasa and now Entocort.  I just worry when I try something new and want to hear what you have to say about the truth of the results of the drug.

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 5/17/2010 9:17 PM (GMT -6)   
I've heard that entocort doesn't enter the blood stream so you shouldn't have moon face. That said, it didn't work for me so I can't be of much help. Hopefully someone else can comment.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.

got guts
New Member

Date Joined Mar 2009
Total Posts : 3
   Posted 5/17/2010 9:21 PM (GMT -6)   
Thank you very much. Its hard to start a new drug and not know whether or not to expect to have the "moon face." This is also very hard being someone who has gone from being on the same drug for five years and starting something new because you have to. I am graduating from college and am just very worried about gaining weight in the face. Hard to deal with at this age.

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 5/17/2010 9:27 PM (GMT -6)   
I understand not wanting to have the moon face and I have taken all kinds of medications myself. At one point I would have been happy to have a moon face then feeling bad.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 5/18/2010 2:31 AM (GMT -6)   
My son was on enteocort and although not on the full dose very long it appeared to take so long to get him off it(longer than the time he was on full dose) His side affects were acne on face, back,chest, legs (not pretty) and although been off it now for 4 weeks his face is going from bad to worse.
It is difficult to say whether he felt better as he had been on enteral nutrition for 7 weeks (with some discomfort) and the entecort was primarily given (I think) whilst he switched back to 'normal' foods(still with discomfort) so now it is the azathioprine(immuran) for him.
I guess everyones bodies react differently but for us I think if at all possible it will be one to try and avoid in the future.

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 5/18/2010 4:11 AM (GMT -6)   
I started entocort along with my humira. I too was afraid of side effects, because I get tremendous bad effects from prednisone. Low and behold, no moon face, no joint swelling or pain, no increased appetite or bad dreams/night sweats, anger issues....the one effect I had was only positive, its been keeping me somewhat at bay when mixed with humira. Just try it! It could the one that works for you. Don't know unless you try. Side effects come with anything, sometimes they are more severe then others, but don't let that scare you into not trying it.
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira, Fish Oil, D3, Entocort, B-12 shots, Align, Multi

Veteran Member

Date Joined Jan 2010
Total Posts : 9921
   Posted 5/18/2010 4:35 AM (GMT -6)   
I've been on Entocort for about 10 days and don't have a moon face. I'm only on the 9mg dose for 3 weeks which I think isn't long enough, but that's by the by. My Crohn's has been a bit better, but not enough to make the extremely low and agitated mood of the past week week worth it. That said, I don't know if it's the Entocort, the Crohn's, or other things going on which are making me feel this way. Also, since Entocort apparently takes 2-4 weeks to kick in fully, there's still time for the Crohn's to get even better.

This link might be of interest to you. Jump to page 3 (I can't link directly to it) and check the second and third tables. In the short term, 11% of people on 9mg of Entocort get moon face as opposed to 37% on 40mg of Prednisolone. So you have a chance of getting moon face but not a very high one.


Edit: Apparently that link does go straight to page 3 :p

Post Edited (NiceCupOfTea) : 5/18/2010 4:38:49 AM (GMT-6)

Veteran Member

Date Joined Feb 2010
Total Posts : 925
   Posted 5/18/2010 7:30 AM (GMT -6)   
I've been taking it for 3 months, and had some improvement gut wise.  Now that I have a CD dx and have started Pentasa I hope to see even more of a marked improvement.
I have noticed some joint and bone pain, very tolerable so far.  And I am getting acne on my chest, at my age are we kidding?  But these are well worth the benefit.  I am going days and weeks between episodes now.  Only got the CD dx 2 weeks ago.
Diagnosed (FINALLY) UC Sept 09/Diagnosis amended 5-3-10 to Crohn's
Taking Pentasa 500mg/8x/day
Entocort 3X/day
Bentyl as needed
1000 mg Vitamin C
Prilosec 1X/day

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 5/18/2010 8:10 AM (GMT -6)   

I took 9mg of Entocort earlier in the year for about 3 months.  I did not get the same "moon face" I got with prednisone.  I didn't have any side effects from taking it.  I do think it helped with inflammation etc... One thing I will mention is you do need to taper off of it.  I know some say you and some say you do not.  The 2nd day after tapering down to 6mg--I got tenesmus like symptoms that were pretty severe.  I had other issues going on too, but for me, a slow taper was must.

Good luck.  I totally understand about not wanting the moon face.  Prednisone does a number on me and I look TOTALLY different (not in a good way).

Crohn's Disease for 18 years.. 1st Resection June 2009 still having trouble-anastomostic leak and now fistula.  Currently on Flagyl, Entocort.  Will have a "redo" resection on April 6.

Regular Member

Date Joined Oct 2009
Total Posts : 157
   Posted 5/18/2010 9:43 AM (GMT -6)   
I'll be honest- I did get a moon face. It was pretty bad too. My skin also turned a light yellow-green color around my face...I gained about 20 pounds (even though I hardly eat), and I got DARK redish purple stretch marks on my abdomen, legs, arms and hips.

However, I was on it (9mg) for over a year which is wayyy too long. I only recently tapered and the weight and moon face disappeared within 2 weeks.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Off every med while the doctors contemplate my diagnosis.

Regular Member

Date Joined Apr 2010
Total Posts : 119
   Posted 5/18/2010 10:05 AM (GMT -6)   
I was on Entocort EC 9 mg. for a year and it did not help me at all. It actually had me running to the bathroom more and I couldn't control it. I didn't gain one pound or get moon face. I believe only about 10% goes into the blood stream while the rest breaks down in your intestines. Also on about the 3rd day after starting it I was having some sleeping problems, I would be so tired and fall alseep but would only sleep a few hours before waking up feeling anxious but after about a week that got a better. When I started tapering off and finally got down to one pill a day my face and chest broke out so bad. It's been about 6-7 months and it's just starting to get better and clear up. I'm not saying any of this will happen to you because some people take it and don't have any problems but this was my experience with it.
37 year old female and a proud mother of 8 kids (5 still living at home) and a very supportive Husband
Found out I had crohn's disease about 3 years ago, I haven't had proper treatment since :-(
Have had rectal abscess and now a rectal fistula, Medications I have taken for crohn's is..... Asacol and Entocort EC......Currently taking....Asacol
Suppose to start Steroid and 6mp next week (May 18, 2010).....I'm so scared :-(
Seton drain was put in on May 4, 2010
I also suffer from very bad anxiety and panic attacks for over 10 years (after my father passed away)
I have tried almost every medication for it but nothing worked or I had a bad side effect so for the last 6 years have been on xanax 1mg., 3x's a day
I started having joint pain about 7 months ago :-(

Regular Member

Date Joined Oct 2009
Total Posts : 111
   Posted 5/18/2010 10:22 AM (GMT -6)   
I took 9mg of Entocort for almost 5 months with no issues.

It didn't really help me either, but no side effects that I noticed.
chronic active colitis/possible Crohn's - unspecified IBD - waiting on a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Darvocet or Lortab as needed for pain

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