New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 5/18/2010 9:53 AM (GMT -7)   
Hi everyone:
I am slowly running out of meds to try before I have to get my colon removed. I am seriously considering starting Methotrexate.  I am very concerned about hair loss, among other things. I am curious about others response to it ... if it worked / how long it took / adverse reactions / hair loss?
 
Thank you.  
40 years old female
Salmonella - 1996
Crohn's Colitis in entire colon - Diagnosed in 2000
Hypersensitive/Allergic to Asacol/Pentasa/Budonside/6MP/Immuran/Humira/Remicade, and more
Past meds that worked: Cipro, Prednisone

Daily: Folic Acid, Omega 3, Multi-Vitamin, Cipro 1000mg, yummy homemade yogurt


Writer
Regular Member


Date Joined Aug 2006
Total Posts : 443
   Posted 5/18/2010 10:24 AM (GMT -7)   
I was on methotrexate for about five months. It worked quickly. I think I began to notice improvement after around six weeks. For me, it was also great for my hair! I lose a lot of hair, but that stopped after beginning methotrexate. I don't remember exactly how long it took, but I think I saw improvement within a couple of months. Unfortunately, I had to stop the methotrexate because of a rare side effect, and I started having have the hair loss again within two or three months of discontinuing it, after the beneficial effects wore off. I was sorry I couldn't stay on methotrexate.

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 5/18/2010 11:07 AM (GMT -7)   
I started methotrexate in January having tapered Prednisolone down to 10mg per day and still having cramps and d. To be honest apart from feeling a bit under the weather the next day I have had no effect from it at all, I have had to go up to 15mg Pred and that really isn't enough. I am now waiting to start on Remicade. I haven't noticed any hair loss, I have felt more tired but my GI says its because the Crohns is active. I was told it takes about 8 weeks to kick in but no luck for me. I am still taking it and maybe if Remicade gets me into remission it will be answer for me, for now I just have to wait and see. Sorry this isn't more positive for you.

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/18/2010 2:58 PM (GMT -7)   
I take mtx and folic acid with it
for me it has helped
hair loss nope actually grew lol
it took a good 6 weeks to feel benefits but it has helped me
tk care
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

DONATE TO www.Healing Well.com
LYN


dietcoke
Regular Member


Date Joined Jul 2008
Total Posts : 186
   Posted 5/19/2010 8:27 AM (GMT -7)   
Thank you everyone. I have my doctor's appt tomorrow so will discuss with him.
40 years old female
Salmonella - 1996
Crohn's Colitis in entire colon - Diagnosed in 2000
Hypersensitive/Allergic to Asacol/Pentasa/Budonside/6MP/Immuran/Humira/Remicade, and more
Past meds that worked: Cipro, Prednisone

Daily: Folic Acid, Omega 3, Multi-Vitamin, Cipro 1000mg, yummy homemade yogurt


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/19/2010 8:47 AM (GMT -7)   
LET us know how you mk out kk
tk care
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

DONATE TO www.Healing Well.com
LYN


ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/19/2010 10:12 AM (GMT -7)   
I got on it for arthritis and we started with the pills, but they hurt my stomach, so we switched to injections.  It worked better than anything else but it raised my liver enzymes and we had to stop it. =(  Still can't get the flare under control now.  I didn't have any hair loss (took folic acid with it) or any other side effects, other than the liver enzymes. But, a lot of meds raise my enzymes, so I guess I'm just "special" (in a bad way). 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/19/2010 4:23 PM (GMT -7)   
The injections are the only thing that has even remotely worked for me.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/19/2010 5:20 PM (GMT -7)   
I've been really concerned about hair loss too, so it's good to see that mtx actually brought enough health for the hair to grow for some. I've lost so much hair, my hair is a quarter what it was a year ago.

I'm also taking mtx, weekly injections 25mg. I've been on it about 4 months. It seems like I'm a little better but my sed rate is still 70 (as of yesterday) and my white blood cell count is 14.5. So, I'm not sure it's really working for me. (I'm also on Cimzia and just finished a month of steroids...)

But! I really have no noticeable side effects whatsoever. The shot doesn't hurt at all, no nausea, no fatigue (aside from what i normally feel), etc, etc. They order lab work every 4 weeks (every 2 weeks in the beginning) and check liver levels.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/20/2010 6:16 AM (GMT -7)   
It took me six months to really see a difference in my sed rate I am still fairly high for my age but at least I am not 3 times my age. That being said I do take 5 MG of folic acid daily. I lost about half of the diameter of my pony tail. But found using damage remedy from aveda is really helping with the damage my hair has, because it got to the point it was like straw.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/20/2010 10:33 AM (GMT -7)   
I always appreciate your reminders for patience, Navy. We're doing a scope at 6 months to actually see if the mtx is helping. That way we aren't relying on sed rate.

dietcoke - did you decide to try cyclosporine before mtx? I'm curious to hear how things go for you. Good luck!
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


*Bibi*
Regular Member


Date Joined Mar 2010
Total Posts : 49
   Posted 5/21/2010 1:23 PM (GMT -7)   
I'm on the injections, and have been since....February (I think -- it's been a long year already!) I didn't have any issues with hair loss UNTIL I had my resection in April -- however, I doubt it's due to the MTX. I do get nauseated from the shot's, but I use either QueaseEase or Zofran to work with that. I wasn't thrilled to get on it, but decided it was worth a try as nearly everything else was not effective.  It took about 6 weeks for me to actually notice a difference, and I get bloodwork every 3-4 weeks to watch for any adverse reactions.


Diagnosed at 17, currently 23 :)  Have had 1 resection so far.  It's been an adventure!
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 3:29 AM (GMT -7)
There are a total of 2,732,879 posts in 301,067 threads.
View Active Threads


Who's Online
This forum has 151221 registered members. Please welcome our newest member, SammyElla.
223 Guest(s), 0 Registered Member(s) are currently online.  Details



Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer