Does anyone gain weight when flaring?

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Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/18/2010 2:53 PM (GMT -7)   
I know this sounds nuts but I seem to gain weight when I flare.  I had gained about 15 pounds right before I was diagnosed (through emergency surgery).  I think that is why I was never considered to have Crohn's until they saw my guts up close and personal.  I was always told it was IBS, lactose intolerence, blah, blah, blah tongue .   Well, I've been extremely tired lately, terrible joint pain,  more "d" and I'm sure I'm flaring again.   I've also been on a diet to lose weight and the last month I'm not losing anything but slowly gaining. 
 
Is it possible to gain weight instead of lose?  I use to think that the reason I was gaining was because I was mistaken gut pains for hunger pains and eating but that's not the case this time around.  I barely want to or do eat but still gain a pound or two a week.  I'm not a happy camper since my sisters and other family members are doing "The biggest loser" in our family.  I was winning at one time but not anymore.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14162
   Posted 5/18/2010 3:08 PM (GMT -7)   
I gained weight because of the drugs I was taking (prednisone). Usually I lose a lot of weight quickly when I flare.
March 07: Diagnosed with mild proctitis - Canasa as needed
August 08 - December 08: Flare & Anemic - Started Asacol
January 09 - December 09: Remission!!
December 09 - January 10: Massive Flare - Asacol + Prednisone + Canasa / Colazal
Current: Mild Active Pancolitis: Prednisone, Lialda, Cort Enemas, Canasa


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/18/2010 3:16 PM (GMT -7)   
I was actually thinking about posting a topic on this while I was at work. When I was first diagnosed with crohns before I had my surgery I just lost and lost and lost weight. after my surgery when I flare I seem to gain weight and then I can't lose it. It is sooo frustrating, but my doctor said it is because when i flare I dont get as many calories as i should and then my body saves everything I eat. its annoying.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/18/2010 5:31 PM (GMT -7)   
Yes...and, it's JMHO, but it seems to depend on where the inflammation is at the time...like when it is near the stomach and produces ulcers/acid reflux...you tend to eat a bit more, because you try and stop that burning pain...at least for me (I have crohn's in the stomach and am constantly on ppi's)
Hope this helps...
"The earth laughs in flowers"


onedaymore
Regular Member


Date Joined Apr 2009
Total Posts : 111
   Posted 5/19/2010 5:36 AM (GMT -7)   
I gained quite a bit when I first started having symptoms. Doctors refused to even see IBD as an option, despite everything pointing that way, because I hadn't lost any. Even when the tests came back positive, it wasn't enough to "look into" since I was overweight.

Every time I flare, I seem to gain about 5-10 pounds. When I start eating again, the weight comes back off almost immediately. This last flare was the only one I lost any weight through, and that was because I was throwing up every day for about 6 months.

I think it's probably normal to gain weight. I guess it just depends on your body and how it handles things. I wonder if there's some kind of caveman effect coming into play?
Diagnosed with Crohn's in 2008 at the age of 22. Also dealing with gastroparesis & GERD.
Currently on: Remicade, Imuran, Pentasa, Tramadol, Welchol, Phenergan, Ambien, Reglan, Prilosec, Hyoscyamine


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2010 6:02 AM (GMT -7)   
Have you had your thyroid checked lately? Sometimes you can become hypothyroid and no matter what you do you will not lose weight, just gain. Just a thought!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Mormor Vicky
Veteran Member


Date Joined Mar 2007
Total Posts : 684
   Posted 5/19/2010 7:47 AM (GMT -7)   
Thanks for everyone's reply. I've never been a big eater and that is probably my problem. For example yesterday I had a handful of blueberries, chicken breast for lunch and a salad for dinner. Oh, I did have a sugarfree klondike bar for an afternoon snack. The salad made me spend the evening in the restroom. I've hardly ever eat much for breakfast just because I don't like starting the day with stomach problems. Just a couple cups of coffee.

I've always been overweight and that is the frustrating part. It sucks that I have a chronic disease that causes people to lose weight and I'm one of few that seems to gain weight.

I really think that since I don't eat much that my body tells be to hold on to all extra calories.
Vicky / 49 years old
DX'd with Crohn's during a resection August 2006
DX'd with Steriod induced Diabetes November 2006
Considered in Clinical remission but have minor signs of disease activity
 
Daughter (28) also has Crohn's since she was 12.
 
Currently on 4000mg of Pentasa only for Crohn's
No longer able to take 6-MP because of Bone-Marrow Suppression
Cymbalta, Metformin, Lipitor, Lisinopril


HabsHockeyFan
Veteran Member


Date Joined Jan 2006
Total Posts : 3130
   Posted 5/19/2010 8:43 AM (GMT -7)   
vicky...I have never been thin! You are not alone in the gaining weight issue. You say you never ate much for breakfast before. The best thing I have found is I eat 5 small meals aday and I can lose weihgt a little better. it also helps me feel more engergetic as my body gets refueled in vitamins etc more often.
I agree if you are not eating much, your body is looking to retain some of the calories to maintain and help you heal.
Dx'd '90 (emergency rupture), symptoms ignored long before that, '03 fistulas and bad flagyl reactions, B12 weekly, Pentasa, cholestyramine, iron and vitamin supplements. 
Prepare for the future, but live in the present


Dunchad
Regular Member


Date Joined Sep 2009
Total Posts : 36
   Posted 5/19/2010 9:51 AM (GMT -7)   
I always lose weight when flaring.
Diagnosed Crohns 02. Just had a resection April 20th 2010. Two sections removed had a fistula into the bladder. Also have a temp ostomy. GI said I could stop the 6mp, but going back on remicade.


tez25
Regular Member


Date Joined Dec 2009
Total Posts : 65
   Posted 5/19/2010 11:25 AM (GMT -7)   
for me it depends... if i have alot of D and no appetite, then i lose weight... but other times my disease can make me very hungry!! i can almost always tell when im anaemic because my body craves sweet foods (i think it's probably cause my body is craving energy!) of course when this happens i gain weight!

fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 5/19/2010 12:20 PM (GMT -7)   
I have not lost any weight since I was diagnosed in May of 2008. I have only gained. I recently went to an endocronologist and he did several tests - all that came back normal. However I took a food diary of how much I ate and how many times I visted the bathroom and he was shocked and said there was not way to explain how I was not losing weight - let alone gaining. I always joke that it is my luck to get a disease and the one side effect I would like to have I don't get. Try to hang in there. I know how frustrating it is. Everything you eat goes right through you, you sometimes are in so much pain that making it through the day is too much - let alone working out. Don't get down on yourself. I posted a question similar to this a while back and was so upset when one of the responses I got was someone telling me I must not be that sick if I am gaining weight. I was devestated. Hang in there.
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Xifaxan, Zoloft, Ritilan SR, B12 injections, Calcium and Vitamin D
Married, mother of 4


PainNdaGut
Regular Member


Date Joined Sep 2006
Total Posts : 43
   Posted 5/21/2010 6:57 AM (GMT -7)   
I was never really "heavy" but not thin either...I was about 180 at 5'9 more muscular build until I the couple months before I was diagnosed w/cd. I gained 20 lbs! no meds, couldn't keep anything down, yet I gained. Anything that says you will "lose weight" I Gain. I have gained 114 lbs since I was diagnoses in 1993. I am the heaviest I have ever been in my life and I hate it! My first gastro made me beleive I was the only person he'd ever seen that gained weight with crohns. Honestly, I didn't know there were more out there until I found this site about 4 years ago. I gained the last 60 in the last few years. I can't get it off. I've been tested for everything and they find I am vitamin D defecient, iron deficient and my potassium runs on the low side of normal. I thought I was completely backwards, then last month the endocrinologist said there was a name for people who gain and react opposite to everything. Can't remember what he said it was called now, but I was shocked and glad that I wasn't crazy. Every dr I had been to in the past thought I was just talking, but everytime I get a flare, more weight finds me. I just don't understand it, but I keep working at losing it.
crohns disease, crohns colitis, dx: 1993 currently taking Asacol and 6mp
anemia, low potassium, high blood pressure, crohns arthritis, osteo arthritis, fibromyalgia, depression & anxiety, allergies, hidradenitis suppurativa


fongers06
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 5/21/2010 9:10 AM (GMT -7)   
PainNdaGut,

Did your endo give you any information as to anything that may help?
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Xifaxan, Zoloft, Ritilan SR, B12 injections, Calcium and Vitamin D
Married, mother of 4


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/21/2010 9:28 AM (GMT -7)   
oh my goodness yes...
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


bbmom4
Regular Member


Date Joined Feb 2007
Total Posts : 45
   Posted 5/21/2010 9:39 AM (GMT -7)   
OH, wow! I was just thinking about posting a question about this topic... I have been DX since 1998 and I have never really lost weight... I too just keep adding on pounds... UGH... It is so frustrating, but I am SO glad to know that I am not alone...
PainNdaGut: Could you find out the term/name your Endo DR gave it???? Very curious...
Thanks!
37 yo mom of 4. Diagnosed in 1998 (CD in 3 areas), IBS also. Dealing with fistulizations and current flare. Meds: Imuran, Flagyl, Asipro, Prilosec and Prozac.

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