Dorri, give some thought to this. Its just a theory but hopefully others who have enjoyed a prolonged remission from Crohn's disease will chime in w/their experience.
I had a very high grade partial obstruction which I kept "treating" by just about
monthly vistis to ER for a shot of demerol and phenergan and then home again to continue suffering.
Finally came the day I obstructed and quite possibly perforated (you couldn't rely on the doctor to be telling the truth. He was one of those who would tell you ANYTHNG to get you to do what HE wanted). I was vomiting what tasted like feces. The surgeon tried to tell me my Crohn's was all up and down my entire small intestine and he HAD to operate. But he couldn't or wouldn't tell me just what he expected to do. For all I knew I was going to end up w/NO small intestine.
Fortunately, I had seen my SBFT films from my Dx 2 1/2 years previous AND several more recent. Always the disease was confined to one area. Back then insurance didn't insist on bouncing you out of the hospital as soon as you were breathing on your own (being facetious here). I spent 6 weeks in the hospital on IV fluids (no TPN back then) and a nasal-gastro tube, NPO except ice chips.
The NG tube began causing quite a bit of pain but when I complained about
it I was told "too bad, so sad, you need it". Finally came the day I pulled it out myself. Sure enough, three bloody rings on the tube right where I said the pain was. When "they" insisted they were going to put another NG tube down I PANICKED! Up until then I had finally come to the conclusion I was going to lay there in my comfy hospital bed w/my comfy pain shots and die. (Sounds so melodramatic now - but that is where I was at mentally and emotionally).
I called Mayo, they told me if I decided to come to report to the ER at St Mary's in Rochester. I called the airport, made the flight reservation, called my husband and told him he had 2 hours to leave work, go home, pack some clothes for me, pick me up at the hospital and get me out to the airport. I WAS going to Mayo.
He made it. I made it. The Mayo doctors told me it appeared that my Crohn's was still confined to the one area. That if I agreed to surgery they EXPECTED to resect 12"-18" of mid-ileum. They did tell me that I had a 60%-40% chance the Crohn's would eventually recur. 40% chance it would never recur sounded darn good to me at that point and I agreed to the surgery. They resected 18" of the mid-ileum <b>AND I THEN WAS BLESSED W/A 20 YEAR REMISSION!!!!!</b>
My theory: I enjoyed that 20 year remission from active disease BECAUSE my Crohn's was inactive and in remission AT THE TIME OF MY SURGERY. Thanks to that 6 weeks on IV fluids and whatever medication included and the complete bowel rest and NG tube.
I would suggest that now might be a good time to seriously consider agreeing to the U strictureplasty, if it can be done, whilst you are pretty much asymptomatic w/the only symptoms being caused by the scarring stricture.
My computer says I need to upgrade my brain to be compatible with its new software.