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mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/18/2010 5:46 PM (GMT -7)   
anyone need to take pain meds for their Crohn's?
from time to time I have severe pain when i have to go to he bathroom- doubled over and puking on the can...like today at work- great!
i have not wanted to bring up painkillers with my doc since he made a comment a while back that he doesn't really prescribe them...
any strategies for having doc work with me on this one?
i don't need them all the time but on days like today man they would be helpful!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/18/2010 6:02 PM (GMT -7)   
I have been on pain meds alot, most of the time I can not function with out some form of pain med. My GI doesnt like prescribing them, so I ususaly get them from my surgeon.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/18/2010 7:33 PM (GMT -7)   
I'm the reverse my GI doesn't prescribe them I get them from my family DR. (GP). I am on a low continuos low dose of morphine Extended release (12hr) daily and take more immediate release daily as needed.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/18/2010 7:36 PM (GMT -7)   
FYI I sure didn't start at morphine. I started with tylenol with codine (t3's) about 5 years ago and as my tolerance increased so did the narcotics get higher in dose and higher in strength.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


Becoming undone
Veteran Member


Date Joined Jul 2007
Total Posts : 927
   Posted 5/18/2010 10:40 PM (GMT -7)   
I see a pain specialist...they usually have the most up to date info regarding the best med to use for what type of pain and when...for instance, due to my fast transit times, I cannot get the full effect of many of the time-release medications...due to nightmares, I can't usually take anything like percoset...also my pain seems to be constant in my bum and gut...so taking this into consideration suggestion a medication that works very, very well for me...

Oh, btw, my gi doesn't like messing with these either...there are a lot of different forms and records, etc that are required...a pain specialist would fill out these papers and documents easily since that is their primary job...
"The earth laughs in flowers"


tsitodawg
Veteran Member


Date Joined Sep 2006
Total Posts : 845
   Posted 5/18/2010 11:39 PM (GMT -7)   
As you have probably noticed most of us that use pain medication do not get it from our G.I.s. Many G.I.s feel more comfortable with using antispasmotic drugs such as levsin, bentyl, or librax. This does not necessarily mean they are against pain meds but more that they don't like to deal with them or the monitoring that needs to take place. If you have a great Primary Care doctor that can monitor you, they will usually help you but if not go and see a pain specialist.
I personally have found that hydrocodone 10's up to 3 x daily works for me and my situation but this disease is a personal disease and you will need to find out what works best for you. The best is to use the smallest strength and quanity of pain meds that works to control your pain but don't suffer either. Don't be put off because of all the stuff that you read or hear about on the news. I put off pain medication for a long time because of what others would think and I was afraid of addiction. Finally I reached a point that I did not care what people thought of me because I was in so much pain and these medications made it possible for me to function. I do not get a high because the medication is actually doing it's job and it is similar to tylenol for me. That is why it is crucial that you have a doctor that is very personal and will monitor you closely to make sure that you are taking it for the reason prescribed.

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2010 6:27 AM (GMT -7)   
My GI never prescribes pain meds, I get them from my family doctor. I take 1/2 tab of Percoset 3 times a day as needed. Mine is not so much Crohns pains, but more from my Fibromylagia and Osteoarthritis pain. Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 5/19/2010 8:40 AM (GMT -7)   
My GI also does not prescribe pain meds...every doc at the practice claims they treat inflammation not pain. I finally went to a pain specialist and it has done wonders for me. I am allergic to tylenol and drugs with codeine are way too harsh on my stomach. They prescribe me tramadol for mild pain and nucynta for more severe pain. Nucynta is a new drug and has worked SO well for me. Not only does it control my pain but slowing down the gut is an added bonus!
JAS
 
Currently taking: Remicade


DCS54B
New Member


Date Joined Apr 2010
Total Posts : 18
   Posted 5/19/2010 8:52 AM (GMT -7)   
I also did not take any form of pain med for a long time.  I actually was always against them in general and even refused them post foot surgey several times.  Once I got sick with what we now know is Crohn's I started taking them on and off and I would consent to them in the hospital / ER. 
 
 I have had several different GI docs and a few of them have willingly prescribed pain meds and said that they don't want to see their patients suffer while others (most of them) have not wanted to manage pain or prescribe any type of narcotic.  The common argument is that this is a lifelong disease and that we need to learn how to cope and manage it without adding the potential for more meds and an addiction. They also say that we don't want to mask the symptoms since we need to listen to our bodies and pain is an indicator taht something is going on.
 
 I currently also see a pain management specialist who monitors me closely.  I do still have pain most of the time, even on the meds.....I would say that I am typically around a 3-4 on the pain scale.......most of the time after I eat, I will get a lot worse. I  thought a lot about what other people would think of me if I started taking narcotics on a daily basis and I was really afraid of the possibility of addiction.  The decision to see a pain doc and take the meds was a big one for me.  That said, I function a lot better with them..........it is hard to function when the pain is not controlled and I have the added benefit of slowing my motility.  My pain doc keeps talking about upping my meds again and I hate to do that......the pain is never gone for me, just a little more tolerable, it basically takes the edge off.
 
One thing to remember is this:  Pain trumps additcion.  If you are truly in pain then the chance of getting addicted is minimal. Addiction typically occurs when people like the high or continue to take the meds after the pain is gone.  We don't want to mask the symptoms since we have to listen closely to our bodies, however, there is no reason to continually suffer if we don't have to.  This is a lifelong disease and we need to focus on our quality of life.
 
Good luck!
DCS 54B
 
Crohn's DX in 2006 but sick for well over a year before that. Currently just started on Humira, Pred - 40mg (hoping to taper off of this soon), Phenergan 25gm prn, Percocet, Pentasa 500mg, Protonix 40mg and Lomotil, prn. 
 
I live my life to the fullest, enjoy every day and am excited for the day when we will be able to say good-bye to CD and UC.  I am becoming active in my local CCFA chapter and have found them to be a wonderful resource!


davidblink
Regular Member


Date Joined Apr 2010
Total Posts : 20
   Posted 5/19/2010 9:19 AM (GMT -7)   
I have to take 4 or 5 Vicadin a day and that makes a big difference in whether I choose to participate in the day. I have some crohn's pain but for now fistulas are drilling into my urinary system and infecting that. That is probably what is causing most of the pain. I got them from my Primary, but I might go to a pain specialist someday soon to really see what would work best. I hope I won't have any pain in the future.
Dx with Crohn's Feb 2009, but was told that I had probably had it a long time.
2nd Flare-up Mar 20, 2009 sent me to hospital where I perforated and got emergency ileostomy. Took down ileostomy on Jan 5, 2010. 28 cm active Crohn's terminal ileum. Strictures. Remicade 1 on 19 April 2010. Remicade 2 on 3 May 2010. B12 once a month, OTC Multi, D, C, Fish Oil daily. A pathetic 130 lbs. Just started 500mg CiproFloxacin for a urinary infection.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/19/2010 10:12 AM (GMT -7)   
Pain management is one of my hot button issues. I see a pain management doctor for pain control. Most GI's are unwilling to RX pain meds and most GP's are not as familiar with what the best meds to RX are. The point I would like to make here is that Addiction is not the word that should be thrown around. What happens to most of us is Tolerance. We build up a tolerance to the medication and need a stronger dose. In order for it to be an Addiction, we would have to be taking the medication to get a high and at levels and purposes that were not prescribed. I have a Tolerance, but I do not have an Addiction. Unfortunately, most doctors and society in general do not make that distinction.
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/19/2010 10:15 AM (GMT -7)   
DCS54B
you made a very good point with the pain trumps addiction, I have been to the point of needing one of the pumps and it was at a high miligram dilaudid every 10 mins or so and i was still in alot of pain and the nurses tried to accuse me of being an addict looking for a high, called my surgeon and came down and yelled at them and let them know how severe crohns pain can actually be, needless to say they cut it down to every 5 mins. My point being (sorry started rambling) that if you need it take it, I had no problem going home from the hospital with a limited amount of percs just in case the pain returned.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


Homeboy
Veteran Member


Date Joined Dec 2005
Total Posts : 637
   Posted 5/19/2010 12:03 PM (GMT -7)   
I see a pain specialist, who is also a psychiatrist. He really understands pain, he also understands anxiety, and depression. I am very happy with him.

I use morphine sulfate, instant, and time released versions.

When I am doing well, taking pred. every other day, pain levels are low, then I can lower my dose, which also lowers my tolerance.
(This helps keep me at the same dose for many years)

When I am not doing well, then I may use up to my max dose per day.

They help a great deal.

cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/19/2010 1:12 PM (GMT -7)   
Zanne: excellent post! I've told my GI, my primary internist and my rheumatologist that in the year 2010 I refuse to be in pain for any reason. The attitude some doctors (including everyone's GI who's responded to this post) have on this topic is moronic. People genuinely in pain don't get addicted; it's the idiots who keep taking the meds when they don't need them that get addicted.

Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/20/2010 12:21 AM (GMT -7)   
Here's a link from The American Pain Society that really explains the differences between addiction, dependance and tolerance. It's worth the read.
http://www.ampainsoc.org/advocacy/opioids2.htm
Looks like it didn't link you'll need to copy and paste.

*activated your link*

Post Edited By Moderator (Nanners) : 5/20/2010 7:09:04 AM (GMT-6)


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/20/2010 9:01 PM (GMT -7)   
thanks for all the advice- sounds like i need a pain doc in addition...i'm not worried about addiction at all- i've had to take percocets numerous times for kidney stones- OUCH!! i take them and then don't think about the drugs at all- most of the time the only thing i notice is the pain gone- no narcotic feeling at all...but there are definitely times i would like to have something for the Crohn's!
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


*Bibi*
Regular Member


Date Joined Mar 2010
Total Posts : 49
   Posted 5/21/2010 1:04 PM (GMT -7)   
My GI won't prescribe them to me, and I really don't feel like going to my other doctors for them. As much as I would like to have them at times, I worry about becoming dependent, or the physical side effects. Plus, I have to be alert for my job, and I tend to get a bit sleepy and bubbly-headed from nearly every pain pill out there!

leysa
Regular Member


Date Joined Oct 2009
Total Posts : 111
   Posted 5/21/2010 7:44 PM (GMT -7)   
My previous GI flat-out refused to prescribe anything. My primary care doctor would, however, and gave me Darvocet. My new GI doctor is a firm believer in pain relief (thank GOD) and has made sure I'm taken care of in case I need things. I rarely take any of the meds I have, but it's certainly nice to know they're there if things get bad.
30/f
chronic active colitis/possible Crohn's - unspecified IBD - waiting on a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Darvocet or Lortab as needed for pain

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