I have both Multiple Sclerosis and Crohn's disease. I had a small bowel resection November 2009 to help me get off prednisone (which I was on for 18 months). Since getting off prednisone I have been feeling awful!!! I have muscle/joint pain all over. I can't get rid of the intestinal bacteria C-Diff (3 rounds of antibiotics). Now I am having weird throat pain.
I have talked with my neruologist about Tysabri to treat both MS and Crohn's but my Gastro doctor doesn't deal with the drug because of the PML issues. I don't know if anyone here with Crohn's has taken it? I worry because I have been on Imuran and my understanding is that will give me a higher risk of PML.
I don't know if I could deal with the PML side effect. Especially having a wonderful husband and wonderful 3 year old daughter but I am no good to them right now anyways.
So wondering if anyone has done Tysabri after being on Imuran and what their doctors say about it?