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debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 5/19/2010 9:56 AM (GMT -7)   
hey all, so Im starting to get up again and walk to the bathroom. Yae me!

But, Standing up my heart rate gets to 160. Just standing. Once i sit back down on the toilet it goes down to 130 and usually hovers around 115-125 or even 110 as normal.

Why is this? I think the TPN and fluids are diluting my Hemoglobin because it was 11.7 now its 10.3.
Im sure it dropped again for some reason. I feel kinda weakened in my breathing.

I wish my heart rate though wasn't so high just to stand though. It's Odd.

Any tips? Breathing techniques? Ways to bring it down?
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


appy.lovee
Regular Member


Date Joined May 2010
Total Posts : 88
   Posted 5/19/2010 10:03 AM (GMT -7)   
I don't know how to bring it back down, but I do know when i was in the hospital and could only get out of bed to walk the 5 steps to the bathroom, the nurses would always rush into my room ( i was on tele) because my heart rate would go up to 160(and they throught something was wrong) but they always just told me its because my body wasn't used to moving or exerurting (sp? sorry) its self, so as soon as i was up to it they just had me slowly start going for little walks (which was a total pain cause i had the iv pole for the lipids and the tpn & the tele & another one for everything else) it took awhile but by the time i could go home i was allowed to walk outta the hospital and not be wheeled. i know this isnt really advice but its the only thing i can say is that for me it slowly started regulating itself with the walking i did little by little.
imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death.


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 5/19/2010 10:08 AM (GMT -7)   
should i start out just by standing up next to my recliner for a bit of time? Or u think 4-6 times to the bathroom is enough walking throughout the day? is 160 dangerous? Not really, but for how long? Im anemic to.
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


PV
Veteran Member


Date Joined May 2006
Total Posts : 1177
   Posted 5/19/2010 10:12 AM (GMT -7)   
My husband had the same thing happen to him. Laying down his heart rate hovered around 100, sitting up around 120, and moving between 140 and 160. The docs recommend that you move around a little bit more each day to get your heart used to the exertion again. At least that's what my husband's docs recommended. If you feel up to it, get up and move around. Sit up more instead of lying down, walk a little bit more every day. This was the advice they gave my husband.

PV
Husband with Crohn's
Diagnosed March 2003 Ulcerative Proctitis
Diagnosed March 2008 Crohn's & C-diff, hospitalized 45 days
Crohn's in Remission since June 2008
C-diff recurrence Sep 2009
Reactive Arthritis Nov 2009
Currently c-diff free
Osteopenia of spine (Mar 2010)
Canasa (1gm), Lialda (4.8 gms), Remicade (8 weeks)
Currently In Remission


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/19/2010 10:13 AM (GMT -7)   
Debilitated have you spoken to your doctor about this? I really think you should ask him these questions. I am not sure we are the folks to ask what your heartrate should be or what kind of activities you are allowed to do. I don't want you to be hurt by someone who isn't a professional telling you to do this or that. Hope you get feeling better soon.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

ZenaWP
Veteran Member


Date Joined Aug 2007
Total Posts : 884
   Posted 5/19/2010 10:20 AM (GMT -7)   
When I had my worst flare ever, my resting/sleeping heart rate was about 160 and it would go up to 200 when I tried to do anything (and I was 21 at the time).  My GI sent me to a cardiologist who did tests and saw that everything was working properly, it was just a really high heart rate.  They thought stress might be doing it. It ended up going down as I got over the flare up.  I still have (and have always had) a fast heart rate, but it is now down to about 90 resting.  I think the flare up has something to do with it, but you may want to see a cardiologist and have him make sure that everything is ok. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 5/19/2010 10:23 AM (GMT -7)   
Nanners. Heres what My cardio Said. Remember I was in the hospital for 8 days.

Maybe you guys can advice me based on this info:

I had a 3 week Heart moniter on.
He said Everything he saw was Tacchy and some normal resting heart rates but ALL normal Heart sinus rythems.
I told him about my HIGH heart rates but he believes as the TPN helps me gain weight it should slowly go down?
He said I should move around a little i guess.

Yes, Too make a long story short? THE SVT's are being controlled by cardizem and the doc's are aware.


Ok, So DO I have to move around? Or do I just need to get my Heart rate HIGH and get my heart rate used to it.?
I mean i can sit up for awile. GEt it up by stretching? Is the key just getting the heart rate used to moving Fast?

Thanks!
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/19/2010 12:02 PM (GMT -7)   
Your HGB has dropped 1.4 points - what does your Dr say about that? Are you bleeding?
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!


debilitated
Regular Member


Date Joined Jan 2010
Total Posts : 448
   Posted 5/19/2010 12:34 PM (GMT -7)   
No bleeding at all.. My urine IS VERY PALE yellow. Im pretty hydrated. I think my Hemoglobin is being diluted. My home Care nurse Agrees. I just bought liquid iron by Notrol. Another $25.00 for 2 bottles YAE!!!
I hate spending so much $$ on my health. Its so annoying.

Yes, Dehydration = higher Hemoglobin.
Hydration = brings it down on data(paperwork)
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Current: Methotrexate Injection, Entocort EC, Vitamin D, Fentanyl 25mcg / 72hrs - Zofran - Folic Acid
Currently On SSDI


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/19/2010 4:31 PM (GMT -7)   
I know you know the answer to this...What did your doctor say? To remind you and quote you he said something to the extent of "I should move around a little." So I would say talking with your doc is a good idea if you have any questions about what that means.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Post Edited (MMMNAVY) : 5/19/2010 6:34:10 PM (GMT-6)


Rider Fan
Veteran Member


Date Joined May 2008
Total Posts : 1445
   Posted 5/19/2010 5:25 PM (GMT -7)   
debilitated said...

Yes, Dehydration = higher Hemoglobin.
Hydration = brings it down on data(paperwork)


I never knew that! Interesting, thanks. Take care.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.


Go Saskatchewan Roughriders!


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/20/2010 6:38 AM (GMT -7)   
debilitated
for the anxiety you are no doubt going thru why not come to a/p forum n check it out post n you will get responses you NEED to deal with all the angst as werll

as for the cardio side there is also a heart n cardio forum that St Kitt monitors and she was a nurse in heart n cardio so im sure she can give answers too
tk care
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

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LYN

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