Coffee/Caffeine

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What A Life
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Date Joined Mar 2010
Total Posts : 116
   Posted 5/20/2010 5:39 AM (GMT -7)   
So I was doing a little reading this week. I was always under the impression that caffeine/coffee was "bad for crohnies." Apparently, according to a GI website, there is no significant evidence to suggest such, and the site actually discussed it being more of a positive thing to ingest as it "contracts the bowels" and ensures a cleaner gi-tract. It did go on to say, that it's not the caffeine in soda that is bad for you; it is more of the simple sugars (which I'm sure most/all of us know).

Just wondering how many of you, despite symptoms that you may be having, drink coffee on a regular basis and what effects it may or may not have on you?

I'm drinking a cup right now! Yum Yum!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


cutie
Regular Member


Date Joined Jan 2009
Total Posts : 80
   Posted 5/20/2010 5:43 AM (GMT -7)   
I drink tea every day faithfully and sometimes I drink soda. I get a belly ache every once in a while but it's not bad enough to stop me from drinking it.
age 41,diagnosed with CD in 11/07, Rx Pentasa 4000mg and Remicade.


cdinhyd
Regular Member


Date Joined Sep 2006
Total Posts : 101
   Posted 5/20/2010 5:56 AM (GMT -7)   
Everyday morning one cup of coffee w/ milk & sugar
Male India 47 years Diagnosed CD in 1990 Fistula surgery 1988
Mesacol Methylcobalamin Minerals Diagnosed MVP/MR in 2007 Dilitiazem


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/20/2010 6:05 AM (GMT -7)   
I'm ok with most coffees as long as they are not strong, and tea I used to drink til it was coming out my ears until recently when I started feeling sick every time I drank it!
I don't drink a lot of fizzy drinks, maybe the odd coke if I have my bicardi and coke which is once in a blue moon! ;)
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/20/2010 6:38 AM (GMT -7)   
Coffee,iced tea and h2o for me.

Mary Lynn


MMMNAVY
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Date Joined Jul 2006
Total Posts : 6927
   Posted 5/20/2010 6:40 AM (GMT -7)   
I use some white/green teas because they are natural remedy to some of my health issues. But coffee kicks me every time so I have given it up.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


tez25
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Date Joined Dec 2009
Total Posts : 65
   Posted 5/20/2010 6:41 AM (GMT -7)   
on the day i was diagnosed with Crohn's, my GI told me it was probably a good idea to cut out caffeine. (especially as i was doing my uni exams at them time and so i was drinking quite alot!) i just switched to decaff and i only very occassionally have a cup of "real" tea/ coffee now. i havent really noticed a difference between when i drink the real stuff and when i drink the decaff, but i think that since i can't taste the difference anyway that i should stick to the decaff stuff.... its just not worth the risk for me!

rovin1959
Regular Member


Date Joined May 2009
Total Posts : 159
   Posted 5/20/2010 6:44 AM (GMT -7)   
Coffee,iced tea and water for me!

Mary Lynn


rovin1959
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Date Joined May 2009
Total Posts : 159
   Posted 5/20/2010 6:46 AM (GMT -7)   
Sorry,said that twice. Getting old I guess!!!!!

Mary Lynn


Former58D
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Date Joined May 2009
Total Posts : 173
   Posted 5/20/2010 6:49 AM (GMT -7)   
GIs will also tell you that diet has no clinical support for changing it and we all know this is probably false too. I continue to drink coffee and the odd soda every now and then, but on days when I have that constant urge to go, I don't. Otherwise I'll be making multiple trips. We all learn what we can and can't tolerate.
"What can't be changed must be endured" - unknown

DX with distal Crohn's colitis Oct 2007, predominantly in rectum
Colozal and Canasa for 2+ years - developed an intolerance
6MP - elevated LFTs after 100mg, no effect after 9 months
Currently: Remicade (Nov '09), and Paleo Diet. Not quite remission, but so much better!


NiceCupOfTea
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Date Joined Jan 2010
Total Posts : 8566
   Posted 5/20/2010 6:56 AM (GMT -7)   
Tea is absolutely fine and I drink it a lot. As you might be able to guess from my name... <_<

Coffee is okay. Usually have it black w/o sugar, but I can't tolerate it as strong as I used to. Black coffee is hard on the stomach, but I think it's more the coffee itself rather than the caffeine it contains. Fizzy drinks are also rather hard on the stomach, but I think that's due to the carbonation and concentrated sugar dump and not the caffeine. Only rarely drink them.

Do you have a link to the article? Interested in reading it.

What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/20/2010 7:46 AM (GMT -7)   
Coffee helps me ensure I can get everything "out" in the morning before work. My Crohns is odd in the fact I never know if I'll be constipated or have D. Coffee just helps me keep it moving down there! I do notice that sometimes drinking it multiple days at a time, my stomach could get a bit upset. But heck, I've been known to drink a glass of water and my stomach has hurt as well! lol

Let me see if I can find the article; it was just a "general information" on diet on one of my GIs sites.
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/20/2010 7:50 AM (GMT -7)   
http://www.gicare.com/Diets/Crohns-Disease.aspx

There is the original writeup that sparked my research on caffeine. Doesn't say much other than "caffeine could be more of a benefit," but later discusses the simple sugars in sodas to stay away from. All of it is pretty good info there. I'll see if I can find the "coffee article" I found that was pretty neat.

*activated your link*

Post Edited By Moderator (Nanners) : 5/22/2010 8:04:29 AM (GMT-6)


grayeyedblonde
Regular Member


Date Joined Jul 2008
Total Posts : 383
   Posted 5/20/2010 9:41 AM (GMT -7)   
Every day. In fact, hubby and kids know not to talk to me until I have my coffee. Tea doesn't seem to bother me at all, either hot or iced

I am weaning myself off of my Starbucks Mocha Latte. That is the hardest thing for me to give up, but it's the chocolate, not the coffee that is bothering me.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 5/20/2010 1:20 PM (GMT -7)   
I've never had a problem with soda, but coffee was too harsh for me even before the diagnosis. However, the company that makes vita-muffins also make a coffe called strong and gentle that is supposed to be "easy on the gut". May be worth a shot...
JAS
 
Currently taking: Remicade


bbmom4
Regular Member


Date Joined Feb 2007
Total Posts : 45
   Posted 5/20/2010 1:36 PM (GMT -7)   
Okay... so what is the verdict on sweet tea???? I am trying to cut out my Pepsi but that means I usually drink sweet iced tea... I really don't think there is much difference for me but I have to start finding a few things to "change" to see if I can get some more relief...
37 yo mom of 4. Diagnosed in 1998 (CD in 3 areas), IBS also. Dealing with fistulizations and current flare. Meds: Imuran, Flagyl, Asipro, Prilosec and Prozac.


Dunchad
Regular Member


Date Joined Sep 2009
Total Posts : 36
   Posted 5/20/2010 2:29 PM (GMT -7)   
Three cups black coffee a day. Sometimes it will get things moving to much, but not always. Don't drink alot of carbonated drinks.
Diagnosed Crohns 02. Just had a resection April 20th 2010. Two sections removed had a fistula into the bladder. Also have a temp ostomy. GI said I could stop the 6mp, but going back on remicade.


ski bum
Regular Member


Date Joined Jan 2007
Total Posts : 451
   Posted 5/20/2010 2:53 PM (GMT -7)   
I couldn't tolerate well coffee after my resection. I'd still have a cup of coffee on the weekend with a bagel, and just deal with the consequences (gas and D). But I think what was causing me the distress was the bagel and not the coffee! Lately, I've been drinking a cup of black coffee almost everyday.
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/20/2010 4:40 PM (GMT -7)   
I find green/sweet iced tea gives me terrible indigestion. I LOVE it though!
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


NiceCupOfTea
Veteran Member


Date Joined Jan 2010
Total Posts : 8566
   Posted 5/21/2010 11:55 AM (GMT -7)   
Thanks for the link, What A Life. I had a look at it yesterday and took a look round the site while I was there. It was quite interesting.

*Bibi*
Regular Member


Date Joined Mar 2010
Total Posts : 49
   Posted 5/21/2010 1:05 PM (GMT -7)   
I LOVE coffee and tea! I actually worked at Starbucks for awhile, and was constantly caffinated for about a year! However, I had a resection 7 weeks ago, and since then have not been able to enjoy coffee. I am hoping I will be able to tolerate it again though!

songstress
Regular Member


Date Joined Jul 2005
Total Posts : 393
   Posted 5/21/2010 2:42 PM (GMT -7)   
I have coffee everyday, and it does not effect me. I do not use sugar, just creamer though. Caffeine can be a stimulant I have heard, but I have never had issues with it. (ps: I do not drink any sugary drinks, that may help!)
Psalms 9:18
But the needy will not always be forgotten, nor the hope of the afflicted ever perish.

Finally awarded disability after 4 long years! Thank God for attorneys!
Dx'd with Crohn's colitis May 05, spread to ileum as of 08'-- Currently on Humira every 2wks, Pentasa, Entocort, Phenergan,Zantac, Ambien


What A Life
Regular Member


Date Joined Mar 2010
Total Posts : 116
   Posted 5/21/2010 8:55 PM (GMT -7)   
No problem NiceCup. That is my GI that I go to. He really never steered me in the wrong direction, so I take the advice I can get off his site and put it to good use.
28 Y/O Male DXed Crohns in 2000.
Fistulotomy/Fistulectomy 2001
Been on many meds including Remicade.
Asacol and Pentasa on a when-needed basis as of recent
Current regimen: Diet and Exercise.


ozonehole
Veteran Member


Date Joined Dec 2006
Total Posts : 559
   Posted 5/21/2010 11:34 PM (GMT -7)   
Caffeine is a mild laxative, so if you've got diarrhea already, I would expect caffeine to make it worse. It certainly has that affect on me, where it gets delivered as coffee, tea or cola. However, hypocrite that I am, I do drink coffee anyway, in moderation. At least I've cut out all sugar, and instead sweeten my coffee with stevia.
Crohn's since 1988
3 resections


Bane
Veteran Member


Date Joined May 2007
Total Posts : 589
   Posted 5/23/2010 12:36 AM (GMT -7)   
For the first few years after I was diagnosed, I kept drinking Mountain Dew like it was the only liquid on earth (our water tastes funky). I finally switched to caffiene-free sodas after I lost my job due to severe symptoms. I felt better. I just recently switched from soda to Gatorade, and feel better still. Though, over the years I've learned how to better manipulate my diet, so that probably accounts for most of the improvement.
Diagnosed with Crohn's late December 2004. Narrowly avoiding a full-blown flare on Azathioprine (50mg daily).

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