son in hospital

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Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/20/2010 6:08 PM (GMT -7)   
well just got back from the hospital after being there most of the day with him, eventually they decided to take his appendix out as they suspected appendicitis, when he was in recovery they said his appendix were normal, they did check a portion of his colon because of me having crohns but obviously not all of it.
Is it possible that crohns could be mistaken for appendicitis????? I hope for his sake he hasn't got crohns but now I am wondering if his appendix were normal what the problem is! This is the 2nd time in 2 months he has had really bad cramps in 2 months too.
has anybody else been thought to have appendicitis when actually it has been crohns???
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


asc58
Regular Member


Date Joined Jun 2006
Total Posts : 83
   Posted 5/20/2010 7:25 PM (GMT -7)   
I'm sorry for the pain and uncertainty your son and you are going through. I'm 51 yrs old and when I was 14 I presented classic Appendicitis with pain and guarding in lower right quadrant, elevated white blood count. During surgery the next day, the surgeon was surprise to find the end of my Ileum red, swollen, and ulcerated. Not sure what he had, they pulled a med. book and laid it on my chest he said to compare pictures with what I had. They called it Regional Enteritis and yes they took my appendix while they were there so that mistake would not happen again. So, yes, it can appear as appendicitis.

Good luck and God Bless.

Steve
Crohn's in the ileum for the last 35 yrs.  3 ressections, numerous attempts at fistulae repairs, a battle with C Diff (that was bad), while recouping from C Diff, I had two PE's. Doing good now.
RX: Methotrexate, Zoloft.
 
 


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 5/20/2010 7:31 PM (GMT -7)   
Two months before I got the crohns diagnosis they thought it was appendicitis. I had abdominal pain and vomiting. In the CT scan my appendix was blocked by my slightly inflamed colon, which they thought was an effect of having an inflamed appendix. At first I got a little better but then I started having more and more stomach problems. They eventually decided that I had been experiencing an unusual onset of CD.
JAS
 
Currently taking: Remicade


mmckenna
Veteran Member


Date Joined Jan 2006
Total Posts : 725
   Posted 5/20/2010 8:30 PM (GMT -7)   
Bingo, same thing happened to me.

I went into emergency with lower right quadrant pain. Elevated blood levels, etc. They said it was appendicitis, and wheeled me off to surgery.

Next day I wake up and find out I have Crohn's. It's a very common thing to get diagnosed this way. The symptoms are similar. They opened me up and found a perfectly normal appendix. They took it out anyway, and started rummaging around my entrails and found the ulceration.

Mine has been referred to as "Regional Enteritis", that's just a fancy way of saying Crohn's disease.
Matthew McKenna,
Joey's dad.
Crohn's Disease and Guillian-Barre' Syndrome.
Remicade, 6MP and a few of their friends.

"I'm just along for the ride."


vixen
Veteran Member


Date Joined Jan 2010
Total Posts : 794
   Posted 5/21/2010 12:16 AM (GMT -7)   
Sorry to hear that your son  is in hospital.
 
My son was rushed in April 09(not diagnosed with Crohns until November 09). His appendix was removed and histology reports indicated that he had appendicitis and peritonitis. I had hoped that the pains he had been experiencing were due to his appendix rumbling and that he would then be free of pain.
Now move forward to November 09, the Crohns was found in my son directly under his appendectomy scar !
So in his case he had two things going on however I did read somewhere that it appears that for whatever reason one appears to be related to the other.
Fingers crossed that he will be free of Crohns!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/21/2010 5:57 AM (GMT -7)   
about 15 years after my diagnosis and five years or so before my emergency resection I went to the ER with bad right side pain and they deemed it was my appendix and removed it. Turned out my appendix was normal and 5 years later I ended up having to have a emergency resection because I was completely obstructed. So yes, it seems pretty common for them to think that its appendicitis when its really Crohns. I sure hope your son doesn't have Crohns though. Hugs~
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

*Bibi*
Regular Member


Date Joined Mar 2010
Total Posts : 49
   Posted 5/21/2010 1:02 PM (GMT -7)   
At my last Remicade pre-surgery, the other person who was having Remicade had the exact same thing, except they already knew that he had Crohn's!

njmom
Veteran Member


Date Joined Apr 2006
Total Posts : 1884
   Posted 5/21/2010 11:01 PM (GMT -7)   
My daughter was in her first year at college when she was rushed to ER for what they thought was appendicitis. However, the Cat scan showed normal appendix but a stricture in the TI, "suspicious for Crohn's."  
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 5000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 1000, 10mg zinc. SCD diet modified years ago to include potatoes and rice. 


pimfram
Veteran Member


Date Joined May 2009
Total Posts : 506
   Posted 5/21/2010 11:12 PM (GMT -7)   
It's quite common to mistake Crohn's for appendicitis. Crohn's can have lower right pain, which is also indicative of appendicitis. That's how I was diagnosed, I though my appendix was having an attack but they found my small intestine was jacked up.
Diagnosed with CD July 2007
Currently on Remicade, Imuran, probiotics, folic acid, multivitamin.
Resection December 2009

Amor fati - Nietzsche


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/22/2010 2:38 AM (GMT -7)   
He is still in hospital, minus his appendix and no actual conclusion still. He is still in agony in his stomach , but not where they took the appendix out , it is higher up and more to the right side of his belly button .He ate very little yesterday but everytime he did eat he promptly vomitted, they have been giving him antibiotics through his canular now as he wasn't keeping them down orally.The doctors don't seem to be doing very much which is quite worrying, they know my history of crohns and I thought they would have atleast done more blood tests if nothing else!!
The nurse did say that they probably wouldnt do any scan etc because of him just having his appendix out,but surely they would see what was part of the op and what wasn't on a scan,or x-ray!?!
I hope he hasn't got crohns and it was just a case of severe gastro or something simple, he's only 13 yrs old, and would hate to think he may have to go through what we go through!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/22/2010 6:57 AM (GMT -7)   
Keeping you both in my prayers. Maybe you should be a little more forceful and have them do some more testing. If for nothing more than to give you some peace of mind.

Hugs!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/22/2010 9:36 AM (GMT -7)   
seen the doctor today and now they say its mesenteric adenitis which affects the mesentry (covering of the intestines) which apparently can happen in children, that is a presumption but they have not actually ruled out crohns either!
He is still in hospital but looks like he may be out tomorrow......he does look a lot better than he did yesterday, but he has been on 3 lots of antibiotics including metronidazole (flagyl) since being in hospital, which maybe is masking a small flare ....maybe I'm looking into it deeply but it is quite a coincidence that the mesenteric adenitis can affect the small intestines.
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


crohnielass
Veteran Member


Date Joined Mar 2009
Total Posts : 1118
   Posted 5/22/2010 11:41 AM (GMT -7)   
Sorry to hear your son is having a rough time right now, really hope they can get him sorted Bev x
Diagnosed with crohns at 13 now 43
Meds: Iron syrup,Loperimide,Folic acid & Citalopram 30mg (for Anxiety.)

" I may not be there yet, but I'm closer than I was yesterday."


Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/23/2010 6:11 AM (GMT -7)   
So sorry yr son is going thru all this and i sure hope its not crohns
in thoughts n prayers
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

DONATE TO www.Healing Well.com
LYN


tall girl
Regular Member


Date Joined Apr 2009
Total Posts : 68
   Posted 5/23/2010 5:21 PM (GMT -7)   
Hope your son finds releif from the pain soon and it's not crohns. Hang in there.
25/ Female DXed Crohn's 1/09
Many diet restictions

Entecort, Tramadol (for pain), Kapadex, Fish Oil, Probiotics, Cipro and Flagyl for an abcess

just stopped Pentasa after 1 month

Having a resection in 3 weeks

Still confused and sometimes angry/frustrated

However I am learning to laugh at all this more often


hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 5/23/2010 8:41 PM (GMT -7)   
Yes, my first bowel resection was supposed to be an appendectomy.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


cleo35
Regular Member


Date Joined Feb 2007
Total Posts : 430
   Posted 5/24/2010 12:16 PM (GMT -7)   
ash, are the doctors not doing much for your son pediatric GI's??

Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/24/2010 12:38 PM (GMT -7)   
well now he's home and they say it is mesenteric adenitis, but i am still a bit dubious about that been as it also affects the intestines.....they said if it doesnt clear up then it may still be an onset of something else, namely crohns....we have to keep an eye on him and see if he gets any more stomach complaints but still a concern that this is not the first time in a couple of months....he has had a bad stomach about 3 times other than this one in the past 2 months!!!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections


Hugo's Mom
New Member


Date Joined May 2010
Total Posts : 6
   Posted 5/25/2010 2:39 PM (GMT -7)   
Sorry you and your son are going thru this! My son will be 8 on Sat. And when we were in the ER around xmas, they were concerned that it was his appedix

He also started with stomach pains back in Sept and they grew worse and worse, We have just been diagonsed with CD as of Monday.

Hope you have better luck then us!
TAKE CARE
My son who is almost 8 was just dx with CD.


Ashworthml
Regular Member


Date Joined Jan 2010
Total Posts : 222
   Posted 5/26/2010 2:32 AM (GMT -7)   
Hugo's Mom.... sorry to hear your son has CD, it must be hard on you as your son is only 8. Atleast with mine being slightly older I think he understands a little more. We still dont know whats happening with him, but he seems ok atm,touch wood! Obviously still sore form the appendix op and has a small 'stomach ache' but we will watch him carefully and monitor any stomach issues he has for the time being.

Thank you for all the replies, I wasn't expecting such a response!
Michelle 40 years old
Diagnosed with CD 2004 (undiagnosed correctly +- 3 years, wrongly diagnosed with IBS)
Bowel resection 2005
medication: pentasa 500mg , Co-codomol 500mg/32mg codeine
loperamide 2mg (prn - take as many as 10-20 a day)
calcium tablets, multivitamin tablets, Omega 3
Ferrous sulphate(anaemia)
levothyroxine (thyroid)
questran light (3 sachets/day), 3 monthly B12 Injections

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