First time visit Mayo- Length of stay?

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/21/2010 6:03 PM (GMT -7)   
OK.. so I guess I have a question about length of stay with the Mayo.

When you went to the Mayo for the first time, how many days did you need to stay? I admit I am freaking out because we are hurting financially and I guess I kinda thought it would just be the day and that was it. Than today I get all this paperwork which states 3-6 days. I wasn't prepared for that. I am taking all of my sbft videos, films, capsule endoscopy study pics and video , I also have all my labs, my health history...

I know there is no exact answer.. just trying to gain an understanding of what similar experiences were...

I admit.. I am scared.. excited.. just all over the place.

Thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


jas
Regular Member


Date Joined Apr 2009
Total Posts : 87
   Posted 5/21/2010 6:48 PM (GMT -7)   
I went to Mayo in Scottsdale, Arizona and I was there for 7 days. It's definitely case by case but it took several days to get a special MRI scheduled. They will ask you how long you have planned to be there and expedite things they need to. Probably would have been a shorter visit if l had been more adamant.
JAS
 
Currently taking: Remicade


*Bibi*
Regular Member


Date Joined Mar 2010
Total Posts : 49
   Posted 5/21/2010 7:20 PM (GMT -7)   
My first time, I think I was there 5 days. They are really good about getting everything scheduled quickly, though, and the hotel's up there will allow you to give a flexible date for check-out.
Diagnosed at 17, currently 23 :)  Have had 1 resection so far.  It's been an adventure!

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/21/2010 7:25 PM (GMT -7)   
Mayo is the EPITOME of efficiency. Depending on the time of day of your initial consult you will be sent off yet that day on a whirlwind of testing. You will have a pretty good idea of how long you will be there when you've been given your list of appointments at the end of your initial consult. Look for the date and time of your follow up consult and unless there is some treatment they want to start at the Clinic you will be turned loose w/a treatment regimen at the end of that consut. Depending on complications or not you could be done in as little as three days. Just keep in mind that your Mayo physician will work w/your local doctors as needed. They may even be able to recommend a Mayo-trained gastro in your local area.


My computer says I need to upgrade my brain to be compatible with its new software.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/21/2010 7:26 PM (GMT -7)   

chico41
Regular Member


Date Joined Jan 2006
Total Posts : 135
   Posted 5/21/2010 7:26 PM (GMT -7)   
ask them if you can get in and out.  tell them you are on a tight budget.  they worked with me.  you might have to sit for a waiting app.  it was worth the wait for me.  they said it could be 2-8 hr wait.  1 hour later i got in.  I was in rochester.  they also have some cheap hotels there.  u can find them close to the hotel.  i want to tell you the name but it is a no no on here.  sorry.

CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/21/2010 7:29 PM (GMT -7)   
Chico, one of the moderators can correct me if I am wrong but I do not believe it is against forum rules to recommend the motel you stayed at whilst in Rochester. I already have mentioned three that I have stayed at whilst there in another thread.
My computer says I need to upgrade my brain to be compatible with its new software.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/21/2010 7:30 PM (GMT -7)   
wow.. thanks... I was referred by my gi... and my appt is monday at 8:45.. I will let them know that I can't stay long... great tips.. thank you.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/21/2010 7:46 PM (GMT -7)   
Your appointment instructions probably told you to be fasting the morning of your appointment, right?
 
By the way, they have "computer labs" on several floors at Mayo and Gonda and some of the other buildings so you be sure to drop in to one of them and keep us up to date on your visit at Mayo and how you are doing and holding up.  Take my word for it they WILL keep you busy!!!
 
Take a couple of good books to read or a couple of crossword magazines or the like for in-between appointments as you are sitting waiting to be called. Be sure to spend some time just relaxing between appointments in "the wave" between the Mayo and Gonda buildings to see the view. That is assuming you will have some time between a couple of appointments. Most of the time I was kept hopping to make it from one appointment to the other.


My computer says I need to upgrade my brain to be compatible with its new software.

Post Edited (CrohnieToo) : 5/21/2010 8:53:27 PM (GMT-6)


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/21/2010 7:48 PM (GMT -7)   
Yes.. start fasting at 7pm night before.. we decided to get a hotel room the night before because I get so sick in the mornings..so that way I could just spend the night and get up and go to the appt...
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/21/2010 7:57 PM (GMT -7)   
Crohnietoo... thank you so very much!!! I will do that...I can't thank you enough....
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/21/2010 7:57 PM (GMT -7)   
I'm telling you, they do NOT waste time at Mayo, Rochester. When I say they are the EPITOME of efficiency I was NOT kidding! And they don't repeat any more tests that you've had done at home than they feel absolutely necessary. Keep in mind they usually have the latest and greatest in equipment and their technicians, etc. get more experience w/certain procedures in one month than your local techs, etc. get in one year!
My computer says I need to upgrade my brain to be compatible with its new software.

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