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carolinagirl
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 5/23/2010 8:06 AM (GMT -7)   
I was just dx in March with Crohns. I am 40 yr. old so I guess I am fortunate that it waited this long to show (altho I've had "issues" for 6 yr . prior.)
I have a couple of questions.
Has anyone else experienced severe pain on the lower right side  but not had any D or other "potty" issues?  I have had pain for almost 3 weeks now. My dr. says its just part of the crohns. I haven't heard of anyone else "flaring" or having this pain. It is sometimes so bad that I can't function. I do understand that that is the area the crohns is most active. I do have it all thru the colon and small bowel.  
Dr. put me on darvocet for pain but I hate taking it. Next question, Dr. keeps bringing up Remicade but I've just been dx and started on lialda and also am on pred. (weaning from 40; now at 30). Does this seems like a HUGE jump to such a strong medication? It seems that most people go thru many more meds before getting to the big guns like remi or humira.
I'm a bit worried.
and last, any one else have crohns and taking lialda? I'm taking 4 pills a day right now, just wondering what you think of it long term?
 
I just can't seem to understand how this much pain can be "normal" part of having crohns without having all the issues at the tail end. 
 
Also, this forum has been a huge source of understanding and has helped me heaps in the last few months....so thank you to all of you for sharing.
 
 
Kazza
 
 

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/23/2010 8:15 AM (GMT -7)   
Hi Kazza and welcome to the Healingwell Crohns forum. Yes when flaring is normal to have the pain in the lower right area. Many have this happen to them too.

I take the sister med to Lialda, called Asacol. Its one of the 5ASA meds used with IBD diseases. I have been in remission on the Asacol for the past five years.

Many GI's are now trying the top down approach on the Crohns meds. Personally I think it wouldn't hurt to try 6mp or Imuran first. We have members on this forum who have been maintained with one of these meds for over 10 yrs. They have a pretty good record for many. And now while you are on Pred it might not hurt to get on one of them now as they take about 3-4 mos to reach full efficacy.

Hope I have helped a little. Ask anything questions you might have, one of our great members will probably have an answer for you.

Hugs
Gail*Nanners*
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Adrilima
New Member


Date Joined May 2010
Total Posts : 2
   Posted 5/23/2010 11:03 AM (GMT -7)   
Hi There

I am female, 38 y old and I have crohn's since was 16 y old.

How did they diagnostic the crohn's, Did u do teh autopsy?

yes it is possible you do have althe pain and do not have other symptoms and yes the pain can be very very bad.

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/23/2010 12:11 PM (GMT -7)   
The Doctors usually diagnose crohns generally by scopes here. Usually a colonscopy and sometimes a long endoscopy. Crohns medications can take months to work. That is generally why they give you steriods in the short term. If your pain is so bad you cannot function then you might want to discuss different meds or pain killers. Generally they do not suggest pain killers in the long term, but that varies by GI.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


carolinagirl
New Member


Date Joined Mar 2010
Total Posts : 3
   Posted 5/24/2010 3:45 AM (GMT -7)   
I have had a scope and 2 CAT scans they did bio's as well. Everything screamed crohns and it was confirmed.

No one else taking lialda??

Howlyncat
Elite Member


Date Joined Jan 2005
Total Posts : 24909
   Posted 5/24/2010 5:04 AM (GMT -7)   
A member above posted that she takes LIALDA
yes the pain can be very intense n crippling
i like Navy think you should see if its possible for short term pain meds either from gi or if need be your family doc
welcome to healing well
lyn
..Co Moderator for Crohns........Alzheimers.....Anxiety/Panic

DX..Crohns,,,A/P...Fibro...Seizures..Neuropathy...Pyoderma Gangrenosum..Deaf
MEDS.....LYRICA..DILANTIN.. PENTASA.. FOLIC ACID.. MTX..ATIVAN PRN..DIAZEPAM BID...TRAZADONE

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