Crohns and Spondylitus

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as sufferer
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/23/2010 12:57 PM (GMT -7)   
Hya, have never been in these forums before, but have been in hospital for 4 weeks recently with chronic pain in the back. I have had AS now for 32 years and Crohns for about 10 years.All the pain killers in the world have not helped with the pain in my back and hips and now they say that the inflammation with the Crohns is causing more inflammation going upward in my spine and i spend so much time in pain and not able to move around much. I was an amateur jockey so you can see how frustrated i am in my condition. Last week they started me on MST...slow releasing morphine tablets twice a day as the Tramadol had no effect at all. What ever in the past i have been given for Crohns effected the AS and visa versa. Now they are looking at the problem as a whole and not treating both conditions seperately. I expect there are many out there the same as me, i just need to communicate with people who understand what i am going through. Thanks smhair

Post Edited By Moderator (Nanners) : 5/24/2010 7:48:20 AM (GMT-6)


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/23/2010 1:18 PM (GMT -7)   
Welcome to healingwell.
Ides is our mod with AS and crohns, but she has not been on for a couple of days due to the severity of her issues. So it might take a while for her to respond.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2827
   Posted 5/23/2010 2:13 PM (GMT -7)   
I have had lower back pain for about 8 years from a degenerative disc which may or may not be ankylosing spondylitis from my IBD. There were instances when I would sit down and not be able to get up from the pain. Five years ago I went to a chiropractor who was a tremendous help. After a couple of sessions the pain was lessened considerably at least temporarily. Now I return to get my back cracked about every 2-3 months whenever the pain returns.

Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 5/23/2010 5:06 PM (GMT -7)   
Welcome to Healing Well, as sufferer! I'm sorry to learn that you had to endure 4 weeks in the hospital. My last hospitalization was a nightmare. There was a problem with the air mattress the bed was equipped with and the staff failed to listen to my complaints that I was lying on nothing but the metal frame. I slept standing up leaning on the bed at its highest level. If I ever had to spend 4 weeks in the hospital I would become a candidate for the psych ward.
 
Sorry for getting off topic. I have AS and Crohn's. Not sure which came first. I had lots of difficulties with pain control and immobility from inflammation in my SI joints and enthesitis around most major joints. Then I went on Remicade. I was so much better. My Crohn's gut issues went into remission and the AS calmed down to a mostly tolerable level. Then Remicade stopped working. Tried Humira but had a severe reaction. I was off the anti-TNF meds for a year and the inflammation slowly crept back . I lost more and more mobility and my quality of life stunk. Rheumy put me on Simponi, a newly approved anti-TNF for AS, and yahoo! I am much better. I have had one flare of inflammation in my SI joints while on the Simponi but I believe that was caused by stress due to my mother's illness and having to drive and sit for long periods of time. Got my SI joints injected with steroids and that resolved that flare. So I am trucking around pretty good but I do have limits on what I can do physically.
 
Sitting is the most painful of all activities for me. I haven't been to a movie theater in years because it is just to painful to sit. Thankfully I have good leg strength probably from spending about 16 hours a day standing. I even watch TV standing up.
 
Are you seeing a rheumatologist? Mine has taken the lead in treating my problems. My gut is pretty much a non-issue so the GI is letting the rheumy tinker with my meds trying to optimize my health. Have you tried any of the anti-TNF meds? Do you have any other complications from the AS? I was just diagnosed with pulmonary artery hypertension caused by the AS.
 
Again, welcome to Healing Well! Sorry you are having to cope with both issues but you do have company here!
~~Ides
Moderator Crohn's Disease  & Osteoarthritis Forums
CD, Ankylosing Spondylitis, lupus, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, degenerative disc disease, asthma, severe allergy and a host of other medical problems.
 

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