At mayo.. checking in

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junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/24/2010 1:46 PM (GMT -7)   
I thought I would check in...

First.. yes.. epitome of efficiency.. that is accurate. They are amazing though it does tend to leave one in a whirlwind. I am completely overwhelmed...

Second... pity party.. they are making me repeat the colonoscopy and the ct enterography .. plus they did a tb test, a chest xray, a lot of blood work, and a stool test....I am most upset over the colonoscopy... I just don't handle those well...and I am not in the comfort of my own home..my own bathroom..and yes I know... but like I said.. pity party.

Third... I am here until at least thursday.. that sucks.. financially this is going to hurt us bad..which doesn't help the stress.

Everyone so far has been amazing and helpful and I am thankful for that. I am not sure why I am crying..its been so overwhelming. They won't hint at a diagnosis until all tests are back.

So start the moviprep at 6pm.. second dose in the morning and colonoscopy at 10:45.. the ct would be the next day. And than reevaluated.

We are staying at townplace suites.. and they have been amazing as well.. very kind ..and its clean and the price is right..we had no trouble finding parking this morning.. we chose to drive because the shuttle ends at 4 here and my hubby was nervous we would get stuck.. but like I said no trouble parking..

you guys rock.. and I can't thank you enough for all the love and support.... will let you know what happens next....
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/24/2010 1:56 PM (GMT -7)   
Hang in there! You will find its all worthwhile in the end. I am quite envious that you get to go to Mayo. Its one of the best!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

MAG102886
Veteran Member


Date Joined Jul 2008
Total Posts : 674
   Posted 5/24/2010 2:03 PM (GMT -7)   
I'm not trying to hijack your thread, but how do you get to go to the Mayo clinic?  Did your GI send you there or did you go on your own? 
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.
 

junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/24/2010 2:20 PM (GMT -7)   
My GI referred me and I don't mind at all... lots of people here have gone on their own though...there were tons of people here today..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/24/2010 3:38 PM (GMT -7)   
:-( I would be upset about having to do bowel prep in an hotel too, June. My heart & thoughts are with you. I hope it all goes smoothly.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/24/2010 3:41 PM (GMT -7)   
Thanks Ivy...yeah.. you know something about your own bathroom... and your own bedroom.. and last time with the biopsies it put me in so much pain.. and thats what they are doing tomorrow..

anyway.. thank you...I do appreciate it...thanks for letting me have my pity party.. =(
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/24/2010 3:52 PM (GMT -7)   
:-(

I have tears in my eyes for you.

Do you have hot water bottles etc for during and afterwards? Can you send someone out to get some? They might help.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/24/2010 4:17 PM (GMT -7)   
oh no.. I completely forgot about hot water bottles...my heating blanket... :(

sending hubby...thank you Ivy....so much

one cup down.. 3 to go tonight.
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Japey
Regular Member


Date Joined May 2010
Total Posts : 29
   Posted 5/24/2010 4:52 PM (GMT -7)   
Good luck. I absolutely hate not being in the comfort of my own home when I'm sick. But your husband sounds like he'll make you comfortable. Hope everything goes well.
23yr old female
Dx w/ Crohns: October 2004
Dx w/ IBS: November 2008
Current medications: Prednisone, 40mg tapering to 0; tramadol, 50mg when needed; hyoscyamine, .125mg when needed; and of course, multivitamins


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/25/2010 12:32 AM (GMT -7)   
Good luck tomorrow and remember you'll be having the experts doing your scope so it will go well. I also jealous of the Mayo Clinic, wish Canada had one.
Male, 54 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk, Entecort, Imuran and Prednisone in the past.


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/25/2010 2:01 AM (GMT -7)   
I thought it was a proper hospital, with beds? I really am surprised that they are making you sleep out, especially for bowel prep :-(.

Do they have beds for anyone, or do they do everything on an outpatient basis?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/25/2010 3:21 AM (GMT -7)   
You just get a hotel room for the duration..

long night...I haven't stopped going...have to start the second liter soon...feel like i have been hit by a truck,. is this normal with the moviprep
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


Japey
Regular Member


Date Joined May 2010
Total Posts : 29
   Posted 5/25/2010 3:36 AM (GMT -7)   
Any of those preps always completely destroy me (done it 3 times). Just gotta push through until its over. I hope you are doing well. The prepping is definitely always the worse part for me. I always just gotta have mindless tv or movies going to help me ignore the pain and grumbling in my stomach. Heating pads help me. I also have my boyfriend brush my hair or rub my back to give my mind something to concentrate on when the pain is really bad. Also, hygiene/baby wipes and desitin cream for the soreness. Else wise, its just about trying to find things to do to that keep your mind occupied. Really a mind over matter moment.
23yr old female
Dx w/ Crohns: October 2004
Dx w/ IBS: November 2008
Current medications: Prednisone, 40mg tapering to 0; tramadol, 50mg when needed; hyoscyamine, .125mg when needed; and of course, multivitamins

Post Edited (Japey) : 5/25/2010 6:35:14 AM (GMT-6)


MToronto2
Regular Member


Date Joined Apr 2010
Total Posts : 232
   Posted 5/25/2010 5:21 AM (GMT -7)   
My thoughts are with you June, hugs.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.


Zanne
Veteran Member


Date Joined Apr 2005
Total Posts : 3763
   Posted 5/25/2010 2:11 PM (GMT -7)   
I hope things went well and that you will finally get some answers! ((((HUGS))))
Suzanne

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!


Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....


junerainbow
Regular Member


Date Joined Feb 2010
Total Posts : 403
   Posted 5/25/2010 6:22 PM (GMT -7)   
I am back at the hotel.. hurt like ...not sure I can swear here...just really hurt. bad. really really bad....I was back there for 4.5 hours..that includes prep, the procedure and recovery.. was having a ton of pain after the procedure so they hung on to me...asked dr... i have a ton of scar tissue that made things difficult.. I could swear that the dr said that he found the reason for the diarrhea but I could have been hallucinating.
tomorrow is the ct... and than another meet with drs...

tonight is sleep.. and more sleep cuz I feel awful... woke up and hubby gave me my laptop to check in..
40 yo...mom to three wonderful kids, and wife to an amazing , supportive husband of 18 years..
-----------------------------------------------------------------------------------------------------------------
Diagnosed with gluten intolerance April 2009
Diagnosed with Crohn's March 2010- currently Prednisone, Propranolol and Vivelle Patch
Have taken Entocort, Bentyl, Flagyl, Lomidil, Colestipol
Have had myriad of health problems attributed to many different things over the past ten years. Our family has a history of Crohn's, Ulcerative Colitis and Bowel Cancer.


MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6927
   Posted 5/25/2010 6:41 PM (GMT -7)   
(((((((((junerainbow)))))))
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…


MIMIO
New Member


Date Joined Apr 2010
Total Posts : 8
   Posted 5/26/2010 11:54 AM (GMT -7)   
I was at Mayo (Scottsdale,AZ) last May.  I truly believe they saved my life.  They leave no stone unturned.  Trust them...they are the very best.  Blessings!

sr5599
Veteran Member


Date Joined Aug 2007
Total Posts : 1202
   Posted 5/26/2010 12:10 PM (GMT -7)   
Hang in there! Hope you're feeling better ... not easy days but I hope they bring the answers and solutions you need.
1 fistula, crohn's colitis, limited to large intestine
Compounded budesonide 3mg/daily, Cimzia, MTX . Dx Osteoporosis 10/08 started Forteo 1/27/09


CrohnieToo
Veteran Member


Date Joined May 2003
Total Posts : 9448
   Posted 5/26/2010 12:12 PM (GMT -7)   
No need for a referral to Mayo unless your health care insurance requires a referral. You can make your own appointment or go thru your doctor.

So, JuneRainbow, what gastro are you seeing at Mayo? I know you hate repeating a scope but given your history and difficulties you really did/do need them to do their own. That's what you went to them for, to get the answers so an effective treatment can be started.

(((hugs))). This too shall pass. (Just never fast enough, eh?).
My computer says I need to upgrade my brain to be compatible with its new software.


kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8375
   Posted 5/26/2010 1:04 PM (GMT -7)   
I hope you're feeling better today, June!

ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 5/26/2010 3:11 PM (GMT -7)   
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