We I have been excited about my appt today with my GI. I have been on Pentasa since being dx'd in 2004 and have never really felt like I was in remission. He tried to up my dose to 500mg 2 tabs 4 x per day but I would throw up constantly so he lowered my dose to 2 tabs twice a day. All of my obstructions have been on the Pentasa. I had a kidney stone in Feb and tried to pass it on my own, it was 6.5mm. I was given 30 vicodin 5-500 I took a couple and my crohn's pain went away. I was so excited. Here it is almost 4 months later and I still have 2 of the Vicodin left. I have pain every night. It is nice taking the Vicodin because for one the pain goes away and I only have 2-3 BMs per day instead of 10-15. The pain was only on the right but now for the past 6 months it is on the left as well. It is not my kidney, It is directly across from the pain at my TI site just opisite side. I am so uncomfortable all the time. So the Gi increased the Pentasa back to 2 tabs 4 times per day. And said to schedule a colonoscopy and gave me 20 Darvocet for pain. I told him I need something for the inflamation to help ease the pain. He finally gave me an RX for 10 days of Entocort, well DUH dosen't that take like 3 weeks to start working. I am so frustrated. I am sorry I am ranting. I just want the pain to go away. I don't eat during the day because I am afraid it will hurt while at work. I am not a complainer/winer, I do have a very high pain tolerence, always have just getting real tired of being in pain and having no quality of life. I am getting really discouraged. The closest Gi Dr is an hour away. Should I go see him? Sorry for the rant, just looking for someone elses input.
Thanks so much, KayC
RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.