So frustrated with my Dr

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Regular Member

Date Joined Feb 2008
Total Posts : 165
   Posted 5/25/2010 11:05 PM (GMT -6)   
We I have been excited about my appt today with my GI. I have been on Pentasa since being dx'd in 2004 and have never really felt like I was in remission. He tried to up my dose to 500mg 2 tabs 4 x per day but I would throw up constantly so he lowered my dose to 2 tabs twice a day. All of my obstructions have been on the Pentasa. I had a kidney stone in Feb and tried to pass it on my own, it was 6.5mm. I was given 30 vicodin 5-500 I took a couple and my crohn's pain went away. I was so excited. Here it is almost 4 months later and I still have  2 of the Vicodin left. I have pain every night. It is nice taking the Vicodin because for one the pain goes away and  I only have 2-3 BMs per day instead of 10-15.  The pain  was only on the right but now for the past 6 months it is on the left as well. It is not my kidney, It is directly across from the pain at my TI site just opisite side. I am so uncomfortable all the time. So the Gi increased the Pentasa back to 2 tabs 4 times per day. And said to schedule a colonoscopy and gave me 20 Darvocet for pain. I told him I need something for the inflamation to help ease the pain. He finally gave me an RX for 10 days of Entocort, well DUH dosen't that take like 3 weeks to start working. I am so frustrated. I am sorry I am ranting. I just want the pain to go away. I don't eat during the day because I am afraid it will hurt while at work. I am not a complainer/winer, I do have a very high pain tolerence, always have just getting real tired of being in pain and having no quality of life. I am getting really discouraged. The closest Gi Dr is an hour away. Should I go see him? Sorry for the rant, just looking for someone elses input.
Thanks so much, KayC
 RIP my beloved Chihuahua: Roxy
DX with CD of the TI in 2004 by colonoscpy biopsy, with partical obstructions x 3. Anemic, constant elevated ESR & WBC. Constant abd. pain and fatique.    
Meds: Vit B-12 shots monthly, zinc, multi vit, Vit E, Pentasa.    

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 5/25/2010 11:53 PM (GMT -6)   
i'd say if you're not happy with the care or advise you're getting from your doc than an hour drive is nothing. i'd go talk to someone else.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.

Regular Member

Date Joined Apr 2009
Total Posts : 166
   Posted 5/26/2010 5:52 AM (GMT -6)   
If you get your disease under control, an hour drive to see the GI every few months is not too bad. You shouldn't have to suffer so much. If you are having 10-15 bm's a day and lots of pain you need to get things under control. When is your colonoscopy? I would either be more of a whiner to your current GI or go to the new one. Sometimes we try to be positive and say "I'm fine" to our doctors when we really need to be very clear exactly how much our life is being effected. You should get things under control so that you don't have too much damage and so that you can improve your quality of life.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 5/26/2010 12:17 PM (GMT -6)   

I think you should go see a pain specialist.

They will give you pain meds, if you like using vicodin, and you are familiar with it, that is what they will give you.

You can then tell your g.i. I am seeing this doctor for pain control, I will never ask you for pain meds again.

They will keep tabs on you, they will educate you, and they will even count your pills(how many you have left) each and every time you visit.

Take Care

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