Unfortunately it isn't all that uncommon. CD can be fast moving and change rapidly. I had more than 10 colonoscopies one year, most with endoscopies along with it because I was having so much trouble and not one of my doctors could figure out what was going on. They could see the inflammation and ulceration, just not the cause. I was inpatient at a local hospital and then sent by ambulance to a teaching hospital in the major city. So I saw a good many GI's during that time and still I stumped them all.
That isn't to say that getting another opinion isn't a good idea, but you probably will still have to re do the testing. Sorry.
CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!
Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....