Does this bleeding sound like crohn's bleeding?

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PamSmith
Regular Member


Date Joined May 2010
Total Posts : 173
   Posted 5/26/2010 4:52 PM (GMT -7)   
Here is my story.
 
I am having rectal bleeding for 4 months. No Diarhea(just little urgency once a day most of time, some times 2/day) no pain. My pc said since I am over 40 years I should get colonoscopy.  GI saw little inflamation in sigmoid colon and biopsy said "mild to moderately active chronic colitis" Note: No specific features or granulomas found for IBD. Overall features favor IBD. Then had Promthus blood work positive for Crohn's only 2 pANCA and anti-Cbr1 positive. I know panca can be positive if you have RF factor high.My doctor says very mild crohn's and I have been taking Asacol 400mg X3 three times a day. and it is not making any difference. Plus my bleeding is like when I have gas, I go for BM and I see blood drops(bright red) in toilet and then little blood on stool. Some times I had blood with gas(my bowel can not be empty as It was 24 hours since last bowel once).Once I spoke to GI about it over phone he said it might be Hemmoroid though he did not see in colonoscopy.My questions are
 
1. I am going to GI and probably he will start steroid. first of all do you think I have confirmed diagnosis?
 
2. Do i have another choice not taking steroid as my symptom is only bleeding?
 
Thanks.
 
 

notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 14165
   Posted 5/26/2010 10:04 PM (GMT -7)   
I think you have the option to treat your symptoms however you want but you should try to work with a GI who sees somewhat eye to eye with you. I find that it's very hard to get a confirmed diagnosis, mine is UC but I don't think Chrons has been 100% ruled out.
March 07: Diagnosed with mild proctitis - Canasa as needed
August 08 - December 08: Flare & Anemic - Started Asacol
January 09 - December 09: Remission!!
December 09 - January 10: Massive Flare - Asacol + Prednisone + Canasa / Colazal
Current: Mild Active Pancolitis: Prednisone, Lialda, Cort Enemas, Canasa


mtgman
Veteran Member


Date Joined Mar 2005
Total Posts : 1289
   Posted 5/26/2010 10:06 PM (GMT -7)   
prednisone stops my bleeding cold typically. prednisone sucks but it will help.
35 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently off Pred.  still taking Asacol.  Just had 1st Remicade infusion a week and a half ago
In the middle of a bad flare now for a year...lost almost 30 lbs. -- gained most of it back now.


Grandpato2
Veteran Member


Date Joined Dec 2009
Total Posts : 681
   Posted 5/26/2010 11:41 PM (GMT -7)   
Bright red blood is indicative of bleeding close to or at the rectum. I'm suprised nothing was noted at the scoping as I'd suspect hemmerhoides or an anal fissure. I'd suggest your GI could do a quick visual check in his/her office if there's and exam room there. That's the easiest way to find out. Steroids should help quickly as Mtgman suggests.
Male, 55 years old with Crohn's since 15 years old, diagnosed at age 46. Terminal ileum resected 2002. 5 months of remission. Crohn's has now been active since early 2003. Had a gall bladder removed Nov. of 2009. Currently on Remicade every 8 weeks, Nexium, Iron, B-12 injection every 4 weeks,5-asa Asacol, Entocort, Morphine Sulfate as needed for pain. Cymbalta for long term pain control. 5-asa Salofalk,  Imuran and Prednisone in the past.


WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 5/27/2010 12:41 PM (GMT -7)   
My Crohn's is mostly in the rectal area, so I get lots of bleeding when I am flaring, and a little at other times. The trouble with blood work etc. is that if the inflammation is only in the last couple of inches of your digestive system then your blood work may look normal. Also, the prednisone may take a while to kick in. It took me a stay in the hospital on IV steroids to stop the bleeding. The Asacol (which I think is like the Salofalk that I take) is not really that effective for treating a flare. It is good to keep you in remission, and you should definitely keep taking it (IMHO).

It sounds to me (not being a doctor of course) like you need to do something more than you are doing. I wouldn't necessarily start with prednisone orally. If you can try rectal foam topical steroids, or 5 ASA enemas or suppositories it may take care of the bleeding, and would not have as heavy side effects. I would definitely return to your doctor/GI and ask for more action. When I was in the hospital the GI on call was most clear that the bleeding needed to stop. Your GI can do a sigmoidoscopy with no prep etc. to see if there is still inflammation in the colon/rectum.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.


PamSmith
Regular Member


Date Joined May 2010
Total Posts : 173
   Posted 5/28/2010 6:32 AM (GMT -7)   
WriterMum,
 
It sounds good advice.I will definately ask GI to try steroid or 5 ASA enemas before oral steroid.Also I am taking multivitamin but is there anything I should be doing so don't end up in hospital for transfusion? I am going to ask for blood test to check for anemia too. I see you take Salofalk suppositories too. So when you are in remmision do you use them to say in remmision or if you see little blood, you start using it to stop bleeding? And does it work?

WriterMum
Regular Member


Date Joined Apr 2009
Total Posts : 166
   Posted 5/30/2010 8:11 PM (GMT -7)   
I use the suppositories if I see a little blood, and they do seem to work. I find they work for me better than the steroid foam, but others on this forum find it the other way round. I would see what works for you.

I can't help with the iron issues. I have them too. My family doctor and GI go back and forth together about giving me intravenous iron because oral stuff is hard on the system. For now although my iron is low it is stable, so they are just keeping an eye on it. I have been told to do bigger doses of calcium and vitamin d than are in a multivitamin too. B vitamins are also often recommended, but others on this site know more about that.
45 years old. Diagnosed with moderate to severe Crohn's in April 2005. Hiatus hernia diagnosed in 2008. Had Crohn's under control until March last year when I had a major flare up and ended up in hospital. Diagnosis is now CD and IBS. Getting it under control again.
Currently taking: Salofalk 2000 mg, Nexium, Calcium and Vitamin D, Matamucil, Yogurt for probiotics, Salofalk suppositories as needed.

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