SOS the coffee maker noises gotta go! PLEASE HELP!

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Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 5/26/2010 8:42 PM (GMT -7)   
So I have asked and put this question out there before but I just gotta ask everyone again.
I suffer from BORGARIGIMI - or whatever the hell its called - a VERY NOISEY GUTT and I am SO SICK OF IT!!
It is constantly gurggling and grumbling - and I am always feeling like pressure in my abdomen / j-pouch area.
I know it may sound silly to some of you that I am complaining of such a small thing but its NOT.
It is so bad, and so annoying - I feel helpless! I take GAS-X and it doesn't help. I have tried many things like chewing slowly and eating plain foods, pepto bismol, yogurt, etc... I can't excape it! I think or I know I have a bit of narrowing there somewhere and I have heard that this narrowing can cause some of the continuous volcano like sounds but this is truly INSANE!
My question is: would having surgery and getting an ostomy make the sounds less or disappear?
I think no that they will still be there only maybe louder....
God please help me, I can't take this anymore, it bothers me so much.
I have a GI appt. June 10 and I can't wait. Waiting and suffering is the hardest thing, not to mention the feeling of hopelessness as well.

cry

Wish you all well

Cindy
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


specialknbug
New Member


Date Joined May 2010
Total Posts : 11
   Posted 5/26/2010 8:54 PM (GMT -7)   
Oh goodmess, that used to drive me insane!! It would be so loud that people would look at me funny. And I could feel everything moving through my stomach while it was going on. Fortunately, after surgery, they never came back...knock on wood! Hope the best for you!!

Nanners
Elite Member


Date Joined Apr 2005
Total Posts : 14995
   Posted 5/27/2010 6:14 AM (GMT -7)   
Surgery, if you did have a stricture, would stop the loud noises. You also might want to talk to your GI about a possible bacterial overgrowth. You tend to get alot of gas and bloating with it, and its easily treated with a 10 day course of Cipro or another antibiotic like that. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

missnuts
Regular Member


Date Joined Apr 2010
Total Posts : 76
   Posted 5/27/2010 6:42 AM (GMT -7)   
I understand how you feel, my stomach is like this when flaring. It is very waring when you are constantly aware of the gurgling and bubbling going on. Hope you get it sorted

hld4good
Regular Member


Date Joined Jan 2010
Total Posts : 193
   Posted 5/27/2010 8:38 PM (GMT -7)   
Mine made the same "alien" sounds. And it was always loudest if I was in the middle of a meeting. Everyone would tell me to eat because my poor stomach was growling. I would just smile and think "you don't know the half of it." Sometimes it sounded like a lion roar and sometimes like a cat with its tail stuck in a door. All of that went away when I started to feel better and I'm sure your will also.
Age 58, Crohn's since age 21
3 bowel resections, 1980,88,95
1 fistula repair, 2005
probiotic
digestive enzymes


carmen
Regular Member


Date Joined Feb 2003
Total Posts : 499
   Posted 5/28/2010 5:02 AM (GMT -7)   
Just yesterday , my daughter asked what those vaccum noises were? I explained my bowels...

Very annoying...I had surgery too!

If any suggestions on how to help this problem...please let us know...

Thanks
Carmen

Charlee
Regular Member


Date Joined Apr 2010
Total Posts : 72
   Posted 5/29/2010 2:52 AM (GMT -7)   
I can certainly relate. Its annoying, frustrating and embarassing. Especially when someone not suffering from CD next to you says "jeez, go and eat something!" What's a typical grumble to them is an alert for us! I know that gastric reflux can increase bowel sounds, or so says my GI. I am on a med for reflux and I do notice that the sounds settle for some hours after I take it. They are not gone, but they are settled. I can't give adice on whether or not surgery will help but you GI should be able to help you there. I have learnt that bacteria is a great one for noises and distention. Nanners is probably on to something there for you to take to the GI. Hope you get some answers soon. I know what its like. Good luck.

Charlee
37y/o female from Australia
Dx: crohns april 2010
Meds: Currently : prednisone, calcium, vit d, nexium, probiotics, fish oil


Zanne101
New Member


Date Joined May 2010
Total Posts : 7
   Posted 5/29/2010 10:12 AM (GMT -7)   
Don't take antibiotics, unless absolutely necessary - you need good bacteria like you get in yogurt. I take FloraJen, because I don't want the dairy in the yogurt and want a consistent dose. The FloraJen (and other probiotics like it) is live bacteria, is kept refrigerated and has nothing "extra" in it, just probiotics. I had the same noise problem when I was developing a blockage, but even after surgery, I continue to take the probiotics because, since our digestion is so messed up because of illness, we need to replace the good bacteria. The average American diet doesn't give us what we need.
If I feel some digestive upset beginning, I double the FloraJen for a few days, till whatever was causing it has been brought under control.

chico41
Regular Member


Date Joined Jan 2006
Total Posts : 135
   Posted 5/29/2010 11:15 AM (GMT -7)   
Nanners.  I just got of a 2 week coarse of Flagyl.  Did not stop the Gurgling.  I feel your pain, Sofee.  Like someone said it always makes the loudest noises when someone is around.  Doesn't bother me besides someone i don't know looks at me weird.  If they only knew what we go threw.  yeah   So if anyone else knows a cure I sure would like to know.  Besides a surgery.  I am sick of hopitals, never fails i go in it is always a 1 month without food.  so surgery is a no no for me.  

Sofee
Regular Member


Date Joined Sep 2009
Total Posts : 90
   Posted 5/29/2010 1:09 PM (GMT -7)   
thanks for the responses, I can clearly see that I am not alone! And yes, Zanne101 I agree I am actually alergic to Cipro which is an antibiotic also so yes, they say you can only take antibiotics for so long .... and I also take a yogurt supplement that has lots of good bacteria in it... aphodophilis ... and I find it does not take away the sounds. sometimes I can drink just plain water and BOOM - gurggle gurggle, and loud, like it just doesn't seem right....I will definitely mention it and other symptoms I have to the specialist when I see them on the 10th.
I think what is going to happen is they are going to take me off of the Remicade and start me on Humira.
I have sleepless nights, accidents, and I am tired all the time. I'd say I have been at 10-15 BM's a day ever since I was diagnosed.
Nothing seems to have really changed much for the better. And the noises have gotten worse than before.

Hopefully they can give me something for the noises without having to go thru a bunch of stupid tests again and again.
Thanks guys for your comments. I will keep you all posted & let you know how it goes.
Cheers, gurggle...gurggle.
33 yr. old female CANADIAN
dx with UC October 1998
had temp j-pouch: '98-'99
disease free & back to norm: '99-'07
dx. with CD March 2009
Currently taking: Remicade mthly & Imarun


In my next life: I want to be a big beautiful oak tree or something like that... so I can live off of just sunshine and water.


Zanne101
New Member


Date Joined May 2010
Total Posts : 7
   Posted 5/29/2010 1:47 PM (GMT -7)   
Sofee,

You need more than acidophilus. It needs to be a combination of probiotics. Google probiotics and "probiotics for Crohn's" (even check out the Flora Jen site) and you'll see what I mean. You might also be lactose intolerant now since your intestines have been damaged, so the yogurt could be causing or exacerbating your problems. I took Digestive Advantage (the lactose intolerance version) for a long time and it helped immensely. You only have to take one a day, not something with every meal.

Believe me I had the same conditions you're talking about. A sip of water would send me into the bathroom. I couldn't even get to the stores, a mile away, on bad days without looking for a bathroom at least 2 times. And then I would have attacks while in the supermarket.
I suggested this on another thread, but have you ever thought of going Gluten Free? Or doing an elimination diet to see if any food is causing some of the problems? You'd be surprised what a difference being Gluten Free does for me. My meds work better and I take less of them. If I eat something with wheat in it by mistake, I notice the difference right away. I started getting sick in my teens and was misdiagnosed until I was 60!

My Dr is in total agreement on me being Gluten Free. I take a probiotic every day, and sometimes double up if I feel things are not right in my gut. If I get lazy and don't take them for a couple of days, my gut starts acting up. You've got to remember that nothing is working right in our systems so the bacteria count is always off.
BTW, I am of French Canadian descent. I have family members in Canada with the same thing - Crohns. Heck, as big as my family is, you're probably a relative :-}

Take care and good luck!
Zanne

ps: One of my cousins, with Crohn's also, has been switched from Remicade to Humira and is doing very well. The Remicade worked for her for some years, but then wasn't doing it's job, so she had to have her treatments changed.

Post Edited (Zanne101) : 5/30/2010 5:31:47 AM (GMT-6)

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